The Why: The Historic ME/CFS Call To Arms Paperback – April 26, 2022
by Hillary J Johnson (Author)
If you have acquired Myalgic Encephalomyelitis (a.k.a. “chronic fatigue syndrome”) in recent years, you may have wondered why the U.S. government has done so little to promote research or...
Recently uploaded to YouTube.
This was uploaded in 2021 by a different user, but was taken down shortly after due to copyright.
"To be told 'your illness is all in the mind' or 'pull yourself together' is no help to people like Mollie Champion -14 years seeking a diagnosis and still not cured...
2005
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1280928/
Abstract
In a previous study we demonstrated that while people with CFS had lower daily activity levels than control subjects, they were able to increase daily activity via a daily walking program. We reanalyzed our data to determine...
Abstract
Fibromyalgia developed in the 1950s from a substrate of difficult to explain regional and widespread pain mixed with symptoms of psychosocial distress. Controversies regarding psychological issues were common. Multiple criteria arose to define the disorder, but each identified a...
Middle class sprawl: Locating the psychologesque in the history of psychology, 2021, David C Devonis
Abstract
To add to the system of classes already present in the recent historiography of psychology, a new and broader class is proposed, the psychologesque. This class includes, along with...
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2428896/
Abstract
Many post-infectious syndromes have been recognized in the last 50 years, some following viral infections and others closely related to bacterial disease. The occurrence of prolonged fatigue following an apparent viral illness of...
Abstract
This review summarizes the symptoms and signs seen in patients with chronic fatigue syndrome (CFS). It is based on the authors' experience with two cohorts of approximately 510 patients with chronic debilitating fatigue and on the reported experience of other investigators with similar...
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1371754/
Abstract
In order to examine the prevalence of patients with symptoms fulfilling the criteria for the chronic fatigue syndrome an extensive survey was carried out of general practitioners on 10 local government lists in two health boards...
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1371214/
Abstract
A case definition for post-viral fatigue syndrome is proposed within which various subgroups of patients exist. Any one treatment may not apply to all the subgroups. In particular, patients' experiences do not show that avoidance of...
Split from NICE ME/CFS guideline - draft published for consultation - 10th November 2020
MEpedia states this on the page about the York Centre for Reviews and Dissemination - looks like Wessely had his sticky fingers all over this, which really shouldn’t surprise us at all...
“Professor...
ME/CFS: Past, Present and Future - by William Weir and Nigel Speight
Abstract
This review raises a number of compelling issues related to the condition of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).
Some historical perspective is necessary in order to highlight the nature of...
While researching the origins of the ideas regarding ME, I came across this paper. I'm going to post it in full, translated, because I think it's also a document of key importance for UK researchers interested in the history of the Wessely School's ideas about ME.
It appeared in Nederlands...
Structural dimensions of the biopsychosocial model. Series of blogs by Healthcare Hubris
A new series of 4 blogs by Healthcare Hubris.
Structural dimensions of the biopsychosocial model:
1) Beginnings...
I've been seeing many lately and thought a thread could be useful. Either coming from Long Covid advocates or professionals interested in learning about ME, people sometimes send out open requests for information, papers or studies on a specific topic that may span many subjects.
Usually those...
Abstract
The Wessely School’s (WS) approach to medically unexplained symptoms, myalgic encephalomyelitis and chronic fatigue syndrome (MUS/MECFS) is critically reviewed using scientific criteria. Based on the ‘Biopsychosocial Model’, the WS proposes that patients’ dysfunctional beliefs...
"David J Black explores the dangers of orthodoxy in the first in a four-part medico-legal series.
“Orthodoxy” wrote Bertrand Russell “is the death of intelligence”. Before placing this in a medico-legal context with specific reference to the 2009 case Fraser and another v The National Institute...
Medscape: The Anxious History of Understanding Cortisol
Came across this on Medscape today and since we've been having discussions on what "stress" is elsewhere on the forum--to say nothing of the many discussions on cortisol and ME/CFS over many years--it seemed a bit interesting to see how...
This thread has been split from a thread discussing a book about Ron Davis:
The Puzzle Solver by Tracie White
I've been following ME/CFS research and news and reading forums for over 25 years. I think that the UK has played a much bigger part internationally in psychologising the condition and...
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