survey

From the website: Support #MyNeuroSurvey and help improve neuro services Take My Neuro Survey online here. Take My Neuro Survey now Or call the survey partners, Quality Health on 0800 783 1775 (Freephone) to: hear and complete the survey over the phone in any language ask for a paper copy to...

SAGE Open Nursing "Can Someone as Young as You Really Feel That Much Pain?" - A Survey on How People With Fibromyalgia Experience Healthcare in Sweden - Hasselroth et al - 2021 Research show that fibromyalgia has low credibility in healthcare, leading to poor treatment, lack of knowledge and...

From PATIENTS ASSOCIATION Newsletter, They are collecting info on patient experience via a short survey (closes this w/e) "NHS England has conducted a review of non-emergency patient transport services (NEPTS). These services help people to get to NHS appointments if they are not able to travel...

This survey is part of a collaboration between Disability Rights UK and Chronic Illness Inclusion. The aim of this survey is to explore 1) Whether people with different energy-limiting health conditions and impairments are interested in working together on issues of social justice and...

" Channel 4 Dispatches Survey: Disability Benefits Channel 4 is making a Dispatches programme on how the disability benefits process, as implemented by the Department for Work and Pensions (DWP), affects disabled people’s health and state of mind. This survey aims to understand the impact of...

"Introduction Please complete this short survey to help us improve how we write and present our guidance. Your feedback is key to help us ensure our guidance is useful, useable and used. We think it will take you around 15 minutes to complete."...

https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2782140

Survey – Do GPs in Wales use NICE guidance? https://wames.org.uk/cms-english/survey-do-gps-in-wales-use-nice-guidance/

Our action We have launched an inquiry into how older and disabled adults and unpaid carers can challenge local council decisions about social care and support in England and Wales. Survey now open We’ve launched a survey to hear from those affected by the issues covered by our inquiry...

The response to the Women's Health Survey from the ITT (Improve Thyroid Treatment) group can be found here : https://drive.google.com/file/d/1sK6d8LManRI3mMIDT5nERThwRPOZlnRT/view I thought it might be of interest since so many people with ME also have thyroid disease of some kind. And I...

(I wasn't sure where to post it, so feel free to move it to the appropriate subforum if there's a better one.) In short, they want to do something like that pretty interesting Norwegian survey with 6000 pwME participating that showed there was a peak in onsets in 2009, probably due to H1N1...

At University Hospital Tübingen, Germany, a "group of scientists from various disciplines interested in questions regarding Post-Covid that are relevant to [clinical] practice ["praxisrelevant"]" has designed a set of surveys (one for patients, one for doctors and one for other health...

"How has Covid–19 affected you? @BBCNews wants to hear from deaf & disabled people. What impact has the pandemic had on your health, your disability, your life? Share your experiences with us, it won't take long" https://www.smartsurvey.co.uk/s/BBCDisabilityCovid19/

https://bathpsychology.eu.qualtrics.com/jfe/form/SV_e3Q1UfPb2trpOol

Abstract The COVID‐19 pandemic has focused health systems on supporting patients affected by this virus. Meanwhile in the community, many other contained patients could only use self‐care strategies, especially in countries that have set up a long and strict containment such as France. The...

Is your age within the range of 18 to 35? Do you identify as a disabled person? Do you currently live in a European State? Do you have experience or are interested in disability activism and disability politics? If you answered yes to these questions then please consider taking part in this...

Executive summary We are seeking your views to help inform the development of the government’s Women’s Health Strategy. This call for evidence is seeking to collect views on women’s health. It will run for a period of 12 weeks and is open to everyone aged 16 and over. The easiest way to...

The Norwegian ME Association just published an impressive survey on 5.822 ME patients in Norway. An English summary is available here: https://me-foreningen.no/wp-content/uploads/2021/03/Norwegian-ME-Association-2021-Report-on-the-course-of-illness-English-summary.pdf

Advocacy work can involve surveys - online/ telephone/ hard copy. Much of the time, those who are most severly affected can find it difficult to engage with this unless a fanily member/ carer can assist them- some may struggle to have this assistance. The PLP will feature a survey and there are...