politics

This US-based advocacy project was announced by Solve M.E. in their October 20 "state of the union" online session. It is also mentioned here: https://solvecfs.org/2026-state-of-the-mecfs-union/ There are nine training sessions scheduled from January to April 2027. The registration page says...

Disabling Dynamics: Long Covid and the Challenges of Securitizing Slow-Onset Health Threats This paper investigates why the United States fully securitized acute Covid-19 but not Long Covid, despite the latter’s potentially greater long-term socioeconomic burden. Drawing on securitization...

From the #MEAction website: Questions to Ask Prospective MPs About ME/CFS https://www.meaction.net/2024/06/04/questions-to-ask-prospective-mps-about-me-cfs/

The double invisibility of Long Covid in children Wild; MacLean; Nettleton; Hunt; Ziebland The Covid-19 pandemic has been dominated by discussions of mild and short-lasting cases or acutely serious or lethal forms of the disease; less attention has been paid to long-term Covid-19 symptoms...

Investigating the ‘Bolsonaro effect’ on the spread of the Covid-19 pandemic: an empirical analysis of observational data in Brazil Mireille Razafindrakoto; François Roubaud; Marta Reis Castilho; Valéria Pero; João Saboia Brazil counts among the countries the hardest hit by the Covid-19...

https://citeseerx.ist.psu.edu/viewdoc/download?doi=10.1.1.729.2487&rep=rep1&type=pdf Too big to upload the PDF

Evaluation of science advice during the COVID-19 pandemic in Sweden Nele Brusselaers, David Steadson, Kelly Bjorklund, Sofia Breland, Jens Stilhoff Sörensen, Andrew Ewing, Sigurd Bergmann & Gunnar Steineck Abstract Sweden was well equipped to prevent the pandemic of COVID-19 from becoming...

the order of magnitude of the scale and scope of the problem is completely off. [perception and addressing of.] i posted this on a thread briefly then deleted it and reposting it. i don't know where to put it. that is not the best place. a few notes about human rights. WARNING: i am not...

Title : Medicine is Political Link : https://www.fast.ai/2021/10/12/medicine-political/ Article mentions ME/CFS and Covid as well as some other conditions. Opening paragraph :

"Today we are listening in on a fascinating conversation between Ivan Tyrrell - Co-founder of the Human Givens approach and director of Human Givens College - and Farhad Dalal, who is a UK-based psychotherapist and author. Farhad Dalal’s book - CBT: The Cognitive Behavioural Tsunami...

Some of what we face as pwME has naming that I wasn't aware of.... Essentially they amount to the relative insurmountability of an overwhelming blitzkrieg of BS: Bullshit asymmetry principle (Brandolini's Law) "Bullshit" on @Wikipedia: https://en.m.wikipedia.org/wiki/Bullshit?wprov=sfta1 Gish...

full article here https://www.echolive.ie/nationalnews/They-dont-know-the-reality-Artist-living-with-ME-says-candidates-need-to-listen-to-those-who-are-disabled-314a2093-c1c4-4584-b82c-f2860b290ab1-ds

full editorial here: https://jamanetwork.com/journals/jama/fullarticle/2756117 (note, article was retweeted by MS who is now 65th President and Chairman of the Board of the Academy of Consultation-Liaison Psychiatry)

https://www.independent.co.uk/voices/brexit-no-deal-nhs-epilepsy-bipolar-medicine-stockpiling-a8855131.html?amp See link for the rest of the article.

Open access, https://journals.sagepub.com/doi/full/10.1177/0003122412458509

" LOUGHBOROUGH MP Nicky Morgan has said she will work in Parliament to raise awareness of the devastating illness, ME. She spoke after joining viewers at a town screening of Unrest, an Oscar-shortlisted film by Harvard graduate Jen Brea which documents her life as a patient with Myalgic...

Pa. state Rep. Peter Schweyer speaks on House Resolution 854 designating May 12, 2018, as “Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Awareness Day” in Pennsylvania.

"M.E awareness: Liberal Democrats look to kick-start campaign on the hidden disease In a motion to Council on the 22nd March, Liberal Democrat Councillors are looking to kick-start a campaign to raise awareness on the often overlooked and hidden disease; Myalgic Encephalomyelitis, otherwise...

Not quite ME/CFS related but... A model of the way opinions spread reveals how propagandists use the scientific process against itself to secretly influence policy makers... https://www.technologyreview.com/s/610012/the-tricks-propagandists-use-to-beat-science/