survey

https://www.gov.uk/government/news/citizen-space-survey-national-strategy-for-disabled-people AfME article on this, https://www.actionforme.org.uk/news/national-strategy-for-disabled-people-have-your-say/

This isn't new, but I don't think it has been highlighted much, if at, all online Table listing the percentage of Canadians with chronic fatigue syndrome, fibromyalgia, multiple chemical sensitivity, etc. who have 19 specific co-morbidities, based on a official survey See pages 5-8...

'Results of probably the largest-ever survey of opinion among people with ME/CFS and their carers about what treatments and therapies work for them and what don’t are available for downloading. The link to the PDF is at the bottom of this story. The survey also shows what people with the...

https://www.smartsurvey.co.uk/s/GX4HMU/ I took the survey and it did only take 10 minutes. Wanted to know your symptoms, medications and treatments. https://me-pedia.org/wiki/Derek_Pheby

https://sapc.ac.uk/conference/2017/abstract/effect-of-cbt-get-and-pacing-treatments-mecfs-symptoms-analysis-of-patient

https://www.emerge.org.au/health-and-wellbeing-survey-2019

https://patientresearchcovid19.com/survey2/

http://whri.org/calling-all-physicians-specialists-allied-health-clinical-operations-leads-and-other-clinicians/ eta: also here https://www.bcmj.org/blog/seeking-physicians-input-what-your-experience-myalgic-encephalomyelitis

details here http://sacfs.asn.au/news/2020/07/07_02_survey_making_the_invisible_visible.htm @Penelope McMillan

From an email from The Neurological Alliance. Please tell us about your experiences during COVID-19 We want to know how you have been impacted by COVID-19, and how your treatment, care and support may have changed. We are emailing you because you previously completed the Neurological Alliance...

A project from what seems to be the Stanford Division of Pain Medicine surveying the patient community over the notion of pain catastrophising and how to better define and label it. I did not manage to offer an alternative name. I am not fond of the proffered alternatives either. It's pretty...

Originally intended to be published in a journal, Dr Hng has decided instead to release this into the public domain. https://drive.google.com/file/d/1R6MgsNuEjdj1fsfJds5bJ2MAACSogOXn/view Post on her Facebook page https://www.facebook.com/DrHng/posts/922049561548938

https://www.surveymonkey.co.uk/r/3MZWGQV From the email I received highlighting the survey

Note from Moderators: IiME created the EMEA, and also the EMECC (Clinicians Council) and the EMERG (Research Group). The EMEA is a member of EFNA (the European Federation of Neurological Associations). A number of threads have been merged to create this thread. ******************** Invest...

Stanford have a study to look at the effect of care giving during COVID-19 pandemic. It doesn't have to be of someone with COVID-19. This is a great opportunity to have input from ME caregivers. https://redcap.stanford.edu/surveys/index.php?s=RFL8CHMT3H DESCRIPTION: You are invited to...

http://covid19-survey.org/

TIME FOR A PROFESSIONAL RETHINK ON ME : Your heart is as important as your head - blog by Jane Colby https://uttingwolffspouts.com/2018/05/12/when-children-dont-get-well/

I just came across this survey but I can't see when it's from or how it came about. see tweet in Andys post below https://www.smartsurvey.co.uk/s/myalgicencephalomyelitissurvey anyone know anything about it? @chicaguapa eta: who's the rep for #MEaction Scotland here?

Cayla M Fappiano, USAF, James N Baraniuk, MD https://academic.oup.com/milmed/advance-article/doi/10.1093/milmed/usz471/5721123?searchresult=1

Hi all, Please consider completing this research survey from Marta Encefalomielitis Miálgica on Facebook's son : Hello! I am a fourth-year student at the University of Aberdeen studying a joint honours degree in International Relations-Sociology. I am currently doing my Bachelor's...