united kingdom

  1. Sly Saint

    United Kingdom: Humber CFS service

    Humber teaching hospital service is under Adult Mental Health Services Chronic Fatigue Syndrome Service (CFS) The Team provides a multi-disciplinary service for adult patients with a diagnosis of Chronic Fatigue Syndrome (CFS). No mention of ME anywhere, nor the NICE guidelines...
  2. Sly Saint

    United Kingdom: London - Royal Free Hospital CFS services

    Royal Free Hospital https://www.royalfree.nhs.uk/services/services-a-z/fatigue-service/chronic-fatigue-syndrome-treatment/ recommended reading still Fatigue Overcoming chronic fatigue: a self-help guide using cognitive behavioural techniques (Mary Burgess and Trudie Chalder) Coping better...
  3. Sly Saint

    United Kingdom: NHS East Kent Hospitals University - CFS/ME

    Chronic Fatigue Syndrome (CFS) / Myalgic Encephalopathy (ME) and Physiotherapy: Information leaflet pdf link here...
  4. Andy

    UK Government ME/CFS Delivery Plan consultation

    Mod note: This thread is now closed. Thread on the published plan: UK Government Delivery Plan for ME/CFS, published 22nd July 2025 Mod note: This thread was previously specifically for the UK Attitudes and Education Working Group, one of three groups in the government's ME/CFS Delivery Plan...
  5. Sly Saint

    BABCP 50th Annual Conference: Imperial College London 20-23 July 2022

    Programme Schedule: https://babcp2022.org/wp-content/uploads/2022/05/Programme-ScheduleFriday.pdf
  6. InitialConditions

    United Kingdom: UKCRC (UK Clinical Research Collaboration) Subgroup on ME (part of the UK Government ME/CFS Delivery Plan)

    Mod note: There are three groups in the UK government's ME/CFS Delivery Plan of which the Research Working Group is one. The other two groups, and the Delivery Plan as a whole are discussed on this thread: UK: UK Government ME/CFS Delivery Plan (includes Attitudes and Education Working Group...
  7. Andy

    United Kingdom: Oxford Long Covid clinic (includes The Long Covid Self-Help Guide. Practical Ways To Manage Symptoms)

    Moved from the Long Covid in the media thread Book review of The Long Covid Self-Help Guide. Practical Ways To Manage Symptoms by Trish Greenhalgh "The combination of these and other symptoms, along with the fluctuating course (good days interspersed with bad days, and certain activities...
  8. Andy

    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    Statement My Rt Hon Friend the Secretary of State for Health and Social Care (Sajid Javid) has made the following written statement: Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) affects the lives of children and adults across the country. It can be an incredibly disabling...
  9. Wyva

    Preprint: Does pre-infection stress increase the risk of long COVID? Longitudinal associations between adversity worries (...), 2022, Paul, Fancourt

    Full title: Does pre-infection stress increase the risk of long COVID? Longitudinal associations between adversity worries and experiences in the month prior to COVID-19 infection and the development of long COVID and specific long COVID symptoms Abstract Background Long COVID is increasingly...
  10. Sly Saint

    United Kingdom: Hackney - Homerton Chronic Fatigue Service + Post Covid-19 service

    job ad Highly Specialist Pain Physiotherapist | Homerton University Hospital NHS Foundation Trust https://findajob.dwp.gov.uk/details/7729422
  11. InitialConditions

    United Kingdom: Nottingham ME/CFS Service

    Copied post. This thread has been created to discuss the Nottingham service and their online materials. There are some issues with this that I've flagged with FME. They've done the bare minimum and the webpage still needs lots of work. Do we have a thread here where we have discussed the...
  12. Andy

    To the emergency room and back again: Circular healthcare pathways for acute functional neurological disorders, 2022, Williams et al

    Highlights We prospectively identified acute FND referrals in a UK city hospital. Dynamic, moving maps of patient pathways show loops around recurrent ED attendance. Rates of appropriate FND care are low, including documented diagnosis. Better practice FND care is associated with reduced risk...
  13. rvallee

    University of York, UK - STIMULATE-ICP - Online questionnaire based study about Integrated Care Pathways for chronic illnesses

    Copied from the Long Covid thread This BPS-focused questionnaire is open to everyone with a long-term chronic illness. Its explicit aim is to build support for a BPS approach to LC. You know what to do: answer honestly. It's short, about 5-10 minutes.
  14. rvallee

    United Kingdom: Long Covid Kids

    Edit: another one Did the BBC ever cover the Millions Missing protests? Not mad about this coverage, but the only difference here is perception, this is essentially the same issue.
  15. Ian NeuroProActive

    UK company Neuro ProActive

    Dear all, It’s great to be part of this forum. Neuro ProActive is a web and app based, therapist led digital platform for the rehabilitation and management of long-term neurological conditions. We support six allied health professional disciplines; Physios, Occupational Therapists, Speech and...
  16. Jonathan Edwards

    Implementation statement in support of ME/CFS diagnosis and management, NICE, draft published for consultation

    Moved from the UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion thread. Dear Jonathan Further to the email sent last week, please find attached the draft implementation statement in support of our guidance on the diagnosis and management of myalgic...
  17. MarianaLewis

    Closed 2022 UK Recruiting: narrative inquiry exploring the school experiences of teenagers with ME/CFS (doctoral research)

    Hello, Thank you for being so welcoming on this forum. My name is Mariana, I'm currently doing a professional doctorate in Educational Psychology at the University of Bristol (School of Policy Studies), and I am researching the school experiences of teenagers with ME/CFS for my thesis. A...
  18. L

    UK: Specialist Rehabilitation Medicine Services for ME/CFS and Long Covid

    Moved post This post may be taking the current discussion slightly off track, but I didn't intend it to as my first immediate thought when reading the opinion piece was the RCP's refusal to champion the new guidelines has influenced such propaganda, so I thought I would check to see if they...
  19. Andy

    UK: Office of National Statistics: COVID-19 Schools Infection Survey, England: mental health and long COVID reports

    COVID-19 Schools Infection Survey, England: mental health and long COVID, November to December 2021 "1.Main points Since March 2020, 1.0% of primary school-aged pupils and 2.7% of secondary school-aged pupils met the Delphi criteria for having experienced long COVID lasting at least 12 weeks...
  20. Andy

    Burnout and long COVID among the UK nephrology workforce: results from a national survey...., 2022, Selvaskandan et al

    Full title: Burnout and long COVID among the UK nephrology workforce: results from a national survey investigating the impact of COVID-19 on working lives ABSTRACT Background The coronavirus disease 2019 (COVID-19) pandemic is placing a significant strain on healthcare. We conducted a...
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