2019

http://www.virology.ws/2019/02/13/trial-by-error-re-visiting-my-questions-for-pace-professors/

https://link.springer.com/article/10.1007%2Fs11011-019-0388-6

Australia: International Awareness Day for Chronic Immunological and Neurological Diseases (CIND) including myalgic encephalomyelitis (ME) / chronic fatigue syndrome (CFS) Sandgate Town Hall will be lit up Blue for International Awareness Day for Chronic Immunological and Neurological Diseases...

Know nothing more than there is a series of podcasts and Paddy, the host, has ME, have just started listening to episode one and Paddy comes across very well. There doesn't seem to be any hint what each episode is about so pot luck I guess. https://soundcloud.com/user-23503120 ETA: The podcast...

http://www.virology.ws/2019/02/12/trial-by-error-bmj-amends-last-weeks-pace-article/ Trial By Error: BMJ Amends Last Week’s PACE Article 12 February 2019 By David Tuller, DrPH Last Wednesday, the UK Health Research Authority released a letter reviewing its analysis of the PACE trial. Members...

https://www.telegraph.co.uk/health-fitness/body/confusing-fog-chronic-fatigue-syndrome/ Article on the Daily Telegraph website, requires you to register to view the whole article. Not a recomendation as it goes on to describe a writer's use of alternative medicine to try to overcome his...

Paywalled at: https://onlinelibrary.wiley.com/doi/full/10.1111/bioe.12559 Full access at: http://sci-hub.tw/10.1111/bioe.12559

https://inews.co.uk/news/real-life/disabled-man-left-humiliated-wet-himself-in-airport-after-begged-for-help/?fbclid=IwAR1VvnsRoqE4K1Cjmffc-72Kg1mYZe8ir8JLJGQFiCCKF6p5en0VqHzzEeE Absolutely appalling treatment of this poor guy while travelling. Disgraceful. And what he's trying to do to give...

https://meetings.ninds.nih.gov/Home/Index/22837

Epub ahead of print. French study, university of Marseille.

HRA Report Does Not Vindicate PACE Last week, I reported that Bristol University had launched an independent investigation of research led by Professor Esther Crawley, at the request of the the UK Health Research Authority. Today, the HRA released a report on the PACE trial that has portrayed...

Preview (abstract only) at https://www.researchgate.net/publication/330901648_The_'Cognitive_Behavioural_Model'_of_Chronic_Fatigue_Syndrome_Critique_of_a_Flawed_Model

Source: PlosOne Vol 14, #2, p e0210394 Date: February 5, 2019 URL: https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0210394 Impairments in cognitive performance in chronic fatigue syndrome are common, not related to co-morbid depression but do associate with autonomic...

I tried looking to see if there’s already a thread for this couldn’t find one but my search skills are a bit ropey please delete if there is one http://www.bristol.ac.uk/cricbristol/research/fatigue-research/ Crawley and others at Bristol doing fMRIs on CFS and MS folks

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Seems David is spreading the good word in Finland today.

This version is not peer-reviewed https://www.preprints.org/manuscript/201902.0029/v1...

https://www.surveymonkey.co.uk/r/GQR9Y8M

If you have used private or NHS counselling to help with emotional, mental health or relationship problems linked to ME/CFS did you find it helpful? Yes - very helpful overall Yes - very helpful for some aspects Yes - quite helpful overall Yes - quite helpful for some aspects Neutral - neither...

Some revelations about shenanigans at NICE - the IAPT team is in charge of the NICE guidelines for ME/CFS - as flagged up by Hope 4 Fibro & ME Northern Ireland - back in 2017!!! According to the IAPT webpage it's still listing the "CFS/ME" guideline as under their control - that's the...