me/cfs

  1. Midnattsol

    Can dieticians (dietitians) help with ME/CFS?

    Posts moved from NICE ME/CFS guideline - draft published for consultation - 10th November 2020 I agree with this :) I hope dietitians can get to use the knowledge we have about other life-limiting diseases that influence the ability to maintain proper food intake. One of the most used books...
  2. Andy

    US: CDC: [ME/CFS] Healthcare Provider Toolkit

    Apparently the handouts at this link have been recently revised added (page says "Page last reviewed: May 3, 2021"). Quick ME/CFS Assessment Tool, About ME/CFS and Managing Patients’ Symptoms https://www.cdc.gov/me-cfs/healthcare-providers/toolkit.html ETA: Change revised to added, as per...
  3. Sly Saint

    Identification of differential genetic profiles in severe forms of fibromyalgia and CFS/ME, 2008, Garcia-Fructuoso et al

    Identification of differential genetic profiles in severe forms of fibromyalgia and chronic fatigue syndrome/myalgic encephalomyelitis: A population-based genetic association study Ferran J. Garcia-Fructuoso, Jose Ignacio Lao-Villadoniga, Cristina Santos, Violant Poca-Dias, Joaquim...
  4. Sly Saint

    Article: The Mysterious Condition Leaving Women Home-Bound Years Before Long Covid

    full article here https://uk.sports.yahoo.com/news/mysterious-condition-leaving-women-home-043200000.html
  5. Sly Saint

    Systematic Review of Sleep Characteristics in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Maksoud, Staines, Marshall-Gradisnik, et al

    Abstract (1) Background—Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a multifaceted illness characterized by profound and persistent fatigue unrelieved by rest along with a range of other debilitating symptoms. Experiences of unrefreshing and disturbed sleep are frequently...
  6. Wyva

    2021 Pan-Europe ME Patient Survey (EMEA)

    (I wasn't sure where to post it, so feel free to move it to the appropriate subforum if there's a better one.) In short, they want to do something like that pretty interesting Norwegian survey with 6000 pwME participating that showed there was a peak in onsets in 2009, probably due to H1N1...
  7. Sly Saint

    Virios Therapeutics - biotech company with anti-viral therapies for post-infection syndromes

    https://www.pharmiweb.com/press-release/2021-05-07/virios-therapeutics-to-present-at-the-benzinga-global-small-cap-conference
  8. cassava7

    COVID-19 symptoms over time: comparing long-haulers to ME/CFS, Jason et al, 2021

    https://www.tandfonline.com/doi/full/10.1080/21641846.2021.1922140 Leonard A. Jason, Mohammed F. Islam, Karl Conroy, Joseph Cotler, Chelsea Torres, Mady Johnson & Brianna Mabie Received 21 Apr 2021, Accepted 22 Apr 2021, Published online: 05 May 2021 Introduction Our objective was to...
  9. Sly Saint

    Deconditioning does not explain orthostatic intolerance in ME/CFS, 2021, VanCampen, Rowe, Visser

    Deconditioning does not explain orthostatic intolerance in ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) Abstract Background Orthostatic intolerance (OI) is a frequent finding in individuals with myalgic encephalomyelitis /chronic fatigue syndrome (ME/CFS). Published studies...
  10. D

    Low iron storage and mild anemia in postural tachycardia syndrome in adolescents, 2013, Jarjour and Jarjour

    Copied post, from NIH: Decoding the Mysteries of Postural Orthostatic Tachycardia Syndrome From PubMed: Clin Auton Res. . 2013 Aug;23(4):175-9. doi: 10.1007/s10286-013-0198-6. Epub 2013 May 30. Low iron storage and mild anemia in postural tachycardia syndrome in adolescents Imad T Jarjour 1...
  11. Kalliope

    JOSPT: Humility and Acceptance: Working Within Our Limits With Long COVID and ME/CFS - Décary et al - 2021

    Journal of Orthopaedic & Sports Physical Therapy Editorial Humility and Acceptance: Working Within Our Limits With Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Simon Décary, PT, PhD et al Abstract Synopsis The term long COVID was coined by patients to describe the...
  12. Sly Saint

    Podcast: Finding My People - Online Communities with Jenny McGibbon and Stefanie Grant

    (I haven't listened to it so cannot comment on content)
  13. Andy

    Comparison of the Functional Health Limitations of Veterans [of] Iraq or Afghanistan to Veterans [of] Desert Shield/Storm w/CFS, 2016, McAndrew et al

    Full title: Comparison of the Functional Health Limitations of Veterans Deployed to Iraq or Afghanistan to Veterans Deployed to Desert Shield/Storm With Chronic Fatigue Syndrome ABSTRACT The majority of studies to examine the levels of physical symptoms after Operation Enduring...
  14. Hutan

    Whole genome sequencing uncovers a misclassified case of glycogen storage disease type 13 previously diagnosed as ME/CFS, 2021, Brown, Younger et al

    Donna Brown, Camille Birch, Jarred Younger, Elizabeth Worthey UAB Medicine Link to the abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) also referred to as Systemic Exertion Intolerance Disease (SEID) or Chronic Fatigue Immune Dysfunction Syndrome, is a disabling and...
  15. Andy

    [CFS] and Bone Marrow Defects of the Jaw – A Case Report on Additional Dental X-Ray Diagnostics with Ultrasound, 2021, Lechner & Schick

    Full title: Chronic Fatigue Syndrome and Bone Marrow Defects of the Jaw – A Case Report on Additional Dental X-Ray Diagnostics with Ultrasound Purpose: This paper aims to demonstrate the additional benefit of ultrasound in the diagnosis of chronic osteolysis and osteonecrosis (bone marrow...
  16. Sly Saint

    Lymphoblastoid Cell Lines as Models to Study Mitochondrial Function in Neurological Disorders, 2021, Annesley and Fisher

    Abstract Neurological disorders, including neurodegenerative diseases, are collectively a major cause of death and disability worldwide. Whilst the underlying disease mechanisms remain elusive, altered mitochondrial function has been clearly implicated and is a key area of study in these...
  17. Sly Saint

    Long COVID and ME/CFS—A Systemic Review and Comparison of Clinical Presentation and Symptomatology, 2021, Wong and Weizer

    Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)—A Systemic Review and Comparison of Clinical Presentation and Symptomatology Abstract Background and Objectives: Long COVID defines a series of chronic symptoms that patients may experience after resolution of acute...
  18. Sly Saint

    Controversy over exercise therapy for chronic fatigue syndrome: Continuing the debate (from 2017)

    Part of: BJPsych Advances Cochrane Corner and Round the Corner Collection Published online by Cambridge University Press: 11 April 2018 " Editor's summary In a recent Round the Corner, Mitchell commented on a Cochrane Review of exercise therapy for chronic fatigue syndrome (CFS). One of the...
  19. Sly Saint

    Qualitative study of the acceptability and feasibility of acceptance and commitment therapy for adolescents with [CFS], 2021, Crawley et al

    Now published, see https://www.s4me.info/threads/qualitative-study-of-the-acceptability-and-feasibility-of-acceptance-and-commitment-therapy-for-adolescents-with-cfs-2021-crawley-et-al.20297/page-2#post-382771 preprint Is it time to ACT? A qualitative study of the acceptability and feasibility...
  20. Andy

    COVID-19 and post-infectious myalgic encephalomyelitis/chronic fatigue syndrome: a narrative review, 2021, Poenaru et al

    Abstract Coronavirus disease 2019 (COVID-19) is a viral infection which can cause a variety of respiratory, gastrointestinal, and vascular symptoms. The acute illness phase generally lasts no more than 2–3 weeks. However, there is increasing evidence that a proportion of COVID-19 patients...
Back
Top Bottom