pem

A couple of years ago I discovered that cumin (cuminum cyminum) was very effective at blocking my physically-induced PEM (didn't affect cerebrally-induced PEM). A level tsp of ground cumin would completely block PEM for 3 days. If I forgot my dose, and PEM started, taking cumin then would...

Full poll question: Please compare your typical PEM from physical overexertion with your typical PEM from cognitive overexertion. Consider the typical range of symptoms you get in each case, plus their timing and severity. Do you feel both types of PEM are fundamentally the same process or do...

Barbara Stussman1*, Ashley Williams2, Joseph Snow3, Angelique Gavin4, Remle Scott1, Avindra Nath4 and Brian Walitt5 https://www.frontiersin.org/articles/10.3389/fneur.2020.01025/full

Factors Affecting the Characterization of Post-Exertional Malaise Derived from Patient Input https://digitalscholarship.unlv.edu/jhdrp/vol13/iss2/5/ (This would normally fit in research but is neither psychosocial nor biomedical, perhaps a category for research on clinical care is needed?)

The other day, my caree suggested that there might be a link between over-exertion (in this case, a phone conversation with a friend, I think) and excessive sweating. Has anyone else had any experience of this?

Just wondering if that is something others experience as well? Has the effect of exertion on water balance or relevant hormones in ME/CFS ever been studied?

Moderator note: This post has been copied and following posts moved from this thread: Epidemiological and clinical factors associated with post-exertional malaise severity in patients with ME/CFS. Ghali et al. 2020 ____________________ PEM studies always catch my attention, especially ones...

Paywall, https://content.iospress.com/articles/work/wor203168 Sci hub, https://sci-hub.tw/10.3233/WOR-203168

Several threads have been merged ME-conferences in Sweden Oct 17th and 18th 2018 RME, the Swedish patient organisation, invites once again to two conferences about ME this autumn. Some of the programme is in English, and some in Swedish. (I have translated the Swedish parts for this post)...

Sponsor Vrije Universiteit Brussel Overall contact Andrea Polli, MSc full details here: https://www.smartpatients.com/trials/NCT04378634

Today is the première of the English version of a three minute long film about ME and PEM. It's made by the Norwegian ME Association - Rogaland County with professional help from psychologist Ketil Jakobsen and paediatric neurologist Kristian Sommerfelt. The film is available for everyone to...

A Canadian study https://www.jpsmjournal.com/article/S0885-3924(20)30098-1/fulltext?rss=yes

Topic Post-Exertional Malaise: Identifying, Understanding and Preventing Description Post-exertional malaise (PEM) is the hallmark clinical feature of ME/CFS. The webinar will present research that advances our understanding of this important complex of symptoms and introduce a timecourse for...

The video from the Action CIND webinar on Dec. 11th, featuring speakers from Workwell Foundation, is now available on vimeo (about 1 1/2 hours long). Why Working out Doesn’t Work. Answers from 20 years of cardiopulmonary exercise testing (CPET) in ME/CFS I don't think the video will play if...

https://www.sciencedirect.com/science/article/abs/pii/S0022399919304672

Action CIND https://zoom.us/webinar/register/WN_v41HUQKxRPKhRTncHHVUoQ?fbclid=IwAR1EFCcuYq4Fv2zbMStETnfEaHVwQ8QFACmWT-mIz77l0I7DbyTNkfshj6Q eta: Dec 19, 2019 02:00 PM in Eastern Time (US and Canada)

full paper https://www.nature.com/articles/s41598-019-55473-4

https://www.sciencedirect.com/science/article/abs/pii/S0167876019305495

So one challenge that I believe we face is that if most, if not all, research studies insist on PEM as part of the inclusion criteria, we run the risk of mild sufferers not recognising PEM for what it is. For example, CCC description of PEM and ICC description of PENE I would not have...

Paywall, https://www.tandfonline.com/doi/abs/10.1080/21641846.2019.1687117 Not available via Scihub at time of posting