I've just come across a patent from Fluge and Mella which looks like it was updated/published in March 2021 entitled 'Method for the treatment of chronic fatigue syndrome using an inhibitory or cytotoxic agent against plasma cells'.
The description of the patent is a long read...
obviously not new.
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Summary
Background
The PACE trial found that, when added to specialist medical care (SMC), cognitive behavioural therapy (CBT), or graded exercise therapy (GET) were superior to adaptive pacing therapy (APT) or SMC alone in improving fatigue and physical functioning in...
Rivka on Twitter: "Tonight, the @PBS @NewsHour w/ @JudyWoodruff airs a piece on #MEcfs. Thx to an amazing @MassMECFS volunteer for this graphic. (Pix is of an @unrestfilm event yrs ago. Slide behind me is a statement of support for people w/ ME fr the entire Massachusetts Congressional...
Abstract
Chronic Fatigue Syndrome or Myalgic Encephaloymelitis (ME/CFS) is a frequent debilitating disease with an enigmatic etiology. The finding of autoantibodies against ß2-adrenergic receptors (ß2AdR) prompted us to hypothesize that ß2AdR dysfunction is of critical importance in the...
"The ME Association decided to issue this position statement on exercise and activity management in ME/CFS (and Long Covid) in light of recent discussions which have appeared on, for example, BBC Newsnight, and in the Guardian newspaper and that are continuing online.
....
Graded Exercise...
Abstract
Background
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a complex and debilitating disease accompanied by muscular fatigue and pain. A functional measure to assess muscle fatigability of ME/CFS patients is, however, not established in clinical routine. The aim of this...
"Highlights
• Adolescents with CFS, asthma and healthy controls undertook an exercise task.
• Those with CFS took longer to complete a laboratory-based exercise task than controls.
• They (and their parents) expected to perform worse.
• They were more anxious pre-task and rated their performance...
ABSTRACT
Background
We followed college students before, during, and after infectious mononucleosis (IM) for the development of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).
Aim
We used network analysis to study relationships between pre-illness cytokine data amongst three...
I don't often post but this is a real concern see p7: Children and young people with Long Covid (CLoCK) (publishing.service.gov.uk).
Study summary Study title: Tracking the impact of Covid-19 on the mental health of children, young people and families; follow up of a national longitudinal...
Abstract
Background:
Chronic Fatigue Syndrome (CFS/ME) may get in the way of enjoying activities. A substantial minority of adolescents with CFS/ME are depressed. Anhedonia is a core symptom of depression. Anhedonia in adolescents with CFS/ME has not been previously investigated.
Method:
One...
"Today’s guest post is written by Dr Richard Pione, a clinical psychologist, CBT therapist and former Psychological Wellbeing Practitioner. Richard has worked within several different clinical health psychology settings, with the most recent being a short-term post within a Long COVID MDT...
P1 “She used to be Tigger and then she was Eeyore”: A qualitative study with children and young people with CFS/ME, exploring predictors of recovery and future treatment needs
Philippa Clery, MBBS BSc, Jennifer Starbuck, BSc DClinPsy, Amanda Laffan, BSc DClinPsy, Esther Crawley, MBBCh PhD...
Links to posts linking to articles/videos:
Jan 2021 article in the Guardian
Apr 2021 article in the Guardian
Jul 2021 interview video
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Not sure if these have been posted in other threads but I think they are significant so I’m posting them in their own thread. For...
Life-Threatening Malnutrition in Very Severe ME/CFS
Helen Baxter, Nigel Speight, William Weir
Healthcare (MDPI), Open access
Abstract
Very severe myalgic encephalomyelitis (ME), (also known as chronic fatigue syndrome) can lead to problems with nutrition and hydration. The reasons can be an...
Recovery from chronic fatigue syndrome: a systematic review—heterogeneity of definition limits study comparison
Yasmin Moore
Teona Serafimova
Nina Anderson
Hayley King
Alison Richards
Amberly Brigden
Parisa Sinai
Julian Higgins
Caitlin Ascough
Philippa Clery
Esther M Crawley
Open access...
Cognitive Behavioral Therapy Improves Physical Function and Fatigue in Mild and Moderate Chronic Fatigue Syndrome: A Consecutive Randomized Controlled Trial of Standard and Short Interventions
Merethe Eide Gotaas, Tore C. Stiles, Johan Håkon Bjørngaard Petter C. Borchgrevink and Egil A. Fors...
Abstract
The pathophysiology of chronic fatigue syndrome (CFS) and Q fever fatigue syndrome (QFS) remains elusive. Recent data suggest a role for neuroinflammation as defined by increased expression of translocator protein (TSPO). In the present study we investigated neuroinflammation in female...
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Brief Summary:
Myalgic encephalomyelitis/Chronic fatigue syndrome (ME/CFS), otherwise known as Chronic fatigue syndrome (CFS) or myalgic encephalomyelitis (ME), is an under-recognized disorder whose cause is not yet understood. Suggested theories behind the pathophysiology of this condition...
Not new but thought it should be here.
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Abstract
Background
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) or chronic fatigue syndrome (CFS) has been used to name a range of chronic conditions characterized by extreme fatigue and other disabling symptoms. Attempts to estimate the...
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