2021 Appointment of Professor Leslie Findley to be patron of the MEA - starts in this post, notice of his withdrawal here 2024 AGM, company...
Bristol M.E. Service: Supporting people with M.E./CFS and PVFS across Gloucestershire, Bristol and North Somerset We have renamed our Service...
I thought it could be of interest to some people here, though I only had a very quick look myself. 172 pages....
"Government discussions with the National Institute for Health and Care Excellence about myalgic encephalomyelitis and chronic fatigue syndrome –...
Abstract Background and Objectives: There is some evidence that knowledge and understanding of ME among doctors is limited. Consequently, an audit...
Highlights • Long Covid is a patient-defined illness which gained legitimacy in online communities. • We analysed long Covid narratives using...
https://thesciencebit.net/2021/08/15/the-new-nice-guideline-for-me-cfs-ten-questions-answered/ This has been posted already, but I thought...
Full title: Long Covid in adults discharged from UK hospitals after Covid-19: A prospective, multicentre cohort study using the ISARIC WHO...
Split from NICE ME/CFS guideline - draft published for consultation - 10th November 2020 MEpedia states this on the page about the York Centre...
Hi guys now that the long awaited revision of the NICE guidance on ME/CFS is nearing completion (18th August) I thought I'd create a thread to...
https://domsalisbury.github.io/mecfs/bacme_dysregulation/ I have written more about the emerging theme of a 'dysregulation model of ME/CFS' from...
Unbelievable.............. [MEDIA]
"The ME Association is the only M.E. charity involved in the collection of post mortem tissue samples from people diagnosed with the disease in...
"This is an online group for Black and Black-mixed adults living with ME/CFS or Long-Covid in the UK. It is a safe space to share experiences and...
"In a follow up to her 2019 blog post, Dr Nina Muirhead discusses a recent surge in clinical interest in myalgic encephalomyelitis/chronic fatigue...
"Main points At 2 May 2021, an estimated 1.0 million people living in private households in the UK (1.6%) were experiencing self-reported long...
A thread for news from ME Research UK, starting with Funding: Investigating brain-stem dysfunction in ME/CFS using 7-Tesla MRI...
"The Commons Work and Pensions Committee is investigating the gap between the employment rates of disabled and non-disabled people and how the...
"How has Covid–19 affected you? @BBCNews wants to hear from deaf & disabled people. What impact has the pandemic had on your health, your...
What does it mean that the top investigators in a field of research have collectively and consistently misrepresented a seminal figure in their...
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