2019

Review on Central Sensitisation by the Belgian Research team of Nijs et al. Source: https://dtb.bmj.com/content/early/2019/03/11/dtb.2018.000035 Does anyone have access to the paper?

Open Access Article here

https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-019-1836-0

Open Access: https://onlinelibrary.wiley.com/doi/full/10.1111/bjhp.12361

Reuters: full article here: eta: link deleted please use this one http://archive.today/lwDNQ

Paywalled at https://www.cambridge.org/core/journals/behavioural-and-cognitive-psychotherapy/article/implementation-of-stepped-care-for-patients-with-chronic-fatigue-syndrome-in-communitybased-mental-health-care-outcomes-at-posttreatment-and-longterm-followup/842DB10C681E7D7A8725BE0DB8848B07

http://www.virology.ws/2019/03/11/trial-by-error-kaiser-permanente-changes-course/

Source: Clinical Therapeutics Preprint Date: March 6, 2019 URL: https://www.sciencedirect.com/science/article/abs/pii/S0149291819300475 Treatment avenues in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A split-gender pharmacogenomic study of gene-expression modules...

Persistent Physical Symptoms Multidisciplinary Challenges , Saturday 15th June - Tuesday 18th June 2019 full details here: https://www.rug.nl/research/gradschool-medical-sciences/summerschools/persistent-physical-symptoms/ also at that link " The Summer School will take place in advance of...

https://www.medscape.com/viewarticle/909677?src=wnl_edit_tpal&uac=254766SG&impID=1902143&faf=1 'Just a Myth'? It May Be Time to Take Adrenal Fatigue Seriously John Watson Talks about how common fatigue is as a presenting symptom, and lots of patients picking up the idea of 'adrenal fatigue'...

Open access at https://bmjopen.bmj.com/content/9/3/e023955

New study on PEM by the research team of Leonard Jason. I'm sure many on this forum will have filled in the online questionnaire:

Dan Guo 1, Maria Kleinstäuber 2, Malcolm Henry Johnson 3 and Frederick Sundram This research was funded by a grant from the University of Auckland. https://www.mdpi.com/1660-4601/16/5/818/htm As far as I can make out they prefer all MUS (ie CFS,IBS,FM) to be viewed as one syndrome and...

Overall, how would you describe the effect that cognitive dysfunction (“brain fog”) has on your ability to function on a day-to-day basis? Constant and severely disabling Constant and moderately disabling Constant and mildly disabling Varies between moderate and severe Varies between mild and...

https://www.tandfonline.com/doi/abs/10.1080/07399332.2018.1521811?journalCode=uhcw20 Journal: Health Care for Women International Dismissing chronic illness: A qualitative analysis of negative health care experiences Leonard Jason et al.

http://www.virology.ws/2019/03/04/trial-by-error-who-has-the-school-study-documents/

Psychology & Health: Perfectionism and beliefs about emotions in adolescents with chronic fatigue syndrome and their parents: a preliminary investigation in a case control study nested within a cohort Maria E. Loades, Katharine A. Rimes, Kate Lievesley, Sheila Ali & Trudie Chalder Received 18...

https://peerj.com/articles/6500.pdf

All of authors are from University of Bristol and include Crawley's mate, George Davey Smith. ME gets mentioned a number of times. Open access at https://www.nature.com/articles/s41598-019-39359-z Starting to build a narrative that our fatigue isn't anything out of the ordinary?

I just came across this this morning and it fills me with what I can only describe as the collywobbles. Firstly how many children with severe ME will go to the GP or hospital? Almost never. What condition will the Dr/Paediatric know what to look out for? I now need a bucket of coffee and to...