2019

  1. Andy

    Impaired Health-Related Quality of Life in Adolescent ME/CFS: The Impact of Core Symptoms, 2019, Rowe et al

    Open access at https://www.frontiersin.org/articles/10.3389/fped.2019.00026/full
  2. E

    MEA: Pregnancy, M.E. and vaccination concerns with Dr Charles Shepherd | 15 February 2019

    [I found this of interest, as my ME was triggered by a Hepatitis B vaccination that I was required to have as a student nurse.] https://www.meassociation.org.uk/2019/02/pregnancy-m-e-and-vaccination-concerns-with-dr-charles-shepherd-15-february-2019/ “Dear ME Association, I’m 7 months’...
  3. Simone

    The invisible burden of chronic fatigue in the community - a narrative review (2019), Fatt et al

    New paper from Andrew Lloyd (of Dubbo studies fame and, more recently, Australia’s leading proponent of the psychosocial school). “The Invisible Burden of Chronic Fatigue in the Community: a Narrative Review” Authors: Scott Fatt, Eric Cvejic, Andrew Lloyd, Ute Vollmer-Conner & Jessica Elise...
  4. Andy

    Diagnosis of Fibromyalgia: Disagreement Between [..] Criteria and Clinician‐Based [..] Diagnosis in a University Clinic, 2019, Wolfe et al

    Paywalled at https://onlinelibrary.wiley.com/doi/full/10.1002/acr.23731
  5. Andy

    Trial By Error: Re-visiting My Questions for PACE Professors

    http://www.virology.ws/2019/02/13/trial-by-error-re-visiting-my-questions-for-pace-professors/
  6. Sly Saint

    Myalgic encephalomyelitis or chronic fatigue syndrome: how could the illness develop?(2019) - G.Morris,Maes,Berk,Puri

    https://link.springer.com/article/10.1007%2Fs11011-019-0388-6
  7. Sly Saint

    May 2019 - Awareness Week including Millions Missing

    Australia: International Awareness Day for Chronic Immunological and Neurological Diseases (CIND) including myalgic encephalomyelitis (ME) / chronic fatigue syndrome (CFS) Sandgate Town Hall will be lit up Blue for International Awareness Day for Chronic Immunological and Neurological Diseases...
  8. Andy

    Podcast: "It's Not All About ME"

    Know nothing more than there is a series of podcasts and Paddy, the host, has ME, have just started listening to episode one and Paddy comes across very well. There doesn't seem to be any hint what each episode is about so pot luck I guess. https://soundcloud.com/user-23503120 ETA: The podcast...
  9. E

    Trial By Error: BMJ Amends Last Week’s PACE Article

    http://www.virology.ws/2019/02/12/trial-by-error-bmj-amends-last-weeks-pace-article/ Trial By Error: BMJ Amends Last Week’s PACE Article 12 February 2019 By David Tuller, DrPH Last Wednesday, the UK Health Research Authority released a letter reviewing its analysis of the PACE trial. Members...
  10. John Mac

    Daily Telegraph: Living hell or yuppie flu? The confusing fog of chronic fatigue syndrome

    https://www.telegraph.co.uk/health-fitness/body/confusing-fog-chronic-fatigue-syndrome/ Article on the Daily Telegraph website, requires you to register to view the whole article. Not a recomendation as it goes on to describe a writer's use of alternative medicine to try to overcome his...
  11. Barry

    Ethical classification of ME/CFS in the United Kingdom (2019) Diane O'Leary

    Paywalled at: https://onlinelibrary.wiley.com/doi/full/10.1111/bioe.12559 Full access at: http://sci-hub.tw/10.1111/bioe.12559
  12. JemPD

    ME/CFS disabled man's airport plight

    https://inews.co.uk/news/real-life/disabled-man-left-humiliated-wet-himself-in-airport-after-begged-for-help/?fbclid=IwAR1VvnsRoqE4K1Cjmffc-72Kg1mYZe8ir8JLJGQFiCCKF6p5en0VqHzzEeE Absolutely appalling treatment of this poor guy while travelling. Disgraceful. And what he's trying to do to give...
  13. Andy

    NIH: Thinking the Future: A Workshop for Young Early Career ME CFS Investigators, April 3rd, 2019

    https://meetings.ninds.nih.gov/Home/Index/22837
  14. ME/CFS Skeptic

    Post-bacterial infection chronic fatigue syndrome is not a latent infection. Melenotte et al. (2019).

    Epub ahead of print. French study, university of Marseille.
  15. Kalliope

    David Tuller: Trial By Error: HRA Report Does Not Vindicate PACE

    HRA Report Does Not Vindicate PACE Last week, I reported that Bristol University had launched an independent investigation of research led by Professor Esther Crawley, at the request of the the UK Health Research Authority. Today, the HRA released a report on the PACE trial that has portrayed...
  16. Andy

    The 'Cognitive Behavioural Model' of Chronic Fatigue Syndrome: Critique of a Flawed Model, 2019, Geraghty

    Preview (abstract only) at https://www.researchgate.net/publication/330901648_The_'Cognitive_Behavioural_Model'_of_Chronic_Fatigue_Syndrome_Critique_of_a_Flawed_Model
  17. MeSci

    Impairments in cognitive performance in chronic fatigue syndrome are common (2019) Newton et al.

    Source: PlosOne Vol 14, #2, p e0210394 Date: February 5, 2019 URL: https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0210394 Impairments in cognitive performance in chronic fatigue syndrome are common, not related to co-morbid depression but do associate with autonomic...
  18. NelliePledge

    Current Research Project: Understanding the neural mechanisms of fatigue & memory impairments in CFS/ME & Multiple Sclerosis using fMRI

    I tried looking to see if there’s already a thread for this couldn’t find one but my search skills are a bit ropey please delete if there is one http://www.bristol.ac.uk/cricbristol/research/fatigue-research/ Crawley and others at Bristol doing fMRIs on CFS and MS folks
  19. Cheshire

    Who Reviews ME/CFS Applications for NIH? Jennie Spotila

    Read more
  20. Andy

    David Tuller in Helsinki

    Seems David is spreading the good word in Finland today.
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