pem

  1. Mij

    Symptom variation, correlations, and relationship to physical activity in LC: intensive longitudinal study, 2022, Christopher Burton et al

    Abstract Background People with Long Covid (Post-Acute Sequelae of Covid-19) describe multiple symptoms which vary between and within individuals over relatively short time intervals. We aimed to describe the real-time associations between different symptoms and between symptoms and physical...
  2. Kalliope

    Plasma metabolomics reveals disrupted response and recovery following maximal exercise in ME/CFS, Arnaud Germain, Maureen R. Hanson et al, 2022

    JCI Insight Plasma metabolomics reveals disrupted response and recovery following maximal exercise in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Abstract Post-exertional malaise (PEM) is a hallmark symptom of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). We monitored...
  3. L

    Traumatic brain injury - similarities with and differences to ME/CFS, including PEM

    Thread split from UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion For those who want to share personal experiences on this topic less publicly there is a thread in the members only area here. ______________ I used to think it was unique. But I am starting...
  4. Arvo

    Coining a term for being limited in your interrelated energy and time.

    Just one of these things I have tumbling around in the back of my head for a while now, and I was curious about your opinion. One of the key characteristics of ME/CFS is that you are limited in what you can do, there is an "energy envelope" that is markedly smaller than pre-illness. You can...
  5. Dolphin

    "ME/CFS Crash Survival Guidebook: The Art of Living with ME/CFS" (Bateman Horne Center)

    Bateman Horne Center · RELEASED: "ME/CFS Crash Survival Guidebook: The Art of Living with ME/CFS" https://bit.ly/34nh5yX The guidebook is designed for the patient, their support network, and medical providers to: - Understand ME/CFS and its defining characteristic of post-exertional malaise...
  6. Kalliope

    JOSPT: Lessons from ME/CFS for Long COVID - 4 part series, 2022, Davenport et al

    Lessons from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome for Long COVID: Postexertional Symptom Exacerbations is an Abnormal Response to Exercise/Activity Authors: Todd E. Davenport, Staci R. Stevens, Jared Stevens, Christopher R. Snell, J. Mark Van Ness Quote: Prolonged symptoms after...
  7. Andy

    Chronic Fatigue and Postexertional Malaise in People Living with Long COVID: An Observational Study, 2022, Twomey et al

    Abstract Objectives People living with long COVID describe a high symptom burden, and a more detailed assessment is needed to inform rehabilitation recommendations. The objectives were to use validated questionnaires to measure the severity of fatigue and compare this with normative data and...
  8. Sly Saint

    Review of the Midbrain Ascending Arousal Network Nuclei and Implications for (ME/CFS), Gulf War Illness (GWI) and (PEM), 2022, Baraniuk

    Review of the Midbrain Ascending Arousal Network Nuclei and Implications for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Gulf War Illness (GWI) and Postexertional Malaise (PEM) Abstract Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS and Gulf War Illness (GWI) share...
  9. Mij

    Submax Exercise Provokes Activation of the Anterior Default Mode Network During the Resting State as a Biomarker of PEM in ME/CFS, Rayhan, 2021

    Original title: Submaximal Exercise Provokes Increased Activation of the Anterior Default Mode Network During the Resting State as a Biomarker of Postexertional Malaise in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Rakib U. Rayhan et al Abstract Background: Myalgic...
  10. R

    What differentiates ME/CFS from known primary mitochondrial diseases; could mitochondrial disease cause PEM?

    I put this post here as I couldn't see a section for Primary Mitochondrial Disease in Missed/Alternative Diagnosis section... Given the advice that if 3 or more systems are involved that it could possibly be a genetic/primary mitochondrial disease it would seem that anyone that meets ICC/CCC...
  11. Sly Saint

    Reclaiming terminology for ME/CFS

    Brain fog, and now post exertional malaise, terms that were until fairly recently only used to describe ME/CFS symptoms have been hijacked and become generic terms. Maybe we should learn from the Fibromyalgia community? They use fibro fog, there are many article on this (even the NHS recognise...
  12. Sly Saint

    Symptoms and signs of chronic fatigue syndrome, 1991, Komaroff

    Abstract This review summarizes the symptoms and signs seen in patients with chronic fatigue syndrome (CFS). It is based on the authors' experience with two cohorts of approximately 510 patients with chronic debilitating fatigue and on the reported experience of other investigators with similar...
  13. Sly Saint

    Differential Effects of Exercise on fMRI of the Midbrain Ascending Arousal Network Nuclei in ME/CFS and GWI in a Model of PEM, 2021, Baraniuk et al

    Differential Effects of Exercise on fMRI of the Midbrain Ascending Arousal Network Nuclei in Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) and Gulf War Illness (GWI) in a Model of Postexertional Malaise (PEM) preprint Abstract Background: Myalgic Encephalomyelitis / Chronic...
  14. Andy

    Open International: Dr. Todd Davenport, PEM/PESE Activity Survey Study, Nov 2021

    "You are invited to participate in a research study. The purpose of this study is to determine how well we can measure self-rated function in people with post-exertional malaise/post-exertional symptom exacerbation (PEM/PESE)." https://www.surveymonkey.com/r/PEMPESESurveyStudy
  15. Sly Saint

    Understanding The Molecular Changes of Post Exertional Malaise In ME/CFS, 2021, Elley

    Abstract: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a debilitating and often life-long condition affecting over 20,000 New Zealanders. Symptoms include muscle and joint pain, severe fatigue, unrefreshing sleep, hypersensitivity to light and sound, and cognitive dysfunction...
  16. Sly Saint

    Network Analysis of Symptoms Co-Occurrence in Chronic Fatigue Syndrome, 2021, Kujawski, Staines,Newton et al

    Abstract Chronic fatigue syndrome (CFS) is a heterogenous disorder of multiple disabling symptoms with complex manifestations. Network analysis is a statistical and interrogative methodology to investigate the prevalence of symptoms (nodes) and their inter-dependent (inter-nodal) relationships...
  17. Hutan

    Chills

    For the last few days, I've been ending up in bed in the afternoons, unable to get warm, exhausted and feeling chills. I guess it's PEM, although it seems to just last a few hours and doesn't involve the body crushed pain that is my experience of full-on PEM. Chills are a frequent feature of...
  18. Sly Saint

    PEM - post exertional malaise very short video 2019

  19. Sly Saint

    Article: Will there ever be a test for chronic fatigue syndrome?

    rest of article here https://www.medicaldevice-network.com/features/cfs-me-test/
  20. Sly Saint

    Article in Verywell:Treating Post-Exertional Malaise in Chronic Fatigue Syndrome

    https://www.verywellhealth.com/managing-post-exertional-malaise-in-chronic-fatigue-716027
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