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survey

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  1. Andy
    Thread

    UK: The Neurological Alliance: "My Neuro" survey, 2021 (close 6th Feb 2022)

    From the website: Support #MyNeuroSurvey and help improve neuro services Take My Neuro Survey online here. Take My Neuro Survey now Or call the...
    Thread by: Andy, Oct 25, 2021, 8 replies, in forum: General ME/CFS news
  2. Kalliope
    Thread

    "Can someone as Young as You Really Feel That Much Pain?" - A survey on How People With Fibromyalgia Experience Healthcare in Sweden, 2021, Hasselroth

    SAGE Open Nursing "Can Someone as Young as You Really Feel That Much Pain?" - A Survey on How People With Fibromyalgia Experience Healthcare in...
    Thread by: Kalliope, Oct 11, 2021, 17 replies, in forum: 'Conditions related to ME/CFS' news and research
  3. MEMarge
    Thread

    UK survey - Changes to eligibility for non emergency patient transport

    From PATIENTS ASSOCIATION Newsletter, They are collecting info on patient experience via a short survey (closes this w/e) "NHS England has...
    Thread by: MEMarge, Oct 1, 2021, 1 replies, in forum: General disability topics and advocacy
  4. Andy
    Thread

    Disability Rights UK/Chronic Illness Inclusion evidence gathering survey on potential collaboration between different illness groups, closes 25th Sept

    This survey is part of a collaboration between Disability Rights UK and Chronic Illness Inclusion. The aim of this survey is to explore 1)...
    Thread by: Andy, Sep 4, 2021, 1 replies, in forum: General disability topics and advocacy
  5. Sly Saint
    Thread

    UK: Survey for C4 Dispatches on Disability Benefits system, deadline end of August 2021

    " Channel 4 Dispatches Survey: Disability Benefits Channel 4 is making a Dispatches programme on how the disability benefits process, as...
    Thread by: Sly Saint, Aug 29, 2021, 3 replies, in forum: Work, Finances and Disability Insurance
  6. Sly Saint
    Thread

    Survey:Improving NICE guidance

    "Introduction Please complete this short survey to help us improve how we write and present our guidance. Your feedback is key to help us...
    Thread by: Sly Saint, Aug 21, 2021, 16 replies, in forum: Other health news and research
  7. JohnTheJack
    Thread

    Clinician Conceptualization of the Benefits of Treatments for Individual Patients, 2021, Morgan, Pineles et al

    https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2782140 Key Points Question How do clinicians conceptualize the benefits of...
    Thread by: JohnTheJack, Aug 12, 2021, 2 replies, in forum: Other health news and research
  8. Sly Saint
    Thread

    Survey: what explanations GPs use for conditions that have no agreed biomedical cause and the impact of those explanations on social support & stigma.

    [MEDIA]
    Thread by: Sly Saint, Aug 2, 2021, 7 replies, in forum: General ME/CFS news
  9. Sly Saint
    Thread

    Wales: WAMES survey – NICE guidance in Wales

    Survey – Do GPs in Wales use NICE guidance? People with ME are looking forward to the publication of the revised NICE guidance, expected on 18th...
    Thread by: Sly Saint, Jul 19, 2021, 0 replies, in forum: General ME/CFS news
  10. Andy
    Thread

    UK: Equality & Human Rights Commision: Inquiry into challenging decisions about adult social care [includes survey], closes 15th Sept 21

    Our action We have launched an inquiry into how older and disabled adults and unpaid carers can challenge local council decisions about social...
    Thread by: Andy, Jul 19, 2021, 2 replies, in forum: General disability topics and advocacy
  11. Arnie Pye
    Thread

    Response to Women's Health Survey from Improve Thyroid Treatment group

    The response to the Women's Health Survey from the ITT (Improve Thyroid Treatment) group can be found here :...
    Thread by: Arnie Pye, Jun 18, 2021, 7 replies, in forum: Other health news and research
  12. Wyva
    Thread

    2021 Pan-Europe ME Patient Survey (EMEA)

    (I wasn't sure where to post it, so feel free to move it to the appropriate subforum if there's a better one.) In short, they want to do...
    Thread by: Wyva, May 11, 2021, 55 replies, in forum: Advocacy Projects and Campaigns
  13. MatthiasRiem
    Thread

    '"Together against Post-Covid" Initiative' (survey), University Hospital Tübingen (Germany), May 2021

    At University Hospital Tübingen, Germany, a "group of scientists from various disciplines interested in questions regarding Post-Covid that are...
    Thread by: MatthiasRiem, May 6, 2021, 1 replies, in forum: Long Covid news
  14. Andy
    Thread

    UK: BBC survey: the experiences of disabled people in the UK during the Covid-19 pandemic

    "How has Covid–19 affected you? @BBCNews wants to hear from deaf & disabled people. What impact has the pandemic had on your health, your...
    Thread by: Andy, Apr 27, 2021, 3 replies, in forum: General disability topics and advocacy
  15. Sly Saint
    Thread

    University of Bath Psychology dept: Fatigue in Neuromuscular Conditions, 2021, current PhD research project

    [MEDIA] Fatigue in Neuromuscular Conditions Parent Information Sheet Your child is being invited to take part in a research study. Before...
    Thread by: Sly Saint, Apr 18, 2021, 6 replies, in forum: Other psychosomatic news and research
  16. Wyva
    Thread

    Specifics of chronic fatigue syndrome coping strategies identified in a French flash survey during the COVID‐19 containment, 2021, Moncorps et al

    Abstract The COVID‐19 pandemic has focused health systems on supporting patients affected by this virus. Meanwhile in the community, many other...
    Thread by: Wyva, Apr 8, 2021, 31 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  17. Andy
    Thread

    Research survey: Young Disabled People’s Views and Experiences of Disability Activism across Europe

    Is your age within the range of 18 to 35? Do you identify as a disabled person? Do you currently live in a European State? Do you have experience...
    Thread by: Andy, Apr 5, 2021, 1 replies, in forum: General disability topics and advocacy
  18. Andy
    Thread

    UK govt: Open consultation: Women's Health Strategy: Call for Evidence

    Executive summary We are seeking your views to help inform the development of the government’s Women’s Health Strategy. This call for evidence is...
    Thread by: Andy, Mar 29, 2021, 8 replies, in forum: General disability topics and advocacy
  19. ME/CFS Skeptic
    Thread

    The course of the illness for ME patients in Norway, 2021, Schei and Angelsen

    The Norwegian ME Association just published an impressive survey on 5.822 ME patients in Norway. An English summary is available here:...
    Thread by: ME/CFS Skeptic, Mar 11, 2021, 42 replies, in forum: ME/CFS research
  20. Amw66
    Thread

    Engaging with severly affected - surveys etc ( PLP survey coming up)

    Advocacy work can involve surveys - online/ telephone/ hard copy. Much of the time, those who are most severly affected can find it difficult to...
    Thread by: Amw66, Mar 1, 2021, 1 replies, in forum: General Advocacy Discussions
Showing results 21 to 40 of 107
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