Posts moved from News from Aotearoa/New Zealand and the Pacific Islands
YouTube - Post-Exertional Malaise in ME/CFS - Management and Supports - Webinar for Health Professionals (24 mins)
Dr Cathy Stephenson for ME Awareness NZ on World ME Day.
I think this is a good resource for GPs and...
Full title:
Sex-Dependent Transcriptional Changes in Response to Stress in Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Pilot Project
Abstract
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex, multi-symptom illness characterized by debilitating...
New thread created by collecting posts from a number of other threads
If someone's in a listening mood, there's no transcript. 30 minutes with the NIH Recover initiative lead:
Direct link: https://www.nejm.org/action/showMediaPlayer?doi=10.1056/NEJMdo006435&aid=10.1056/NEJMe2201619&area=.
2023 World ME Day campaign announced
"The theme for World ME Day 2023 will be the hallmark symptom of ME: post-exertional malaise. The campaign is all about changing the narrative, so that globally people begin to understand this disease more accurately. That’s why our tagline this year is “ME...
LongCovidPhysio - Jessica "Breathing Pattern Disorders", video 2021
The Management of Breathing Pattern Disorders
https://www.physio-pedia.com/The_Management_of_Breathing_Pattern_Disorders
Yet another Long Covid Physio podcast
https://youtu.be/Avr9Ys4eJ-8
Post Exertional Malaise is the hallmark symptom of #MECFS and is also common in #LongCovid.
Video explains the abnormal response to exertion, triggers, symptoms and management.
BACKGROUND:
Existing instruments often are inappropriate to measure the effects of post-exertional malaise (PEM) and post-exertional symptom exacerbation (PESE) on activities of daily living (ADLs). A validated questionnaire to measure self-reported ability with ADLs would advance research and...
This description in a paper on sarcoidosis sounds like PEM (although not much detail is given so it's not clear).
In this study they also performed repeated CPET and found "no impairment of maximal exercise testing" on the second test...
I'm new to an ME diagnosis (got it Dec 27, 2022, although I'd had ME symptoms since 1994 if not before) but not new to cardiac issues. I've had lots of testing as a result of chest pain while exercising (nothing wrong with my heart; in retrospect an ME symptom related to pushing myself too hard)...
Kujawski, Julia Newton et al
Abstract
Post-exertional malaise (PEM) is regarded as the hallmark symptom in chronic fatigue syndrome (CFS). The aim of the current study is to explore differences in CFS patients with and without PEM in indicators of aortic stiffness, autonomic nervous system...
Podcast episode about PEM, well worth a listen :thumbsup:
https://natashalipman.substack.com/p/post-exertional-malaise
Transcript here:
http://natashalipman.com/post-exertional-malaise-podcast-transcript
ME/CFS and Post-Exertional Malaise among Patients with Long COVID
by Leonard A. Jason and Joseph A. Dorri
Abstract
This study sought to ascertain the prevalence of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) among a sample of 465 patients with Long COVID. The participants...
Full title: Fatigue, post-exertional malaise and orthostatic intolerance: a map of Cochrane evidence relevant to rehabilitation for people with post COVID-19 condition
INTRODUCTION: Rehabilitation focuses on impairments, activity limitations and participation restrictions being informed by the...
Full title: Effect of using a structured pacing protocol on post-exertional symptom exacerbation and health status in a longitudinal cohort with the post-COVID-19 syndrome
Background
Post Exertional Symptom Exacerbation (PESE) is a characteristic symptom of Post-COVID Syndrome (PCS)...
From OMF news email
Post Exertion Malaise (PEM): Dr. David Systrom Aims to Fill in Gaps
Today we are pleased to highlight one of the studies included in our 2022 OMF supported research initiatives! Remember, when you give this November, your gift will be TRIPLED by generous donors. Hurry before...
Unravelling the nature of postexertional malaise in myalgic encephalomyelitis/chronic fatigue syndrome: the role of elastase, complement C4a and interleukin-1β
Abstract
Abstract. Nijs J, Van Oosterwijck J, Meeus M, Lambrecht L, Metzger K, Frémont M, Paul L (Vrije Universiteit Brussel...
About: Graded exercise is commonly prescribed after illness to improve symptoms and functional tolerance. Protracted and limited courses of recovery may be associated with post-exertional symptom exacerbation (PESE), which is common after many other forms of viral and bacterial infection...
Hi All,
It's be really interested in what people's thoughts are for the most accurate fatigue scales that can be used in research studies?
Ones that also give representation to PEM over time.
The CFQ (chalder fatigue scale/ questionnaire) is often used but has serious limitations.
The DePaul...
This idea has come up before and I thought it would be interesting to write down some of my thoughts on this. Housekeeing processes have a role in keeping cells healthy by doing things such as maintaining structural integrity and degrading and recycling intracellular components (like...
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