Paroxysmal exercise-induced neurological symptoms (PENS) encompass a wide spectrum of clinical phenomena commonly presenting during childhood and characteristically elicited by physical exercise. Interestingly, few shared pathogenetic mechanisms have been identified beyond the well-known entity...
Recovery from chronic fatigue syndrome: a systematic review—heterogeneity of definition limits study comparison
Yasmin Moore
Teona Serafimova
Nina Anderson
Hayley King
Alison Richards
Amberly Brigden
Parisa Sinai
Julian Higgins
Caitlin Ascough
Philippa Clery
Esther M Crawley
Open access...
https://www.ruh.nhs.uk/patients/services/clinical_depts/paediatric_cfs_me/index.asp
https://www.ruh.nhs.uk/patients/services/clinical_depts/paediatric_cfs_me/documents/POMME_Study_Info_June 2020.pdf
eta: an apple a day keeps the doctor away?
Full title:
“it’s a medical condition … you need to support as much as possible”: a qualitative analysis of teachers’ experiences of chronic fatigue syndrome / myalgic encephalomyelitis (CFS/ME)
https://bmcpediatr.biomedcentral.com/articles/10.1186/s12887-020-02461-7
ETA link to article
https://www.ruh.nhs.uk/patients/services/clinical_depts/paediatric_cfs_me/documents/Resources_for_Clinicians_and_Healthcare_Professionals/CBT_for_CFS_Therapist_Manual.pdf
link found here...
via Dr. Marc-Alexander Fluks
Source: University of Bristol Date: November 28, 2019 URL: https://research-information.bris.ac.uk/en/theses/a-qualitative-exploration-of-treatment-preference-in-paediatric-randomised-controlled-trials(e6ff1d3b-e315-45e2-a4da-18ae0b414a1d).html...
https://bmjpaedsopen.bmj.com/content/4/1/e000617
full paper pdf:
https://bmjpaedsopen.bmj.com/content/bmjpo/4/1/e000617.full.pdf
"However, patients who recover appear to have less pain than those who do not recover."
:cookie:
The team of Leonard Jason have performed a prevalence study in Chicago on children and adolescents with ME/CFS.
Because this was a community-based study with clinician confirmed diagnosis, this is probably one of the best studies on the prevalence of pediatric ME/CFS thus far...
Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric chronic fatigue syndrome/myalgic encephalopathy (CFS/ME): prioritisation through card ranking
Roxanne M. Parslow,
Nina Anderson,
Danielle Byrne,
Kirstie L. Haywood,
Alison Shaw...
Talk (no booking required, public) no abstract yet
Date: 28 January 2020, 12:15 (Tuesday, 2nd week, Hilary 2020)
Venue: University Department of Psychiatry
Headington OX3 7JX
Organising department: Department of Psychiatry
https://talks.ox.ac.uk/talks/id/5a0edd5a-46e6-4f9a-8cca-f139852175f5/
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