2018

Trial By Error: A Letter to BMJ Open 19 February 2018 By David Tuller, DrPH http://www.virology.ws/2018/02/19/trial-by-error-a-letter-to-bmj-open/

http://onlinelibrary.wiley.com/doi/10.1002/jclp.22593/full A reexamination of the cognitive behavioral model of chronic fatigue syndrome Author Madison Sunnquist, Leonard A Jason First published: 19 February 2018 DOI: 10.1002/jclp.22593 Abstract Objective The cognitive behavioral model of...

We have a lot of threads about actions to take to support/promote this important event but no thread actually about the event itself. Parliamentary business for Tuesday 20 February 2018 House of Commons 11am - 11.30am Westminster Hall debate PACE trial and its effect on people with ME - Carol...

3am on Wednesday UK time, apparently - what's that, 7pm on Tuesday Pacific Time or something?

Is it just me or are they more honest about their views than usual? I'm not 100% sure how to interpret this but it sounds like they may have shown that fatigued people put in less effort, and believe they are more limited in their activities. This is then interpreted as the beliefs causing...

NICE announces next steps in updating its guideline on ME/CFS https://www.nice.org.uk/news/article/nice-announces-next-steps-in-updating-its-guideline-on-me-cfs

Infection Elicited Autoimmunity and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: An Explanatory Model Jonas Blomberg 1, Carl-Gerhard Gottfries 2, Amal Elfaitouri 3, Muhammad Rizwan 1 and Anders Rosén 4 Department of Medical Sciences, Uppsala University, Clinical Microbiology, Academic...

Martyn Hooper Chair of Pernicious Anaemia Society on new NICE guidelines for ME: "Last week I was at a NICE consultation which was looking at the problems with the diagnosis of Myalgic Encephalopathy (or encephalomyelitis). Because there are so many contentious issues concerning the disease...

We already have an extensive discussion thread on the subject here, https://www.s4me.info/threads/call-to-action-westminster-hall-uk-parliamentary-debate-pace-trial-and-its-effect-on-people-with-me-carol-monaghan-february-20.2294/ This thread is intended to gather the various ways we can inform...

As title - show will be live 12.00 to 13.30 and then will be available shortly after broadcast at http://www.bbc.co.uk/programmes/b09rjrd6 Includes an interview with the chairman of ME Research UK, Dr Vance Spence.

https://www.fourwav.es/view/647/info/

I think this is new: http://www.investinme.org/IIMER-Newslet-1802-01.shtml February 2018 Rituximab Trial and Research Statement Following Preliminary Phase III Rituximab Clinical trial Results from Norway Following the preliminary results which Professor Olav Mella recently publicly released...

Paywalled at https://link.springer.com/article/10.1007%2Fs10067-018-4009-2

Kegan J. Moneghetti, Mehdi Skhiri, Kévin Contrepois, Yukari Kobayashi, Holden Maecker, Mark Davis, Michael Snyder, François Haddad & Jose G. Montoya https://www.nature.com/articles/s41598-018-20941-w

There will be an ME-conference in Kristiansand, Norway 18th-19th April. The programme is wide-ranging, but I am sure most anticipation will be for Øystein Fluge's lecture on the first day: "Presentation and results from the RituxME-study and mention of CycloME and the metabolism studies". I...

'Results have implications for treatment development and suggest that interpersonal operant conditioning may contribute to fatigue becoming a chronic symptom.' Most definitely not a recommendation. https://www.sciencedirect.com/science/article/pii/S0005796718300135

Open access at https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-018-1392-z

https://link.springer.com/article/10.1007/s12035-018-0928-9 Picked up from Twitter Paper by Dr Monro and Prof Puri (Breakspear). I have only skimmed through seems to be a summary setting out their take on ME with references. Not sure how good/useful it is.

https://www.thetimes.co.uk/article/how-it-feels-to-treat-your-own-mystery-illness-9lmt5d2x5 Mentions ME a lot, but then it turns out he didn't have it. It's very confusing and makes some false statements. “I must say,” he said, “you don’t strike me as particularly depressed.” “No,” I agreed...

Parliamentary business for Tuesday 20 February 2018 House of Commons 11am - 11.30am Westminster Hall debate PACE trial and its effect on people with ME - Carol Monaghan...