2019

Come along and hear about recent research that is informing guidance for management of Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS). Dr Eiren Sweetman from the University of Otago will overview recent key research findings from the US, Norway, Australia, and Otago...

https://www.sciencedirect.com/science/article/abs/pii/S0026049519301489

Getting my information for this solely from this tweet, as I can't get Google to translate the website. Copy and paste link https://twitter.com/MECentraal/status/1183809872028209152?s=20 Can any German speaker confirm the info above? @TiredSam @Joh

https://methods.cochrane.org/news/2019-cochrane-methods-symposium-developing-robust-review-protocols-increasingly-diverse

https://www.theguardian.com/society/2019/oct/09/bristol-charity-campaign-leads-to-benefits-claims-change

https://www.mdpi.com/2227-9032/7/4/114/htm

Several threads have been merged ME-conferences in Sweden Oct 17th and 18th 2018 RME, the Swedish patient organisation, invites once again to two conferences about ME this autumn. Some of the programme is in English, and some in Swedish. (I have translated the Swedish parts for this post)...

Here's their website: http://aaemconference.com/fall/index.php Details of speakers here: http://aaemconference.com/livestream.php Includes speakers on diverse topics including biomedical, diagnosis, treatment, theories etc about CFS, EDS, MCAS, MCS, GWI mold, toxins... Speakers include...

https://bjsm.bmj.com/content/early/2019/09/27/bjsports-2018-100461.abstract

Moderator note: This post has been copied from this thread: Brain inflammation

Activity registration in ME/CFS Would you like to be part of developing new methods for future clinical trials? We are seeking participants for a study to test the activity device Fitbit Charge 3 for measurement of physical activity in patients with ME/CFS. The study doesn't entail any...

Moderator note: This post has been copied and following posts moved from this thread: Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19 _____________________________________ [2019] Latest version published Very low quality of...

Service based comparison of group cognitive behavior therapy to waiting list control for chronic fatigue syndrome with regard to symptom reduction and positive psychological dimensions Heald, Adrian PhDa,*; Barber, Louise PhDb; Jones, Helen Lyon PhDb; Farman, Sanam MDc; Walther, Andreas PhDd...

The intestinal virome and viral immune responses in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) patients after faecal microbiota transplantation (FMT) (POWELLU19ME) University of East Anglia Norwich Medical School...

Gene mutation IDO2 Every ME/CFS patient has this mutation. Biochemists and Geneticists say IDO2 is not necessary, it doesn't have a function. Clearly not true as every patient has this mutation. We have hypothesis: No details yet but called 'Metabolic trap'. We are trying to prove...

Full title: The Efficacy and Safety of Myelophil, an Ethanol Extract Mixture of Astragali Radix and Salviae Radix, for Chronic Fatigue Syndrome: A Randomized Clinical Trial Open access, https://www.frontiersin.org/articles/10.3389/fphar.2019.00991/full I'm dubious about the value of this paper...

In case it's of interest to anybody Free full text: https://www.tandfonline.com/doi/full/10.1080/0284186X.2019.1659513

Open access, https://www.mdpi.com/2075-4418/9/4/124

From a Solve email DR. KENNETH J. FRIEDMAN KICKS OFF “ADVANCES IN ME/CFS RESEARCH AND CLINICAL CARE” WEBINAR SERIES! In our upcoming research webinar series, we’re taking a closer look at some of the topics covered in the special issue of Frontiers in Pediatrics devoted to ME/CFS. Solve M.E...

Research proposal http://endmecfs.mgh.harvard.edu/skeletalmuscle/