2019

Interestingly, when I did my usual "ME/CFS" google search in past 24 hours, it came up near the top of the first page: A neat counterpoint to the Gupta guff.

ME was mentioned on The One Show on Tuesday – it’s on YouTube at - - starting at 22.27 minutes in. Don't shoot the messenger!

https://www.scu.edu.au/engage/news/2019/chronic-fatigue-syndrome-participants-wanted-for-aquatic-exercise-trial.php "“Currently there is no cure for CFS, and in some cases, the condition can persist for several years,” said co-researcher Dr Suzanne Broadbent from the University of the Sunshine...

Source: Prescriber February 2019, pp 29-33 Date: February 20, 2019 URL: https://onlinelibrary.wiley.com/doi/abs/10.1002/psb.1741 https://onlinelibrary.wiley.com/doi/epdf/10.1002/psb.1741 Prescribing for patients with chronic fatigue syndrome...

Paywalled at https://www.tandfonline.com/doi/full/10.1080/21641846.2019.1580855 Sci Hub, http://sci-hub.tw/https://www.tandfonline.com/doi/full/10.1080/21641846.2019.1580855

Solve ME/CFS Initiative (SMCI) is hosting our first ever EmPOWER M.E. Roundtable on April 2, 2019 moderated by Board Certified Patient Advocate, Sharon Stevenson, DVM PhD. As part of Advocacy Week in Washington DC, this event is free for all who attend and will also be livestreaming online for...

https://www.meaction.net/2019/02/26/announcing-millionsmissing-2019-join-us/

Paywalled at https://adc.bmj.com/content/early/2019/02/23/archdischild-2018-316450

https://blogs.bmj.com/bmj/2019/02/08/hilde-t-myrhaug-and-tone-hansen-co-producing-a-systematic-review-with-patients/ I thought that this was of interest for showing how patients can end up pushing for a more 'positive' presentation of results if they've had a positive experience with a...

Video published today https://www.medscape.com/viewarticle/908622?src=rss

Increased risk of chronic fatigue syndrome in patients with inflammatory bowel disease: a population-based retrospective cohort study https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-019-1797-3 (Open access) Abstract Background Similarities in the symptoms of chronic...

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Fibromyalgia: Definitions, Similarities, and Differences https://www.clinicaltherapeutics.com/article/S0149-2918(19)30003-7/fulltext (Paywall) This commentary presents a simplified way of making the diagnosis of myalgic...

Download link, https://25megroup.org/download/2302/?v=2840

Open access at https://www.frontiersin.org/articles/10.3389/fped.2019.00021/full

Paywalled at https://www.cell.com/biophysj/fulltext/S0006-3495(18)31946-5 Edit: We have 3 threads on related or the same research by the same team: Erythrocyte Deformability As a Potential Biomarker for Chronic Fatigue Syndrome, Davis et al (2018) Altered Erythrocyte Biophysical Properties in...

Ugh. Have you seen this new piece @dave30th ? "Conclusions mFND patients have distinct demographic characteristics compared with psychiatric controls. Experiences of abuse appear to be equally prevalent across psychiatric patient groups. This study establishes the socio-demographic and life...

Skogli Rehabilitation Center has worked with ME patients for several years. It's disturbing to see their program of an upcoming Network conference for health personell working with CFS/ME in March. Lillebeth Larun seems to still be acknowledged as an authority in this field and why on earth...

http://www.virology.ws/2019/02/18/trial-by-error-letters-to-fiona-godlee-and-nigel-hawkes/

Source: Clinical Child Psychology and Psychiatry Preprint Date: February 15, 2019 URL: https://journals.sagepub.com/doi/full/10.1177/1359104519829796 Illness perceptions in adolescents with chronic fatigue syndrome and other physical health conditions: Application of the common sense model...

Provisionally accepted https://www.frontiersin.org/articles/10.3389/fped.2019.00059/full full paper here: http://sci-hub.tw/https://www.frontiersin.org/articles/10.3389/fped.2019.00059/full I haven't read it all but not sure if I've posted it in the correct forum?: "EBV reactivation is a...