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What about GovFundME, a play on GoFundMe and hinting at the US '.gov' identity/nomenclature.

Voluntary attention regulates acute immune responses in humans Mizrachi, Nofar; Rottem, Menachem; Rozenkrantz, Liron Abstract Abstract Attention is a central mechanism for prioritizing and shaping sensory information. For example, directing attention away from injury reduces perceived pain...

This is quite similar to how I was when I first became severe a few years ago and my PEM/crash days are still like this. Do you have orthostatic intolerance? Being upright and exerting in the first few hours really does me in. Could you try breakfast in bed rather than getting up? I also...

I read this as third eye protrusion and thought Marmalade had ascended to a higher astral plane.

Raelan doesn't care what the condition is. It's all the same thing to her. Sometimes the diagnosis isn't even explicitly mentioned. Often the interviewees are self-diagnosed. EDIT: I've also seen several videos where the interviewees got ill during covid so they call it long covid despite...

Ah good spot. I've now registered.

Would appreciate a PDF if anyone has access. Thanks.

There are some memes — in the old sense of the word — in the ME/CFS world that never seem to die. Hydrogen water is one of those.

I recognised the name right away. She is one of the ME4ICC hardliners who were much more prominent about a decade ago. Will probably tell you Byron Hyde figured out ME decades ago. That sort of thing.

The first author is a long-time collaborator and colleague of Michael Maes. I hope they are happy with their editorial, which was likely written by AI.

It's also open for comments and intended to be a living document. I don't know if S4ME or anyone here has had any input yet.

Very good. This final line here is a very important point. Something I'd wanted to flag for a while. PEM can be unpredictable. You can't automatically assume PEM will be induced by, e.g., an exercise test, even if it's over someone's usual capacity.

https://forward-me.co.uk/fme-briefing-paper-on-clinical-assessment-of-people-with-very-severe-me-cfs/

If you mean in-cell hijacking of energy production / metabolism by viruses, then yes, I supose that wouldn't involve central processes.

But wouldn't such mitochondrial or energy issues be downstream of some sort of 'signalling' ultimately coming from the brain?

I think a central mechanism is much more likely given cognitive effort causes very similar or identical issues to physical exertion/effort.

The Wust study is an outlier in that they specificially recruited LC patients meeting CCC. That is unusual. The usual approach is just to study long covid patients. Some studies go on to identify different subsets and phenotypes. So yes, there is a lot of research on all forms of long covid...

Thanks @Hutan

I wrote about this here (https://bjsm.bmj.com/content/60/8/600.responses#post-exertional-malaise-cannot-be-reduced-to-exercise-intolerance-and-often-does-not-respond-well-to-traditional-rehabilitation-approaches) in response to a paper by Charlton + Wust plus Putrino and Systrom, which itself...

Exercise intolerance involves any abnormal symptoms during exertion, most notably fatigue, chest pain, rapid heart rate, and shortness of breath. The focus is almost always on physical exertion and it is often attributed to deficits/dysfunction of the cardiopulmonary and respiratory systems —...