survey

Here is the email I received from the Younger lab with the link to the survey and nothing about your data privacy (which I then asked Younger to supply via email, haven't heard yet from them). (Beginning of the email, in full): "Here at the Neuroinflammation, Pain, and Fatigue Laboratory we...

Work is continuing to develop a new M.E. and CFS Service in Suffolk and North East Essex. A survey has been created which is focused on establishing the priorities of patients, taking into account the new NICE Guidelines. Resources will be limited, so we need to establish what is most important...

I haven't fill this in myself so far. https://www.surveymonkey.com/r/8NWFDC2 COVID-19 impact on healthcare management of people with chronic diseases Questionnaire for individual patients What is the survey about? This survey seeks to map the impact that COVID-19 has had on diagnosis...

Post copied from the News from Scandinavia thread Survey by the Norwegian ME Association. From OMF email: This survey is in English and is open for anyone with ME/CFS to participate. Caregivers may answer on behalf of patients who are too ill to complete the survey themselves. The survey...

Abstract Background: Long COVID, an illness affecting a subset of individuals after COVID-19, is distressing and poorly understood. Exploring the experiences of people with long COVID could help inform current conceptualizations of the illness, guide supportive care strategies, and validate...

This post has been copied and following posts moved from this thread: Physios for ME

"A major survey has shown the significant – and often unique – barriers faced by people with energy-limiting conditions (ELC). Nearly every survey respondent (98 per cent) said that lack of understanding of ELC was a barrier to inclusion. The second biggest barrier revealed by the survey was...

Abstract We surveyed all articles in the Journal of Personality and Social Psychology (JPSP), Psychological Science (PS), and the Journal of Experimental Psychology: General (JEP:G) that mentioned the term “Likert,” and found that 100% of the articles that analyzed ordinal data did so using a...

From a Chronic Illness Inclusion email; Focus groups on disability benefit assessments Chronic Illness Inclusion wants to hear your experiences of both the Work Capability Assessment (WCA) AND Personal Independence Payments (PIP) assessments. We want your ideas for how to make the ‘claim...

Posts consolidated from a number of threads - apologies if the posts do not completely flow Covid-19 vaccination experiences News from Aotearoa/New Zealand and the Pacific Islands

"You are invited to participate in a research study. The purpose of this study is to determine how well we can measure self-rated function in people with post-exertional malaise/post-exertional symptom exacerbation (PEM/PESE)." https://www.surveymonkey.com/r/PEMPESESurveyStudy

This information is from the ME Action website, see http://www.meaction.net/2017/10/30/new-living-w-me-support-group-2/ The November and December schedule for the Living w/ ME Support Group has just been announced: Sunday, November 12: Avoiding Crashes Sunday, December 10: Surviving the...

From the website: Support #MyNeuroSurvey and help improve neuro services Take My Neuro Survey online here. Take My Neuro Survey now Or call the survey partners, Quality Health on 0800 783 1775 (Freephone) to: hear and complete the survey over the phone in any language ask for a paper copy to...

SAGE Open Nursing "Can Someone as Young as You Really Feel That Much Pain?" - A Survey on How People With Fibromyalgia Experience Healthcare in Sweden - Hasselroth et al - 2021 Research show that fibromyalgia has low credibility in healthcare, leading to poor treatment, lack of knowledge and...

From PATIENTS ASSOCIATION Newsletter, They are collecting info on patient experience via a short survey (closes this w/e) "NHS England has conducted a review of non-emergency patient transport services (NEPTS). These services help people to get to NHS appointments if they are not able to travel...

This survey is part of a collaboration between Disability Rights UK and Chronic Illness Inclusion. The aim of this survey is to explore 1) Whether people with different energy-limiting health conditions and impairments are interested in working together on issues of social justice and...

" Channel 4 Dispatches Survey: Disability Benefits Channel 4 is making a Dispatches programme on how the disability benefits process, as implemented by the Department for Work and Pensions (DWP), affects disabled people’s health and state of mind. This survey aims to understand the impact of...

"Introduction Please complete this short survey to help us improve how we write and present our guidance. Your feedback is key to help us ensure our guidance is useful, useable and used. We think it will take you around 15 minutes to complete."...

https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2782140