Source: Journal of the American Medical Association (JAMA) Vol 320, #8, p 750 Date: August 28, 2018 URL:...
#MEAction: We need your help! Sign the #MEAction petition to stop the CDC from repeating a terrible mistake. They are attempting to quietly hire...
I saw this on the Medscape website today. I think it's just a summary of recent changes posted on CDC website but I'm not sure. Myalgic...
https://www.meaction.net/2018/07/29/cdc-revises-its-information-on-me/?mc_cid=435242023b&mc_eid=83ddbd3a71 Detailed analysis of the CDC content...
The CDC's Update for Healthcare Providers Last summer, the US Centers for Disease Control removed graded exercise therapy and cognitive behavior...
CDC Page for ME/CFS Take a look around each page. How does it look to everyone?
A good article on Your Care Everywhere website. For years, doctors told patients with chronic fatigue syndrome symptoms to increase exercise...
On 26 March I sent to following question to the CDC: ‘A recently published "factsheet" about "CFS/ME" by the UK Science Media Centre states:...
It’s been almost a year since the CDC removed its recommendations for GET and CBT as treatments for ME/CFS (or CFS, or ME, or CFS/ME, or even SEID...
Old, 2nd Oct 2017, article. Health organizations are emphasizing that myalgic encephalomyelitis/chronic fatigue syndrome is a serious long-term...
https://www.everydayhealth.com/multiple-sclerosis/treatment/new-guidelines-ms-treatment-start-treatment-early/ Current disease-modifying therapies...
Source: Neurology Vol 90, #15 Supplement Date: April 23, 2018 URL: http://n.neurology.org/content/90/15_Supplement/P2.016 [American Academy of...
https://tinyurl.com/ybkbkvrv i.e. https://www.cdc.gov/budget/documents/fy2019/fy-2019-detail-table.pdf The CDC CFS budget is substantial: $5.4...
Huge thanks to everyone who took part in the poll and shared it on social media. In January, our small group of research-oriented ME/CFS patients...
My letter. The only edit (besides removal of personal info) is the KP web link I included in my email went stale, so I updated it below: Sent:...
Science for ME are pleased to announce that we have today submitted the following critique of the Chalder Fatigue Questionnaire to the NIH/CDC...
A small group of ME/CFS patients with an interest in research, including Simon McGrath, Graham McPhee, Carly Maryhew and others, are asking for...
Individuals with Lyme disease expressed frustration and anger about what they called the scientific and medical community's lack of seriousness...
The Trump administration is prohibiting officials at the nation’s top public health agency from using a list of seven words or phrases — including...
I don't think some of these findings were ever published. I'm clearing out some of the mass of paper I have and thought I should highlight it...
Separate names with a comma.