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2019

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  1. Tilly
    Thread

    Professor Crawley BPSU study - Chronic fatigue syndrome (CFS) Severe children Feb 2019 - 2020

    I just came across this this morning and it fills me with what I can only describe as the collywobbles. Firstly how many children with severe ME...
    Thread by: Tilly, Mar 1, 2019, 57 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  2. Barry
    Thread

    The PACE Trial and why CFS-patients don't get treatment - David Tuller interview

    Doctor of Public Health and journalist David Tuller from University of California, Berkeley discusses the PACE Trial, a study that claimed that...
    Thread by: Barry, Feb 28, 2019, 5 replies, in forum: General ME/CFS news
  3. Eagles
    Thread

    Boy said to have 'CFS/ME' interviewed on BBC's 'The One Show' 26/02/2019

    ME was mentioned on The One Show on Tuesday – it’s on YouTube at - [MEDIA] - starting at 22.27 minutes in. Don't shoot the messenger!
    Thread by: Eagles, Feb 28, 2019, 13 replies, in forum: General ME/CFS news
  4. Sly Saint
    Thread

    Open Chronic fatigue syndrome participants wanted for aquatic exercise trial Published 22 February 2019

    [ATTACH] Water-based exercise may be the key to a better quality of life for people with chronic fatigue syndrome. Now researchers from Southern...
    Thread by: Sly Saint, Feb 28, 2019, 23 replies, in forum: Recruitment into current ME/CFS research studies
  5. MeSci
    Thread

    Prescribing for patients with chronic fatigue syndrome, by Bhatti & Bhatti, Feb 2019

    Source: Prescriber February 2019, pp 29-33 Date: February 20, 2019 URL: https://onlinelibrary.wiley.com/doi/abs/10.1002/psb.1741...
    Thread by: MeSci, Feb 28, 2019, 11 replies, in forum: General ME/CFS news
  6. Andy
    Thread

    Article: The role of mitochondria in ME/CFS: a perspective, 2019, Tomas and Elson

    Chronic fatigue syndrome (CFS) also known as Myalgic encephalomyelitis (ME) is a debilitating disease, characterized by the symptom of severe...
    Thread by: Andy, Feb 28, 2019, 12 replies, in forum: ME/CFS research news
  7. Andy
    Thread

    Solve ME/CFS Initiative: Register now for the EmPOWER M.E. Roundtable Livestream!

    Solve ME/CFS Initiative (SMCI) is hosting our first ever EmPOWER M.E. Roundtable on April 2, 2019 moderated by Board Certified Patient Advocate,...
    Thread by: Andy, Feb 27, 2019, 13 replies, in forum: Advocacy Action Alerts
  8. Andy
    Thread

    Announcing #MillionsMissing 2019! Join us!

    We are thrilled to announce #MillionsMissing 2019! This May, we will take to the streets – or demonstrate from our beds – to show the world we...
    Thread by: Andy, Feb 26, 2019, 23 replies, in forum: Advocacy Projects and Campaigns
  9. Andy
    Thread

    Epidemiology of paediatric chronic fatigue syndrome in Australia, 2019, Knight et al

    Abstract Objective To estimate the paediatrician-diagnosed incidence of chronic fatigue syndrome (CFS) in Australia, and describe demographic and...
    Thread by: Andy, Feb 26, 2019, 12 replies, in forum: ME/CFS research
  10. Esther12
    Thread

    2019 blog: Co-producing a systematic review with patients [Patient wanted more positive emphasis on psychosocial management for post cancer fatigue]

    https://blogs.bmj.com/bmj/2019/02/08/hilde-t-myrhaug-and-tone-hansen-co-producing-a-systematic-review-with-patients/ At least I wanted the...
    Thread by: Esther12, Feb 26, 2019, 2 replies, in forum: Other health news and research
  11. Cheshire
    Thread

    CDC/Medscape - Chronic Fatigue Syndrome: It's Real, and We Can Do Better Elizabeth Unger

    Video published today My name is Dr Elizabeth Unger and I am chief of CDC's Chronic Viral Diseases Branch, which houses the myalgic...
    Thread by: Cheshire, Feb 25, 2019, 20 replies, in forum: ME/CFS research news
  12. Milo
    Thread

    Increased risk of chronic fatigue syndrome in patients with inflammatory bowel disease: a population-based retrospective cohort study (2019) Tsai et a

    Increased risk of chronic fatigue syndrome in patients with inflammatory bowel disease: a population-based retrospective cohort study...
    Thread by: Milo, Feb 25, 2019, 12 replies, in forum: ME/CFS research
  13. Milo
    Thread

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Fibromyalgia: Definitions, Similarities, and Differences (2019) Natelson

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Fibromyalgia: Definitions, Similarities, and Differences...
    Thread by: Milo, Feb 25, 2019, 12 replies, in forum: ME/CFS research
  14. Andy
    Thread

    Letter from the 25% ME group to NICE re: CBT and GET, Feb 2019

    We, the 25% ME group, would like to make our voices heard with regard to the use of Graded Exercise Therapy (GET) and Cognitive Behaviour Therapy...
    Thread by: Andy, Feb 23, 2019, 21 replies, in forum: 2020 UK NICE ME/CFS Guideline
  15. Andy
    Thread

    Long Term Follow up of Young People With Chronic Fatigue Syndrome Attending a Pediatric Outpatient Service, 2019, Rowe

    Aim: To determine the reported duration of illness, the functional and educational long-term outcomes, predictive factors for recovery and seek...
    Thread by: Andy, Feb 21, 2019, 48 replies, in forum: ME/CFS research
  16. Andy
    Thread

    Altered Erythrocyte Biophysical Properties in Chronic Fatigue Syndrome, 2019, Saha, Davis, et al

    Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a multi-systemic illness of unknown etiology affecting millions of individuals...
    Thread by: Andy, Feb 21, 2019, 28 replies, in forum: ME/CFS research
  17. ScottTriGuy
    Thread

    Characteristics of patients with motor functional neurological disorder in a large UK mental health service (2019) O'Connell, Wessely et al

    Ugh. Have you seen this new piece @dave30th ? "Conclusions mFND patients have distinct demographic characteristics compared with psychiatric...
    Thread by: ScottTriGuy, Feb 21, 2019, 49 replies, in forum: Other psychosomatic news and research
  18. Kalliope
    Thread

    ME-seminar in Norway with Lillebeth Larun. LP-paper recommended as preparation literature

    Skogli Rehabilitation Center has worked with ME patients for several years. It's disturbing to see their program of an upcoming Network conference...
    Thread by: Kalliope, Feb 19, 2019, 40 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  19. Andy
    Thread

    Trial By Error: Letters to Fiona Godlee and Nigel Hawkes

    This morning, I sent the following message to Dr Fiona Godlee, editor-in-chief of The BMJ and editorial director of BMJ. The subject heading: “My...
    Thread by: Andy, Feb 18, 2019, 31 replies, in forum: General ME/CFS news
  20. MeSci
    Thread

    Illness perceptions in adolescents with CFS (2019) Cara Haines, Maria Loades, Cara Davis

    Source: Clinical Child Psychology and Psychiatry Preprint Date: February 15, 2019 URL:...
    Thread by: MeSci, Feb 18, 2019, 33 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
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