solve mecfs initiative

Solve M.E. Co-Sponsors Bipartisan Women’s Caucus Briefing with Two-time Emmy-nominated TV Host, Jedediah Bila Solve M.E. is proud to announce our collaboration with the Bipartisan Women’s Caucus, Miles for Migraines, and the Headache and Migraine Policy Forum in hosting a virtual Congressional...

Raskin Introduces Legislation to Address America’s Hidden Health Crisis

Solve M.E. Announces Oved Amitay as President and Chief Executive Officer Dear Emily, With your support, Solve M.E. has taken our community to battle against ME/CFS. Your impassioned Calls-to-Action, your eagerness to engage with research and your participation in the You + M.E. Registry...

Today is ME/CFS Advocacy Day! Not participating in meetings? If you have a few minutes throughout the day, you can still support and advocate for ME/CFS. All three actions should take less than 30 minutes. You can space out the actions throughout the day to help manage your energy. You can...

https://solvecfs.org/solve-m-e-partners-with-ucla-to-expand-me-cfs-research/

From a Solve email. It’s finally here – our 2020 ME/CFS Advocacy Week D.C. schedule! Once again, we’ll be bringing the national ME/CFS community together in Washington, D.C. to advocate for more action and research funding. In addition to our ME/CFS Advocacy Day (where we connect real patients...

The Solve M.E. group is organizing another ME/CFS Advocacy Week this year for April 19 – 26, 2020. A limited number of folks can get financial aid to help them to make the trip to Washington, DC. You must register to be eligible. The deadline is Friday, February 21. There are a lot of links...

Dear Friends, Throughout 2019, I reported on our advocacy gains for ME/CFS. Thank you for standing with me and our advocacy partners during a particularly turbulent year while we fought for ME/CFS in Washington D.C. Today, with this final FY20 budget update, I’m so happy to report that our...

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2019 is our biggest year yet! We have over 30 researchers working across seven projects. The group represents 12 academic centers and organizations. Three of the studies will be done collaboratively, integrating scientists from different labs. “Altered T cells in Myalgic...

Moderator note: Post copied from thread on 2019 event here: https://www.s4me.info/threads/solve-me-cfs-initiative-me-cfs-advocacy-week-and-dc-lobby-day-2019.7806/#post-211298 2020 dates announced. http://lobby20.solvecfs.org/

From an email from them. Our “Advances in ME/CFS Research and Clinical Care” Webinar Series features presentations by researchers who contributed articles to a special ME/CFS issue of the journal Frontiers in Pediatrics. Published over 2018 – 2019, the issue includes 24 peer-reviewed articles...

Dear All, I wanted to inform you about my application to SolveCFS for a RAMSAY award funding and the final decision. The title of the application was : "The use of artificial intelligence and network analysis methods to identify mechanism(s) responsible for Myalgic Encephalomyelitis/Chronic...

From an email from Solve. I’m so proud to announce that our inaugural 2020 Community Advisory Council (CAC) will join the growing list of Solve M.E. programs dedicated to ME/CFS advocacy, education, and engagement. Developed with the assistance of people with ME/CFS and other ME/CFS...

From a Solve email newsletter Solve M.E. Director of Research Programs Allison Ramiller recently attended the Annual Meeting of the Patient-Centered Outcomes Research Institute (PCORI) in Washington, D.C., where the theme was Making a Difference: Using Patient-Centered Research Results in the...

From a Solve email DR. KENNETH J. FRIEDMAN KICKS OFF “ADVANCES IN ME/CFS RESEARCH AND CLINICAL CARE” WEBINAR SERIES! In our upcoming research webinar series, we’re taking a closer look at some of the topics covered in the special issue of Frontiers in Pediatrics devoted to ME/CFS. Solve M.E...

From an email from Solve ME/CFS Initiative What you Need to Know: The Senate Appropriations Committee included our ME/CFS Advocacy Day request for Defense. If approved in the final budget, ME/CFS will be an eligible topic area for the Peer-Reviewed Medical Research Program (PRMRP), which is...

https://www.access-board.gov/ The U.S. Access Board is a federal agency that promotes equality for people with disabilities through leadership in accessible design and the development of accessibility guidelines and standards for the built environment, transportation, communication, medical...

Did we win yet? A Federal Funding Update for ME/CFS What you Need to Know: The House approved a budget with $5.4m for ME/CFS, the first time in recent memory the program was funded by the House and not eliminated The funding increase requested by ME/CFS Advocacy Day was not included. Yet...

From the video description