solve mecfs initiative

  1. Emily Taylor

    USA: Disability Insurance for ME/CFS

    July 2019 Solve ME Webinar: Disability Insurance for ME/CFS Disability Insurance Attorney Andrew Kantor from Kantor & Kantor, LLP joins us to explain the ins and outs of filing for disability under an ERISA (employer-sponsored) Policy when disabled from ME/CFS. Register for the webinar here...
  2. Andy

    Researcher Interactions Video: Science for ME Q&A with Dr Sadie Whittaker from Solve ME/CFS Initiative, May 2019

    The Science for ME forum are delighted to talk to Dr Sadie Whittaker from Solve ME/CFS Initiative about Solve's work, in particular their patient registry, related app and biobank, as well as their Ramsay Award programme, that awards grants to fund much needed research into ME/CFS and which, at...
  3. Emily Taylor

    Advocacy Action: Urge Your Senator to Support ME/CFS Resolution

    Your Advocacy in Action: Our ME/CFS Senate Resolution is Moving! Thanks to your efforts during ME/CFS Advocacy Week, Senators Markey and Collins will be introducing our resolution recognizing International ME/CFS Awareness Day. This is the last chance to urge your Senator to be a part of this...
  4. Andy

    Solve ME/CFS Initiative: Webinar, "Paths Forward in Research and Advocacy: Reflections on the 2019 NIH ME/CFS Conference", 25th April 2019

    Register at https://register.gotowebinar.com/register/6221975071436912643
  5. Andy

    ME/CFS Alert, Episode 106: Interview with Sadie Whittaker, Chief Scientific Officer, Solve ME/CFS Initiative

    Copy and paste link https://youtu.be/8WlTkH_Wnsg Quite nice timing. I'm due to, finally, do my Q&A with Sadie later this month, if this video inspires a question you'd like me to ask her then add it to this thread...
  6. Andy

    #MEAction: Celebrating Our Wins for ME!

    https://www.meaction.net/2019/04/11/celebrating-our-wins-for-me/
  7. Andy

    Solve ME/CFS Initiative Launches Ramsay Award Program Microsite

    https://solvecfs.org/smci-ramsay-award-program/
  8. Cheshire

    Carol Head to leave her position as SMCI CEO

    https://solvecfs.org/an-important-update-from-carol-head-at-smci/
  9. Emily Taylor

    ME/CFS Advocacy Week Online Training Part 1: Best Practices for a Successful Advocacy Meeting

    ME/CFS Advocacy Week Online Training Part 1: Best Practices for a Successful Advocacy Meeting Wednesday, March 13, 2019 1:00 PM - 2:00 PM EDT//10:00 AM - 11:00 AM PDT Solve ME/CFS Initiative and #MEAction present an online workshop to help you host a successful meeting as part of ME/CFS...
  10. Andy

    Solve ME/CFS Initiative: Register now for the EmPOWER M.E. Roundtable Livestream!

    Solve ME/CFS Initiative (SMCI) is hosting our first ever EmPOWER M.E. Roundtable on April 2, 2019 moderated by Board Certified Patient Advocate, Sharon Stevenson, DVM PhD. As part of Advocacy Week in Washington DC, this event is free for all who attend and will also be livestreaming online for...
  11. Andy

    Solve ME/CFS Initiative: ME/CFS Advocacy Week and DC Lobby Day 2019

    http://lobby19.solvecfs.org/ ETA: correcting link.
  12. Andy

    Video: Carol Head: "ME As A Worldwide Civil Rights Issue"

  13. Andy

    Solve ME/CFS Initiative: 2018 Ramsay Class Receives Supplemental Funding to Support Innovative Projects from New Investigators

    http://go.solvecfs.org/webmail/192652/94324627/24015c72674826bb6afeb2b821c459697133845373a35af1590d299b6891b413
  14. Andy

    Solve ME/CFS Initiative: 2018 ME/CFS Research Summary (2 versions)

    https://medium.com/@rochellejoslyn/2018-me-cfs-research-summary-9fe3f60b2f48 Link to interactive version hosted by Solve, https://solvecfs.org/me-cfs-research-a-year-in-review/
  15. Sly Saint

    Dr. Jose Montoya On Believing ME/CFS Patients

    " SolveCFS Published on Dec 12, 2018 At a recent SMCI gathering in Redwood City, Dr. Jose Montoya, a clinician who has fought for people with ME/CFS for nearly two decades, addressed those who suffer from ME/CFS on behalf of all clinicians. Dr. Montoya is a powerful and caring ally, and we were...
  16. Binkie4

    Genome-epigenome interactions associated with ME/CFS, 2018, McGowan et al.

    https://www.tandfonline.com/doi/full/10.1080/15592294.2018.1549769?scroll=top&needAccess=true Abstract published. Article behind a paywall. Research financed by Solve ME/cfs.
  17. Andy

    Solve ME/CFS Initiative: "Congress to HHS: What's replacing CFSAC?" [easy form to fill in to contact your reps]

    https://solvecfs.secure.force.com/actions/kwac__takeaction?actionId=AR00042&cid=
  18. MeSci

    University of Minnesota ME/CFS Medical Education Event

    Station: University of Minnesota / SMCI / YouTube Date: November 13, 2018 WebTV: Item: Medical education ME/CFS-event at the University of Minnesota On November 7, SMCI in partnership with the Minnesota ME/CFS Alliance co-sponsored a medical education event at the University of Minnesota...
  19. Kalliope

    Solve ME/CFS Initiative and #MEAction lead 10 organizations in request for ME/CFS legislation

    Ten organisations ask congress to create legislation for ME/CFS On Friday, November 2nd, #MEAction, the Solve ME/CFS Initiative, and eight other ME/CFS organizations sent a letter to our champions in the House of Representatives – Representatives Eshoo (CA18), Lofgren (CA19), McGovern (MA02)...
  20. MeSci

    Join discussion with SMCI's Chief Scientific Officer, Sadie Whittaker, PhD

    Source: Solve ME/CFS Initiative Date: November 29, 2018 Time: 18:00-19:00 UTC URL: https://register.gotowebinar.com/register/5744870584301904899 You + M.E.: A community resource, built by the community -------------------------------------------------------- In 2010, Solve ME/CFS Initiative...
Back
Top Bottom