2019

  1. It's M.E. Linda

    ME Debate Jan2019 - UK ONLY -Steve Brine MP

    Becky Hatfield is trying to get a bagful of letters together for Steve Brine (think he is still Under Secretary of State for Department of Health and Social Care.....things are changing so rapidly in UK Govt). There has been a disappointing response to her Twitter and Facebook requests. so I am...
  2. Andy

    Mechanistic Insights into the Pathophysiology of CFS/ME: Examining Nrf2 Antioxidant Gene Expression & its Role in Combating Oxidative Stress, ongoing

    Struggling at the moment to find more details about this, if/when I do I'll edit them in here. From https://cureme.lshtm.ac.uk/researchers/our-collaborative-researchers/ ETA: Added detail from the CureME collaborators page.
    • Andy
    • Thread
    • 2019 cardiology faisel khan genetics me/cfs nrf2 oxidative stress
    • Replies: 4
    • Forum: ME/CFS research
  3. Andy

    Cognitive and behavioural responses to symptoms in adolescents with CFS: A case-control study nested within a cohort, 2019, Loades et al

    Paywalled at https://journals.sagepub.com/doi/abs/10.1177/1359104519835583?journalCode=ccpa Alt at https://sci-hub.se/https://journals.sagepub.com/doi/abs/10.1177/1359104519835583?journalCode=ccpa
  4. Sly Saint

    ME/CFS Awarness Trip Announcment Trailer - March 2019 Spain & Portugal

    "Servando Castello, AKA “Low Battery Man" patient activist Servando Castello is taking to the streets of Spain and Portugal to raise awareness of ME/CFS and fundraise to support OMF’s research programs. Servando’s creativity is inspirational. " https://lowbatteryman.com/ Yandex translation.
  5. MeSci

    News from NIH: ME/CFS Telebriefing- April 9, 2019

    Source: National Institutes of Health Date: March 21, 2019 URL: http://list.nih.gov/cgi-bin/wa.exe?A0=NIH-MECFS_INFORMATION (log-in required) News from NIH: ME/CFS Telebriefing- April 9, 2019 ------------------------------------------------- We request your participation in a telebriefing...
  6. Andy

    Whole blood human transcriptome and virome analysis of ME/CFS patients experiencing PEM following cardiopulmonary exercise testing, 2019, Chiu et al

    Abstract Myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) is a syndrome of unknown etiology characterized by profound fatigue exacerbated by physical activity, also known as post-exertional malaise (PEM). Previously, we did not detect evidence of immune dysregulation or virus...
    • Andy
    • Thread
    • 2019 blood chiu cpet me/cfs paper pem virome
    • Replies: 20
    • Forum: ME/CFS research
  7. Andy

    A Glorious Moment for the Dutch Government to Step Up to the Plate

    https://www.meaction.net/2019/03/20/a-glorious-moment-for-the-dutch-government-to-step-up-to-the-plate/
  8. Andy

    Decreased Expression of the CD57 Molecule in T Lymphocytes of Patients with Chronic Fatigue Syndrome, 2019, Espinosa and Urra

    Paywalled at https://link.springer.com/article/10.1007/s12035-019-1549-7 alt https://sci-hub.se/https://link.springer.com/article/10.1007/s12035-019-1549-7
    • Andy
    • Thread
    • 2019 biomarker espinosa immunology me/cfs paper urra
    • Replies: 12
    • Forum: ME/CFS research
  9. Cheshire

    The Guardian - Rod Liddle vilifies disabled people. I’m tired of the hate. We all should be (2019) Frances Ryan

    https://www.theguardian.com/commentisfree/2019/mar/19/rod-liddle-disabled-people-hate-media-me
  10. Andy

    M.E. Patients and the Researchers that Silence Them by Laura Elliott

    https://medium.com/@lcelliott2/m-e-patients-and-the-researchers-that-silence-them-c2b81111ee0
  11. MeSci

    Chapter 15 in Handbook of Sleep Disorders in Medical Conditions - Chronic Fatigue Syndrome and Fibromyalgia, Togo, Kishi & Natelson, 2019

    Source: Handbook of Sleep Disorders in Medical Conditions 2019, Pages 325-343 Date: March 15, 2019 URL: https://www.sciencedirect.com/science/article/pii/B9780128130148000159 Chapter 15 - Chronic Fatigue Syndrome and Fibromyalgia ------------------------------------------------------...
    • MeSci
    • Thread
    • 2019 exercise fibromyalgia kishi me/cfs natelson paper sleep
    • Replies: 10
    • Forum: General ME/CFS news
  12. MSEsperanza

    David Tuller: Trial By Error: My Letter to Kate Kelland

    David Tuller: Trial By Error: My Letter to Kate Kelland http://www.virology.ws/2019/03/18/trial-by-error-my-letter-to-kate-kelland/
  13. Sly Saint

    Impact of Polypharmacy on Candidate Biomarker miRNomes for the Diagnosis of Fibromyalgia and ME/CFS:Striking Back on Treatments 2019 Oltra et al

    Impact of Polypharmacy on Candidate Biomarker miRNomes for the Diagnosis of Fibromyalgia and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Striking Back on Treatments Eloy Almenar-Pérez 1, Teresa Sánchez-Fito 1, Tamara Ovejero 2, Lubov Nathanson 3,4 and Elisa Oltra 2,5,* 1 Escuela de...
    • Sly Saint
    • Thread
    • 2019 biomarker diagnosis fibromyalgia me/cfs mirnomes oltra paper spain
    • Replies: 0
    • Forum: ME/CFS research
  14. Kalliope

    David Tuller: Trial By Error: My Letter to Professor Hotopf About Bristol's School Absence Study

    My Letter to Professor Hotopf About Bristol's School Absence Study Matthew Hotopf is a professor of general medicine psychiatry at King’s College London. He served as a peer-reviewer for a study by Bristol University investigators that was published in BMJ Open in 2011. The study involved...
    • Kalliope
    • Thread
    • 2019 bmj bristol university crawley david tuller hotopf me/cfs school attendance trial by error
    • Replies: 10
    • Forum: General ME/CFS news
  15. JellyBabyKid

    Michael Sharpe on Radio 4 Today / Tom Feilden BBC (18th march 2019)

    The following posts have been moved from this thread. Looks like Radio 4 Today have picked it up & will be running it in the morning
  16. Andy

    Associations Between Autonomic and Orthostatic Self-report and Physician Ratings of Orthostatic Intolerance in Youth, 2019, Jason et al

    Paywalled at https://www.clinicaltherapeutics.com/article/S0149-2918(19)30070-0/fulltext
    • Andy
    • Thread
    • 2019 leonard jason me/cfs orthostatic intolerance paper symptoms young people
    • Replies: 0
    • Forum: ME/CFS research
  17. Andy

    Artificial intelligence based discovery of the association between depression and chronic fatigue syndrome, 2019, Chen et al

    Hmmm. Paywalled at https://www.sciencedirect.com/science/article/pii/S0165032718332300?via%3Dihub
    • Andy
    • Thread
    • 2019 chen depression me/cfs paper tcm
    • Replies: 8
    • Forum: ME/CFS research
  18. MeSci

    Pharmaceutical interventions in CFS: A literature-based commentary, Richman, Morris, Broderick, Craddock, Klimas, Fletcher, March 11, 2019

    Source: Clinical Therapeutics Preprint Date: March 11, 2019 URL: https://www.sciencedirect.com/science/article/abs/pii/S0149291819300712 Ref: See March 9 for Part 1 Pharmaceutical interventions in Chronic Fatigue Syndrome: A literature-based commentary...
    • MeSci
    • Thread
    • 2019 clinical trial illness heterogeneity immune therapy klimas me/cfs precision medicine
    • Replies: 5
    • Forum: General ME/CFS news
  19. Andy

    A Validated Scale for Assessing the Severity of Acute Infectious Mononucleosis, 2019, Jason et al

    Paywalled at https://www.jpeds.com/article/S0022-3476(19)30123-4/fulltext
    • Andy
    • Thread
    • 2019 infectious mononucleosis leonard jason me/cfs measurement paper severity
    • Replies: 14
    • Forum: ME/CFS research
  20. Andy

    Internet-Based Cognitive Behavioral Therapy in Stepped Care for CFS: Randomized Noninferiority Trial, 2019, Knoop et al

    Open access at https://www.jmir.org/2019/3/e11276/
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