survey

Fear of COVID fades even as virus remains a ‘significant threat,’ survey reveals https://www.sfchronicle.com/health/article/survey-covid-fear-fades-even-virus-remains-18940241.php

https://www.sciencedirect.com/science/article/pii/S2405844024030627 Identifying the mental health burden in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) patients in Switzerland: A pilot study Rahel Susanne König, Daniel Henry Paris, Marc Sollberger, Rea Tschopp PII...

Abstract Purpose The complexity of long COVID and its diverse symptom profile contributes to unprecedented challenges for patients, clinicians, and healthcare services. The threat of long COVID remains ignored by Governments, the media and public health messaging, and patients’ experiences must...

Introduction: Functional neurological disorder (FND) presents motor, sensory, and cognitive symptoms characterized by clinical signs incongruent with known neurological disease. Together with other health professionals, like neurologists, psychiatrists can play an essential role in diagnosing...

First major survey of doctors with Long Covid reveals debilitating impact on health, life and work by BMA media team Press release from the BMA Location: UK Published: Tuesday 4 July 2023 Key findings include: Doctors reported a wide range of symptoms, including fatigue, headaches, muscular...

https://www.longcovidkids.org/post/feedback-on-the-long-covid-clinics-preliminary-healthcare-experiences-survey-findings Long Covid Kids is an informal group of parents and others supporting or caring for children sick with LC. This isn't a formal survey, but it seems to have been necessary...

Full title: Impact of the COVID-19 pandemic on clinical autonomic practice in Europe A survey of the European Academy of Neurology (EAN) and the European Federation of Autonomic Societies (EFAS) Abstract Objective To investigate the impact of the coronavirus-disease-2019 (COVID-19) pandemic...

Hi everyone, I’m interested in any research or surveys which track the impact of a COVID infection on ME/CFS symptoms and/or functioning. I’ve found this Dutch survey, but the results are focussed on the impact of the pandemic more broadly, rather than the impact of a COVID infection. Does...

Here is the email I received from the Younger lab with the link to the survey and nothing about your data privacy (which I then asked Younger to supply via email, haven't heard yet from them). (Beginning of the email, in full): "Here at the Neuroinflammation, Pain, and Fatigue Laboratory we...

Work is continuing to develop a new M.E. and CFS Service in Suffolk and North East Essex. A survey has been created which is focused on establishing the priorities of patients, taking into account the new NICE Guidelines. Resources will be limited, so we need to establish what is most important...

I haven't fill this in myself so far. https://www.surveymonkey.com/r/8NWFDC2 COVID-19 impact on healthcare management of people with chronic diseases Questionnaire for individual patients What is the survey about? This survey seeks to map the impact that COVID-19 has had on diagnosis...

Post copied from the News from Scandinavia thread Survey by the Norwegian ME Association. From OMF email: This survey is in English and is open for anyone with ME/CFS to participate. Caregivers may answer on behalf of patients who are too ill to complete the survey themselves. The survey...

Abstract Background: Long COVID, an illness affecting a subset of individuals after COVID-19, is distressing and poorly understood. Exploring the experiences of people with long COVID could help inform current conceptualizations of the illness, guide supportive care strategies, and validate...

This post has been copied and following posts moved from this thread: Physios for ME

"A major survey has shown the significant – and often unique – barriers faced by people with energy-limiting conditions (ELC). Nearly every survey respondent (98 per cent) said that lack of understanding of ELC was a barrier to inclusion. The second biggest barrier revealed by the survey was...

Abstract We surveyed all articles in the Journal of Personality and Social Psychology (JPSP), Psychological Science (PS), and the Journal of Experimental Psychology: General (JEP:G) that mentioned the term “Likert,” and found that 100% of the articles that analyzed ordinal data did so using a...

From a Chronic Illness Inclusion email; Focus groups on disability benefit assessments Chronic Illness Inclusion wants to hear your experiences of both the Work Capability Assessment (WCA) AND Personal Independence Payments (PIP) assessments. We want your ideas for how to make the ‘claim...

Posts consolidated from a number of threads - apologies if the posts do not completely flow Covid-19 vaccination experiences News from Aotearoa/New Zealand and the Pacific Islands

"You are invited to participate in a research study. The purpose of this study is to determine how well we can measure self-rated function in people with post-exertional malaise/post-exertional symptom exacerbation (PEM/PESE)." https://www.surveymonkey.com/r/PEMPESESurveyStudy

This information is from the ME Action website, see http://www.meaction.net/2017/10/30/new-living-w-me-support-group-2/ The November and December schedule for the Living w/ ME Support Group has just been announced: Sunday, November 12: Avoiding Crashes Sunday, December 10: Surviving the...