2018

  1. R

    Letter in The Times (UK) on ME research

    Pleased to report that The Times has published my letter about the lack of investment in biomedical ME research: https://www.thetimes.co.uk/edition/comment/brexit-s-self-inflicted-wound-on-uk-s-future-vksr9j2jw It appears in Wednesday’s edition. The omission of “most” is their error.
  2. Kalliope

    David Tuller: Trial By Error: My 2011 NY Times Exchange With the PACE PIs

    My 2011 NY Times Exchange With the PACE PIs When the PACE trial was published in early 2011, my New York Times editor sent it to me, along with the press release. As a non-staff contributor to the Times, I had started covering the debate over the mouse retrovirus hypothesis and science, but I’d...
  3. Simone

    Australian Radio segment: Mark Guthridge & Mark Donohoe

    This morning there was a segment on ABC Sydney radio, in which Dr Mark Guthridge, Senior Fellow at Monash University, and Dr Mark Donohoe, a Sydney GP who specialises in ME/CFS, were interviewed. Mark Guthridge gave an overview of some of the research, and Mark Donohoe spoke about his approach...
  4. Andy

    Hope 4 ME & Fibro Northern Ireland annual conference, Monday 17th September 2018

    Attending will be Drs José Montoya, Nigel Speight and Peter Rowe. https://www.facebook.com/Hope4MEFibro/posts/1755888444469968 Facebook post
    • Andy
    • Thread
    • 2018 conference hope 4 me & fibro northern ireland
    • Replies: 18
    • Forum: General ME/CFS news
  5. Dolphin

    "Is fatigue a disease-specific or generic symptom in chronic medical conditions?" (Dutch CBT proponents involved)

    http://psycnet.apa.org/record/2018-23402-001 Is fatigue a disease-specific or generic symptom in chronic medical conditions? Journal Article Database: PsycARTICLES Menting, Juliane Tack, Cees J. Bleijenberg, Gijs Donders, Rogier Droogleever Fortuyn, Hal A. Fransen, Jaap...
  6. Sasha

    'Love Means Never Having to Say... Anything' - moving NYT article by PWME Jamison Hill (25 May 2018)

    Wow... "After dating Shannon for several months, I needed to say something to her, but I couldn’t. It’s not that I was nervous or unsure of the phrasing. It’s that I couldn’t speak. My lungs and larynx couldn’t create the air pressure and vibrations needed to say the words floating around my...
  7. Indigophoton

    The gut microbiota mediates the anti-seizure effects of the ketogenic diet, 2018, Olson et al

    I'm posting this because I've noticed some people mention finding a keto diet helpful for their ME. It seems that the keto diet potentially - tbc in humans - results in a couple of key types of gut bacteria that are found to modulate levels of GABA in the brain. GABA is increased relative to...
  8. Andy

    David Tuller: Trial By Error: More on the CDC; Reader’s Digest; and BBC’s Newsbeat

    http://www.virology.ws/2018/05/23/trial-by-error-more-on-the-cdc-readers-digest-and-bbcs-newsbeat/
  9. Andy

    Transient Receptor Potential Ion Channels in the Etiology and Pathomechanism of CFS/ME, 2018, Marshall-Gradisnik et al

    Open access at http://www.scirp.org/journal/PaperInformation.aspx?PaperID=84678
    • Andy
    • Thread
    • 2018 aetiology australia marshall-gradisnik me/cfs ncned paper
    • Replies: 2
    • Forum: ME/CFS research
  10. Andy

    The putative role of oxidative stress and inflammation in the pathophysiology of sleep dysfunction across neuropsychiatric disorders, 2018, Carvalho

    Paywalled at https://www.smrv-journal.com/article/S1087-0792(17)30152-1/fulltext
    • Andy
    • Thread
    • 2018 carvalho inflammation me/cfs neurology oxidative stress paper sleep
    • Replies: 2
    • Forum: ME/CFS research
  11. Andy

    Poor self‐reported sleep quality and health‐related quality of life, 2018, Castro-Marrero

    Paywalled at https://onlinelibrary.wiley.com/doi/full/10.1111/jsr.12703
  12. Andy

    Review: Antibodies against GPCR, 2018, Meyer and Heidecke

    Open access at http://www.bioscience.org/2018/v23/af/4698/fulltext.php
    • Andy
    • Thread
    • 2018 aetiology antibodies me/cfs meyer paper review
    • Replies: 0
    • Forum: ME/CFS research
  13. Emily Taylor

    Senator Ed Markey introduces resolution to encourage immediate government response for ME/CFS

    WASHINGTON D.C. – The Solve ME/CFS Initiative (SMCI) announced Tuesday that 102 people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and their loved ones rallied together in the largest Capitol Hill action for the disease to date. Advocates from across the country called for...
  14. H

    The High Cost of Low-Grade Inflammation: Fatigue as a Consequence of Reduced Cellular-Energy Availability and Non-adaptive Energy Expenditure (2018)

    Title altered slightly to fit but left untouched below. https://www.ncbi.nlm.nih.gov/pubmed/29755330 https://www.frontiersin.org/articles/10.3389/fnbeh.2018.00078/full
    • hixxy
    • Thread
    • 2018 cancer cytokines energy fatigue lacourt me/cfs metabolism paper
    • Replies: 0
    • Forum: ME/CFS research
  15. Indigophoton

    C-Reactive Protein Response in Patients With Post-Treatment Lyme Disease Symptoms Versus Those With Myalgic Encephalomyelitis/CFS, Uhde et al, 2018

    https://academic.oup.com/cid/advance-article-abstract/doi/10.1093/cid/ciy299/4993827 Full text, http://sci-hub.tw/10.1093/cid/ciy299
  16. adreno

    Successful treatment of POTS and MCAS using LDN, immunoglobulin and antibiotics

    Abstract A patient with severe postural orthostatic tachycardia syndrome (POTS) and mast cell activation syndrome (MCAS) received immunotherapy with low-dose naltrexone (LDN) and intravenous immunoglobulin (IVIg) and antibiotic therapy for small intestinal bacterial overgrowth (SIBO). A dramatic...
    • adreno
    • Thread
    • 2018 immunology ivig low-dose naltrexone mcas me/cfs paper pots t-cells treatment
    • Replies: 2
    • Forum: ME/CFS research
  17. M

    Angiotensin II Type 1 Receptor Autoantibodies in Postural Tachycardia Syndrome (2018) Yu et al

    Angiotensin II Type 1 Receptor Autoantibodies in Postural Tachycardia Syndrome Authors:Xichun Yu, Hongliang Li, Taylor A. Murphy, Zachary Nuss, Jonathan Liles, Campbell Liles, Christopher E. Aston, Satish R. Raj, Artur Fedorowski, David C. Kem (from Oklahoma, Sweden and Calgary) Abstract...
    • Milo
    • Thread
    • 2018 immunology me/cfs paper pots satish raj
    • Replies: 9
    • Forum: ME/CFS research
  18. Andy

    Patients with chronic fatigue syndrome do not score higher on the autism‐spectrum quotient than healthy controls, 2018, Bileviciute‐Ljungar et al

    Paywalled at https://onlinelibrary.wiley.com/doi/full/10.1111/sjop.12451
  19. Andy

    Anti-stress effects of human placenta extract: possible involvement of the oxidative stress system in rats, 2018, Shim et al

    This looks familiar but a forum search didn't turn up anything. In my opinion, this barely counts as biomed ME research but it doesn't really fit elsewhere. Open access at https://bmccomplementalternmed.biomedcentral.com/articles/10.1186/s12906-018-2193-x
    • Andy
    • Thread
    • 2018 immunology me/cfs oxidative stress paper rats shim
    • Replies: 3
    • Forum: ME/CFS research
  20. Dolphin

    Reduction of glucocorticoid receptor function in chronic fatigue syndrome

    Free full text: http://downloads.hindawi.com/journals/mi/aip/3972104.pdf Source: Mediators of Inflammation Preprint Date: April 20, 2018 URL: http://downloads.hindawi.com/journals/mi/aip/3972104.pdf Reduction of glucocorticoid receptor function in chronic fatigue syndrome...
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