We, the 25% ME group, would like to make our voices heard with regard to the use of Graded Exercise Therapy (GET) and Cognitive Behaviour Therapy...
Some revelations about shenanigans at NICE - the IAPT team is in charge of the NICE guidelines for ME/CFS - as flagged up by Hope 4 Fibro & ME...
Abstract Background Health guidelines are developed to improve patient care by ensuring the most recent and ‘best available evidence’ is used to...
So, a few weeks into 2019, where do we think we are with M.E.? Are we making progress at last? Or are things very different from how they seem?...
This is a letter we sent from S4ME to NICE as discussed in a voting thread for those members who have posted enough to have voting rights. Sorry...
Welcome to the NICE Annual Conference 2019 NICE 2019: Transforming care celebrates 20 years of NICE’s commitment to innovation, excellence and...
Moderator note: This post and subsequent discussion have been moved from this thread: Forward ME Group CBT/GET Survey - Tell NICE your experiences...
Moderator note: post moved from Open - Forward ME Group CBT/GET Survey - Tell NICE your experiences In my latest missive to NICE about LocalME...
The National Institute of Health and Care Excellence (NICE) is rewriting the UK ME guidelines. As part of this process, the Forward ME Group...
This thread is intended for collecting evidence of harms from GET and other therapies that involve increasing activity and/or exercise....
I think it would be useful for all of us, and perhaps for the NICE committee members, to gather together resources about severe and very severe...
[IMG] You may wonder what that picture’s doing here and what that title ‘The Vale of Strange’ is about. It should all become clear as this post...
This Christmas, millions will be missing from parties and celebrations, because of the severity of ME. Yet the National Institute of Health and...
NICE documentation NICE guidelines 2007: Link to document 2007 NICE guidelines setup: General comments from stakeholders (CFS/ME consultation...
Didn't know where to post this or if it has been posted before; 1. Summary of the impact Chronic fatigue syndrome (CFS) is a disorder of...
This is a letter we sent from S4ME to NICE as discussed in a voting thread for those members who have posted enough to have voting rights. We are...
Chronic fatigue syndrome One condition that often presents with a range of chronic pain symptoms is chronic fatigue syndrome (CFS) or myalgic...
Been reading through some documents from the previous NICE guideline procedure (Dolphin posted most of them in this thread). They give some...
Some thoughts about NICE In fact, a robust debate about ME/CFS treatments rooted in scientific principles would be welcome, since such a debate...
The issue of GET and safety has of course been much discussed, especially regarding the the PACE trial authors' claims to have demonstrated its...
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