Humber teaching hospital
service is under Adult Mental Health Services
Chronic Fatigue Syndrome Service (CFS)
The Team provides a multi-disciplinary service for adult patients with a diagnosis of Chronic Fatigue Syndrome (CFS).
No mention of ME anywhere, nor the NICE guidelines...
Royal Free Hospital
https://www.royalfree.nhs.uk/services/services-a-z/fatigue-service/chronic-fatigue-syndrome-treatment/
recommended reading still
Fatigue
Overcoming chronic fatigue: a self-help guide using cognitive behavioural techniques (Mary Burgess and Trudie Chalder)
Coping better...
Mod note: This thread is now closed.
Thread on the published plan:
UK Government Delivery Plan for ME/CFS, published 22nd July 2025
Mod note:
This thread was previously specifically for the UK Attitudes and Education Working Group, one of three groups in the government's ME/CFS Delivery Plan...
Mod note:
There are three groups in the UK government's ME/CFS Delivery Plan of which the Research Working Group is one. The other two groups, and the Delivery Plan as a whole are discussed on this thread:
UK: UK Government ME/CFS Delivery Plan (includes Attitudes and Education Working Group...
Moved from the Long Covid in the media thread
Book review of The Long Covid Self-Help Guide. Practical Ways To Manage Symptoms by Trish Greenhalgh
"The combination of these and other symptoms, along with the fluctuating course (good days interspersed with bad days, and certain activities...
Statement
My Rt Hon Friend the Secretary of State for Health and Social Care (Sajid Javid) has made the following written statement:
Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) affects the lives of children and adults across the country. It can be an incredibly disabling...
Full title: Does pre-infection stress increase the risk of long COVID? Longitudinal associations between adversity worries and experiences in the month prior to COVID-19 infection and the development of long COVID and specific long COVID symptoms
Abstract
Background Long COVID is increasingly...
Copied post. This thread has been created to discuss the Nottingham service and their online materials.
There are some issues with this that I've flagged with FME. They've done the bare minimum and the webpage still needs lots of work.
Do we have a thread here where we have discussed the...
Highlights
We prospectively identified acute FND referrals in a UK city hospital.
Dynamic, moving maps of patient pathways show loops around recurrent ED attendance.
Rates of appropriate FND care are low, including documented diagnosis.
Better practice FND care is associated with reduced risk...
Copied from the Long Covid thread
This BPS-focused questionnaire is open to everyone with a long-term chronic illness. Its explicit aim is to build support for a BPS approach to LC. You know what to do: answer honestly. It's short, about 5-10 minutes.
Edit: another one
Did the BBC ever cover the Millions Missing protests? Not mad about this coverage, but the only difference here is perception, this is essentially the same issue.
Dear all,
It’s great to be part of this forum.
Neuro ProActive is a web and app based, therapist led digital platform for the rehabilitation and management of long-term neurological conditions.
We support six allied health professional disciplines; Physios, Occupational Therapists, Speech and...
Moved from the UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion thread.
Dear Jonathan
Further to the email sent last week, please find attached the draft implementation statement in support of our guidance on the diagnosis and management of myalgic...
Hello,
Thank you for being so welcoming on this forum.
My name is Mariana, I'm currently doing a professional doctorate in Educational Psychology at the University of Bristol (School of Policy Studies), and I am researching the school experiences of teenagers with ME/CFS for my thesis.
A...
Moved post
This post may be taking the current discussion slightly off track, but I didn't intend it to as my first immediate thought when reading the opinion piece was the RCP's refusal to champion the new guidelines has influenced such propaganda, so I thought I would check to see if they...
COVID-19 Schools Infection Survey, England: mental health and long COVID, November to December 2021
"1.Main points
Since March 2020, 1.0% of primary school-aged pupils and 2.7% of secondary school-aged pupils met the Delphi criteria for having experienced long COVID lasting at least 12 weeks...
Full title: Burnout and long COVID among the UK nephrology workforce: results from a national survey investigating the impact of COVID-19 on working lives
ABSTRACT
Background
The coronavirus disease 2019 (COVID-19) pandemic is placing a significant strain on healthcare. We conducted a...
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