Abstract The National Institute for Health and Care Excellence (NICE) describe “post COVID-19 syndrome” or “Long COVID” as a set of persistent...
Less common, or less well-known or understood, health conditions such as auto-immune diseases, ME, epilepsy and MS can often go under the radar...
Moved from this thread It was suggested yesterday that this Member of the House of Lords local to me is joining Forward ME? She has been...
Executive summary We are seeking your views to help inform the development of the government’s Women’s Health Strategy. This call for evidence is...
Preprint " Abstract Background and objectives: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome ME/CFS is a common complex multi-system...
People with M.E. often ask us how they can get involved with research. If you haven't registered your interest to potentially take part in...
I imagine there is supposed to be a point somewhere in there but all I read is people saying if they had been tasked with it they would have done...
I found out by accident some time ago that my award has been extended. I needed an up-to-date award letter to renew my Blue Badge, and when they...
This thread has been split from a thread discussing a book about Ron Davis: The Puzzle Solver by Tracie White I've been following ME/CFS...
Join us for the launch of our bold and ambitious new strategy. At the event, you'll hear directly from our leadership team. They'll be discussing...
ME (or CFS as some still call it) is a chronic neurological condition that affects around 250,000 people across the UK, 75% are too unwell to work...
Copied from this thread The British ME Association are requesting people to send them accounts of their experiences of health and social care as...
Not ME but nevertheless... Authorities who dealt with a benefits claim from a single mother, who took a fatal overdose after her payments were...
The Disability Unit in the Cabinet Office is working with government colleagues, disabled people, disabled people’s organisations, charities and...
https://www.sheffield.ac.uk/scharr/research/centres/ctru/mss3 I don't see a thread on this. The list of contributors imply a very expensive price...
Two questions: (1) Does the DWP accept reports from private consultants as medical evidence? I mean like, will they be snobby about it and not...
The role of the senior responsible officer for patient safety was established to bring together strands of patient safety across NICE, providing a...
This post and all to post #12 have been moved here from the BPS attempts at psychologising Long Covid thread. Links to Warwick University and...
'Results of probably the largest-ever survey of opinion among people with ME/CFS and their carers about what treatments and therapies work for...
https://bmcpsychiatry.biomedcentral.com/articles/10.1186/s12888-019-2235-z Naomi Petra Moller, Gemma Ryan, Jasmine Rollings & Michael Barkham...
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