nice

The issue of GET and safety has of course been much discussed, especially regarding the the PACE trial authors' claims to have demonstrated its safety, versus the fact there exists good quality anecdotal evidence to the contrary. There is however an aspect I'm not sure has been broached, and...

I've summarised some information about the appointed NICE committee members in the attached pdf-document. I've focused on committee members with a BPS-bias, and did not delve into the lay members and ME-experts. This thread can be used to challenge or verify the information in the pdf-document...

2018 surveillance of multiple sclerosis in adults: management (NICE guideline CG186) "Recommendation 1.5.5 recommends that mindfulness‑based training, cognitive behavioural therapy or fatigue management are considered for treating MS‑related fatigue. New evidence indicates that these...

I thought it might be useful to collate this information in a thread. Perhaps keep the discussion of the guideline group in general to another thread, such as https://www.s4me.info/threads/nice-guideline-review-a-list-of-appointees-to-the-me-cfs-guideline-committee-has-now-been-published.6197...

Just spotted this on ME Research UK's Facebook page. [The current committee member list can be found on this page, https://www.nice.org.uk/guidance/indevelopment/gid-ng10091/documents. Previously I linked directly to it but NICE keep changing the file name, this way, hopefully, the latest...

Just received notice that NICE have published their final scope for their review of the diagnosis and management guidelines. Final scope can be viewed here, https://www.nice.org.uk/guidance/gid-ng10091/documents/final-scope Stakeholder comments and responses from NICE can be viewed here...

https://valerieeliotsmith.com/2018/09/28/karina-hansen-news-a-battle-with-nice-the-uks-national-institute-for-health-and-care-excellence/#comments Valerie describes how her organisation “ Law and Health” was first accepted then turned down as a stakeholder in the Nice review process. EDIT...

Open access at http://journals.sagepub.com/doi/10.1177/2055102918792648

Not sure if this has been posted anywhere. The link was included in one of the comments on David Tullers latest blog about Mayo. " The Guideline Process The National Institute for Health and Care Excellence Surveillance report 2017 - Chronic fatigue syndrome/myalgic encephalomyelitis (or...

Moderator note: This thread is for submissions made and submitted by various stakeholders on the draft scope for the NICE ME/CFS Guidelines Review. Discussions on the draft scope can be found in these threads: Discussion of first section of draft scope (members only) Discussion of second...

Looks like this is supportive of Wessely's attempts to get change, as written about by @Hole Ousia: https://www.s4me.info/threads/simon-wessely-didnt-want-his-e-mail-on-a-blog-here-it-is-on-hole-ousia.5001/ Also seems relevant to claims that NICE should operate entirely independently of...

Transparency: Revision of NICE guidance on Depression

Action for ME have a survey on the NICE draft which they say will inform their feedback. 120 people have done it

The consultation for the draft scope closes 26 July 2018 at 5pm. Therefore, we need members to look at each section of the draft scope and provide feedback, in order to inform any comment that S4ME may make on the draft. So please read the below and comment away! (Full document can be found...

The consultation for the draft scope closes 26 July 2018 at 5pm. Therefore, we need members to look at each section of the draft scope and provide feedback, in order to inform any comment that S4ME may make on the draft. So please read the below and comment away! (Full document can be found...

The consultation for the draft scope closes 26 July 2018 at 5pm. Therefore, we need members to look at each section of the draft scope and provide feedback, in order to inform any comment that S4ME may make on the draft. So please read the below and comment away! (Full document can be found...

https://www.nice.org.uk/get-involved/our-committees/join-a-committee/lay-member--me-and-cfs

Email from NICE. NICE consultation page is here, https://www.nice.org.uk/guidance/indevelopment/gid-ng10091/consultation/html-content-3 and direct link to the draft scope is https://www.nice.org.uk/guidance/GID-NG10091/documents/draft-scope-2 NICE committee recruitment page is here...

https://spoonseeker.com/2018/06/20/a-morass-of-mus/

Communication just received from NICE