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I thought this was particuarly interesting that he says he was given 'the wrong advice' and told it was ok to train when he was still sick, and which meant he was sick for much longer. There is also a clear distinction between a) the original virus, and b) his depression. He also makes the...

BBC article, "The race to understand 'immune amnesia'" ETA: Added link that I originally overlooked to include, and @Arnie Pye kindly sorted for me, but thought I'd better include in this post anyway. https://www.bbc.com/future/article/20211112-the-people-with-immune-amnesia

"When therapy causes harm" (2008) Somebody drew my attention yesterday to this article from 2008. Doesn't discuss ME/CFS so not important but I found it of general interest

https://www.theguardian.com/world/2021/nov/08/french-couple-wins-legal-fight-wind-turbine-syndrome-windfarm-health?CMP=Share_iOSApp_Other

Quote: A government contractor has paid out “substantial” compensation following the death of a young mother who took an overdose after her disability benefits were removed. Philippa Day, 27, a single mother from Nottingham who had longstanding mental health issues, died in hospital in October...

Article in Private Eye 1557, 01/10/2021.

https://www.nytimes.com/2021/10/23/opinion/lyme-disease-chronic-illness.html Ross Douthat is a columnist for The NY Times. He is both a political and religious conservative. He contracted Chronic Lyme disease and wrote a book about it (he has mostly recovered). This column is an excerpt from...

Quote: An innovative type of medicine - called gene silencing - is set to be used on the NHS for people who live in crippling pain. The drug treats acute intermittent porphyria, which runs in families and can leave people unable to work or have a normal life. Clinical trials have shown severe...

Alice Hattrick is an author who lives with ME/CFS and has recently published the book "Ill Feelings". Alice Hattrick was aged eight when their mother collapsed with mycoplasma pneumonia. The author – who prefers the gender-neutral pronoun “they” – found her on the kitchen floor at their home in...

"Some experts say it's a major issue for sufferers while others say that it has been confused with other conditions – so what’s the truth?" https://www.telegraph.co.uk/health-fitness/body/long-covid-overblown/

"For the past year, as she oversaw Facebook’s flagship app and then made the jump to Instacart this summer, Simo has been quietly helping get a new women’s health startup off the ground. The Metrodora Institute, a for-profit clinic with a non-profit foundation devoted to research and advocacy...

paywalled https://www.telegraph.co.uk/health-fitness/doctors-diary/became-target-militants/ How I became a target for the ME militants The current row over Nice guidelines on chronic fatigue syndrome is strikingly similar to the one I found myself caught up in 20 years ago DR MICHAEL...

From chronic fatigue to long COVID Article in Royal College of Nursing magazine The title and intro do the usual "chronic fatigue" thing, but really CFS. https://www.rcn.org.uk/magazines/opinion/2021/september/long-covid-19-experience-chronic-fatigue

https://www.theguardian.com/world/2021/sep/10/scientists-egos-key-barrier-to-progress-covid-vaccine-pioneer-katalin-kariko An article about Prof Katalin Karikó, who pioneered mRNA vaccines, and the skepticism and hardships she faced in academia before joining BioNTech. Quotes (bolding mine)...

This is a really good article about the research they are doing. It's about old age, but I think many here would recognize a lot of it. https://theconversation.com/loneliness-loss-and-regret-what-getting-old-really-feels-like-new-study-157731?utm_source=twitter&utm_medium=bylinetwitterbutton

This thread was split from Open Medicine Foundation (OMF) News I thought we could not conclude autoimmunity is likely out of the picture as long as we dont know how to target long lived plasma cells? I mean b-cells dont really matter at that point if im not mistanken, as the autoimmune plasma...

Split from Possibility of ME or PVFS after COVID-19, Long Covid The Atlantic Long COVID Is Everyone's Problem by Ed Yong quote: One of the biggest misconceptions about long COVID is that it is entirely new. The SARS-CoV-2 coronavirus may have emerged in 2019, but many infections can lead to...

rest of article here https://www.medicaldevice-network.com/features/cfs-me-test/

https://www.theguardian.com/society/2021/aug/30/withdrawal-planned-guidance-me-leaves-patients-distraught Natalie Grover seems to be getting nearer to understanding the problem, even if still a little way away. Some reasonable quotes from me. Some from Sharpe and Chalder as well.

I just realised I can access the BBC science magazine on Scribd. Very short articles but may prompt you to dig deeper Suggestion re developing a vaccine for IBD I'm reading "A Fungal Vaccine Could Boost Your Microbiome And Prevent Gut Disease" on Scribd. Check it out...