europe

Let's assume that the EU decides to make €2 million available for ME/CFS research and projects. What would be the best way to spend this money?

News about Evelien's testimony to Parliament has already been posted on the thread about the EU Petition but I thought the testimony deserved its own thread. This article by #MEAction includes a video: https://www.meaction.net/2019/10/03/me-activist-testifies-before-eu-parliament/

So the big European MS meeting just finished a couple of days ago. The scientific program book is 131 pages long for a three day meeting!! https://www.professionalabstracts.com/ectrims2019/programme-ectrims2019.pdf Why is there so much more MS research than MECFS research? Are there really...

A friend on mine (Evelien) has succeeded in getting a petition on ME accepted by the EU Parliament [link below*]. The petition highlights the impact of ME on 2 million people in the EU and the lack of EU funding for ME Research. I'd be grateful if you would consider supporting it (and ask...

https://www.efna.net/new-brain-mind-and-pain-book-of-evidence-released-for-the-2019-2024-eu-mandate/ Direct link to document (PDF), http://www.brainmindpain.eu/wp-content/uploads/2019/04/BMP-Book-of-Evidence-%E2%80%93-2019-2024-web.pdf

Note from Moderators: IiME created the EMEA, and also the EMECC (Clinicians Council) and the EMERG (Research Group). The EMEA is a member of EFNA (the European Federation of Neurological Associations). A number of threads have been merged to create this thread. ******************** Invest...

Hi I've managed to get three (written) European Parliamentary questions asked on ME/CFS: Alex Mayer (S&D) Reference :E-006901/2017 Rory Palmer (S&D) Reference :E-004360/2018 Mairead McGuinness (PPE) Reference :E-006124/2018 If you Google the reference then you'll see the question. I'll update...

A European Research Agenda for Somatic Symptom Disorders, Bodily Distress Disorders, and Functional Disorders: Results of an Estimate-Talk-Estimate Delphi Expert Study May 2018 van der Feltz-Cornelis CM., Elfeddali I., Werneke U., Malt UF., Bergh OVD., Schaefert R., Kop WJ., Lobo A., Sharpe...

What's the one research problem you'd like European countries to fix and why? This could be solving a problem for society or improving the way research works. Anyone know of a suitable candidate for this who could put forward biomedical research into ME...

https://www.nature.com/articles/d41586-018-05105-0

The European ME Alliance has been a member organisation of the European Federation of Neurological Associations since 2015 (https://www.efna.net/emea/) This survey by EFNA includes M.E. https://www.surveymonkey.com/r/EFNA-YS It's open until 21st May and findings will be published on World...

"Currently, 11 percent of EUR’s professors are female. Women are still underrepresented in the top echelons of science. As a result, they miss out on up to €200 million, according to the annual monitor published by the Dutch Network of Women Professors."...

9 November 2017 "Subject: Funding of research on ME/CFS Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) affects more than one million people within the EU. This illness is characterised by persistent and excessive fatigue, post-exertional malaise, flu-like symptoms and cognitive...

I realise that this is the community lounge and it may be hard to drag people away from Betty's bar but I have a very short memory span and thought it would be good to flag up some feedback from a meeting today where EUROMENE was discussed. It is a community sort of feedback. (On a broader...