2018

Overcoming Chronic Fatigue - In the NIH now on track? One can answer yes or no.

A coalition of parents and other carers to children and adolescents with ME has written a letter to the Norwegian Directorate of Health about the national centre of excellence for CFS/ME. The centre has a biopsychosocial approach to ME, and the parents give several examples of how this view is...

https://www.cambridge.org/core/journals/epidemiology-and-infection/article/rheumatism-and-chronic-fatigue-the-two-facets-of-postchikungunya-disease-the-telechik-cohort-study-on-reunion-island/9219D0C9D7B26C605C9452B0EADA61D6#

Begoña Ruiz-Núñez, Rabab Tarasse, Emar Vogelaar, Janneke Dijck-Brouwer and Frits Muskiet https://www.frontiersin.org/articles/10.3389/fendo.2018.00097/abstract

Here is my analysis of the response from Caroline Dinenage MP, Minster of State for Care, during the Westminster Hall Debate on PACE and its effects on people with ME: https://www.meaction.net/2018/02/26/read-about-the-westminster-hall-debate-on-the-pace-trial-and-its-effects-on-people-with-me/...

via https://cfsme-registry.info

via https://cfsme-registry.info

via https://cfsme-registry.info [2018-02-23] Energy Status and MRS

"Fibromyalgia/CFS patients fighting for awareness of career-ending illness For years medical profession has questioned if fibromyalgia or chronic fatigue syndrome are real Peter Dawe says fibromyalgia and chronic fatigue syndrome — diseases that can cause debilitating exhaustion, joint and...

Raised on another thread. https://dpac.uk.net/2018/02/protest-against-iapt-therapies/ I have mixed feelings about this. "The Alliance for Counselling and Psychotherapy has organised a demo at the New Savoy conference again this year. The New Savoy Conference is the annual gathering of...

https://twitter.com/TomKindlon/status/967444649790058496

I've not read this yet myself, but saw it on social media and thought it might be of interest. Convenience sample though so can only really be a starting point for further investigation. Open access...

https://www.ncbi.nlm.nih.gov/pubmed/29471861 https://trialsjournal.biomedcentral.com/articles/10.1186/s13063-018-2500-3

NICE has promised to review its current guidelines on ME/CFS, which is not scheduled to be completed until 2020. Meanwhile it has left the current guidelines in place, despite the recommendations for treatments that are known to be harmful...

https://www.ncbi.nlm.nih.gov/pubmed/29464501 https://link.springer.com/article/10.1007%2Fs12602-018-9397-8

After the promising radio interview yesterday, with one of the documentary makers and the father of an ME patient (https://www.nporadio1.nl/radio-focus/onderwerpen/445612-onverklaarbaar-oververmoeid) Dutch transcript from radio interview on https://corsius.wordpress.com/ English transcript...

David Tuller will be touring Australia as part of his 12 month crowdfunded work for ME/CFS in mid-March. Event details are yet to be finalised, but he will be in Australia for 4-6 weeks. I will post updates of events to this thread as they are available.

Läkartidningen (Doctor's newspaper) provides news on behalf of the Swedish Medical Association. In May they invite to a seminar about the differences between chronic fatigue and ME. Important topic perhaps particularly in Sweden where chronic fatigue/idiopathic or stress related fatigue goes...

https://www.ncbi.nlm.nih.gov/pubmed/29455899 http://www.jpsychores.com/article/S0022-3999(17)31032-2/fulltext

Following the stellar job done by Carol Monaghan at the debate today and the (IMO) PACE-defending, useless response from the minister, what should our next steps be? People have mentioned some things but they're buried in the the pre-debate threads. I'd like to know what Carol Monaghan thinks...