cdc

  1. W

    FWIW: Apparently “Exercise is Medicine” could be funded by... Coca-Cola?

    Of all the confusing places to find this information, I found it on another exercise -is-medicine industry, CrossFit. (though they want to add diet to exercise, but still are excluding/ignoring actual medications, the need for continuing medical research, and public health efforts like housing...
  2. rvallee

    Do we actually know if the NIH funding is being spent?

    There have been many discussions on NIH funding, and in particular the new funds dedicated to the new collaborative centers, as well as the see-saw of funding increases and decreases. Especially since this is basically the only actual significant source of funding we know of that is supposed to...
  3. Andy

    CDC Update: NYS Dept. of Health and #MEAction Bid for Contract

    https://www.meaction.net/2018/10/18/cdc-contract-update-nys-depart-of-health-and-meaction-bid-for-contract/
  4. Andy

    #MEAction Sends Recommendations to CDC to Update its ME Website

    https://www.meaction.net/2018/10/11/meaction-sends-recommendations-to-cdc-for-me-website/ Direct link to PDF with recommendations - http://www.meaction.net/wp-content/uploads/2018/10/Recommended-Changes-to-the-CDC-Webpages-on-ME-2.pdf
  5. Webdog

    Cases of Acute Flaccid Myelitis in Minnesota and other states

    https://bringmethenews.com/minnesota-news/rare-neurological-disease-reported-in-six-minnesota-kids Acute Flaccid Myelitis has been compared to polio, and is thought to be linked to Enterovirus D68. The long-term prognosis has not been studied.
  6. Emily Taylor

    FY19 Funding for ME/CFS restored

    Good news! The ME/CFS line item at the CDC was funded in the recent budget compromise announced today. Committee report language was included, unedited, from advocacy efforts earlier this year.. You can see SMCI's statement here...
  7. MeSci

    JAMA on new CFS/ME website CDC

    Source: Journal of the American Medical Association (JAMA) Vol 320, #8, p 750 Date: August 28, 2018 URL: https://jamanetwork.com/journals/jama/article-abstract/2698504 Chronic Fatigue Care -------------------- Bridget Kuehn, MSJ A new CDC website aims to improve the diagnosis and care of...
  8. Joh

    Petition: Stop CDC from hiring shoddy contractor for ME treatment guidelines

    #MEAction: Full text: https://www.meaction.net/2018/08/26/stop-cdc-from-hiring-shoddy-contractor-for-me-treatment-guidelines/?mc_cid=20165100b3&mc_eid=926b73a95d Link to petition: https://my.meaction.net/petitions/demand-expert-input-community-consultation-on-new-me-guidelines-from-cdc
  9. ahimsa

    Medscape: "New Clinical Practice Guidelines, August 2018 Edition"

    I saw this on the Medscape website today. I think it's just a summary of recent changes posted on CDC website but I'm not sure. Full article (may require Medscape registration/login) - https://reference.medscape.com/viewarticle/900291_5
  10. Trish

    #MEAction - CDC revises its information on ME - by Jaime S

    https://www.meaction.net/2018/07/29/cdc-revises-its-information-on-me/?mc_cid=435242023b&mc_eid=83ddbd3a71 Detailed analysis of the CDC content on ME, not just the recent update, by @JaimeS
  11. Kalliope

    David Tuller: Trial By Error: The CDC's Update for Healthcare Providers

    The CDC's Update for Healthcare Providers Last summer, the US Centers for Disease Control removed graded exercise therapy and cognitive behavior therapy from its website as recommendations for treatment of the illness it was by then calling ME/CFS. Its stated explanation for the change–that...
  12. Melanie

    CDC Posts NEW CONTENT on ME/CFS (July 12, 2018)

    CDC Page for ME/CFS Take a look around each page. How does it look to everyone?
  13. John Mac

    Stop Exercising for Chronic Fatigue Syndrome Symptoms

    A good article on Your Care Everywhere website. https://www.yourcareeverywhere.com/health-research/health-insights/pain-care-insights/stop-exercising-for-chronic-fatigue-syndrome-symptoms.html
  14. R

    CDC responds to false SMC factsheet claim

    On 26 March I sent to following question to the CDC: 2 months the later (after 3 further requests for an answer) the CDC has responded: Details of the Roundtable report can be found here: https://www.cdc.gov/me-cfs/programs/meetings.html I note that the SMC has now revised its “factsheet”...
  15. Andy

    David Tuller: Trial By Error: More on the CDC; Reader’s Digest; and BBC’s Newsbeat

    http://www.virology.ws/2018/05/23/trial-by-error-more-on-the-cdc-readers-digest-and-bbcs-newsbeat/
  16. Andy

    NPR: For People With Chronic Fatigue Syndrome, More Exercise Isn't Better

    Old, 2nd Oct 2017, article. https://www.npr.org/sections/health-shots/2017/10/02/554369327/for-people-with-chronic-fatigue-syndrome-more-exercise-isnt-better Linked to from a recently found Reader's Digest article on 'Fitness Myths' -...
  17. Webdog

    New Guidelines for MS Treatment: Start Treatment Early

    https://www.everydayhealth.com/multiple-sclerosis/treatment/new-guidelines-ms-treatment-start-treatment-early/
  18. MeSci

    A Common Language for Clinical Research Studies: NINDS, CDC, ME/CFS and CDEs

    Source: Neurology Vol 90, #15 Supplement Date: April 23, 2018 URL: http://n.neurology.org/content/90/15_Supplement/P2.016 [American Academy of Neurology 70th Annual Meeting, Los Angeles] A Common Language for Clinical Research Studies: The National Institute of Neurological Disorders and...
  19. T

    Proposed 2019 presidential budget for CDC involves zeroing of CFS program

    https://tinyurl.com/ybkbkvrv i.e. https://www.cdc.gov/budget/documents/fy2019/fy-2019-detail-table.pdf The CDC CFS budget is substantial: $5.4 million per year. --- The Prevention and Public Health Fund is solely used to fund the CDC's CFS program. An article about cuts to that is here...
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