Old, 2nd Oct 2017, article. Health organizations are emphasizing that myalgic encephalomyelitis/chronic fatigue syndrome is a serious long-term...
Note: this is from 2016. It's new to me but may be familiar to others. Summary The recent National Institute for Health and Care Excellence...
As a NICE stakeholder, S4ME can have input on this update process. I can't imagine that there is much, if any, interest here, we've got lots of...
Posted elsewhere but creating a new thread for maximum visibility. Each stakeholder organisation is able to put forward two representatives...
We think we have got what we need now. Thanks. I'm working with a few people to write something about the PACE trial. Can anyone recall, ideally...
Finally received email confirmation of this: Dear Colleague, NICE guideline: Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue...
Here is a copy of the SCOPE used for the existing NICE CFS/ME Guideline I think that the next NICE stakeholders meeting 25/5 will be on a new...
I got asked to put these online. Not had a chance to read them yet myself, but apparently there may be some final minutes missing, as apparently...
NICE has promised to review its current guidelines on ME/CFS, which is not scheduled to be completed until 2020. Meanwhile it has left the...
Martyn Hooper Chair of Pernicious Anaemia Society on new NICE guidelines for ME: "Last week I was at a NICE consultation which was looking at the...
In the previous post about the NICE Guidelines revision, it was reported that Prof Mark Baker of NICE had raised the issue of the right of...
I've put both a report of my impressions of the meeting, and my list of points to raise, into this blog post....
In short they are asking for GET and CBT to be removed as treatments before the review concludes in 2020. Core of first letter By removing the...
This was created to support @Graham 's open letter, which can be found here,...
This letter will be sent to Sir Andrew Dillon, chief executive of NICE, on Monday 16th January. This thread is locked so that any replies and...
As it seems a lot of people go on to develop ME following a virus (children in partic seem particularly susceptible after mono,EBV), I thought I'd...
I was wondering if anyone knows how a NICE stakeholder meeting works? I am guessing that our “CFS/ME” one will be well attended, so I’m...
We intend to send this letter to Sir Andrew Dillon (NICE) early in January. I don't know whether any of you would like to add your (real) names to...
We are looking for a chair for the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/ chronic fatigue syndrome guideline...
For reference really. Not only are there a lot of psychs and BPS influences there, but some others seem like strange groups to be stakeholders....
Separate names with a comma.
