united kingdom

  1. Andy

    UK: Haywards Heath ME charity announces new patron

    https://www.midsussextimes.co.uk/news/people/haywards-heath-me-charity-announces-new-patron-2895367
  2. NelliePledge

    DecodeME - UK ME/CFS DNA study underway

    Moderator note: Please note: at this point only people from the UK will be eligible to participate in the study. However people from anywhere, with or without ME/CFS, can register their interest in receiving updates about the study. People who register will receive information about...
  3. Sly Saint

    Predicting GP visits: A multinomial logistic regression investigating GP visits amongst a cohort of UK patients living with ME: Walsh et al June 2020

    Predicting GP visits: A multinomial logistic regression investigating GP visits amongst a cohort of UK patients living with Myalgic encephalomyelitis https://bmcfampract.biomedcentral.com/articles/10.1186/s12875-020-01160-7
  4. Hoopoe

    The association between exposure to childhood maltreatment and subsequent development of functional somatic and visceral pain syndromes, 2020, Chandan

    https://www.thelancet.com/journals/eclinm/article/PIIS2589-5370(20)30136-X/fulltext
  5. Andy

    UK: ME/CFS CPD module from Study PRN and supporting podcasts

    Nina Muirhead has created this free Continuous Professional Development module for health professionals in the UK. For those interested, it's possible to view, and even complete, the module but you will need to create a free account - you will have to claim that you are a health professional of...
  6. Sly Saint

    Wider collateral damage to children in the UK because of the social distancing [...] COVID-19, 2020, Crawley et al. And other papers by Crawley et al

    Wider collateral damage to children in the UK because of the social distancing measures designed to reduce the impact of COVID-19 in adults Esther Crawley1, Maria Loades1,2, Gene Feder3, Stuart Logan4, Sabi Redwood5, John Macleod2 https://bmjpaedsopen.bmj.com/content/4/1/e000701 Hmm...
  7. Andy

    Survey: Doctors' Knowledge and Understanding of Myalgic Encephalomyelitis, UK, 2018, Hng

    Originally intended to be published in a journal, Dr Hng has decided instead to release this into the public domain. https://drive.google.com/file/d/1R6MgsNuEjdj1fsfJds5bJ2MAACSogOXn/view Post on her Facebook page https://www.facebook.com/DrHng/posts/922049561548938
  8. InitialConditions

    Centre for Welfare Reform Report: Energy Impairment and Disability

    https://www.centreforwelfarereform.org/uploads/attachment/681/energy-impairment-and-disability-inclusion.pdf?utm_source=Chronic+Illness+Inclusion+Project&utm_campaign=3f6549f63d-EMAIL_CAMPAIGN_2019_12_10_04_51&utm_medium=email&utm_term=0_7303002384-3f6549f63d-78135457 This has just been...
  9. Sly Saint

    #MillionsMissing 2020 UK

    email from #MEAction
  10. Sly Saint

    The COVID-19 Stress and Health Study (UK)

    How is COVID-19 affecting you? Exploring the emotional and physical impact of COVID-19 on adults living in the United Kingdom. there is a short video which explains about the study; I've not been able to watch it so can't comment. https://www.covidstressstudy.co.uk/...
  11. Sly Saint

    United Kingdom: Kings College London; South London and Maudsley NHS Trust

    Persistent Physical Symptoms Research and Treatment Unit - Kings College London; South London and Maudsley NHS Trust for the rogues gallery of the 50 members of this team see https://www.kcl.ac.uk/research/persistent-physical-symptoms-research-and-treatment-unit-1
  12. hellytheelephant

    UK: REGISTER AS A VULNERABLE PERSON TO GET CORONAVIRUS SUPPORT

    https://www.gov.uk/coronavirus-extremely-vulnerable
  13. Sly Saint

    UK: Improving Access to Psychological Therapies (IAPT) articles, blogs and discussion

    Moved from this thread Blog on current state of IAPT https://survivingwork.org/after-quarantine/
  14. Andy

    UK: Coronavirus Bill could leave thousands of Disabled people without support

    https://www.inclusionlondon.org.uk/campaigns-and-policy/act-now/coronavirus-bill-could-leave-thousands-of-disabled-people-without-support/
  15. Sly Saint

    Application of normalisation process theory in understanding implementation processes in primary care settings in the UK: a systematic review - 2020

    Lisa Huddlestone, Jessica Turner, Helen Eborall, Nicky Hudson, Melanie Davies & Graham Martin https://bmcfampract.biomedcentral.com/articles/10.1186/s12875-020-01107-y?utm_source=other&utm_medium=other&utm_content=null&utm_campaign=BSCN_2_DD01_CN_bmcso_article_paid_XMOL
  16. Andy

    United Kingdom: Department of Work and Pensions (DWP)

    https://www.theguardian.com/society/2019/jan/19/abolish-work-and-pensions-department-demos-thinktank Link to Demos report hosting page, https://demos.co.uk/project/pathways-from-poverty/ and directly to the report...
  17. wastwater

    United Kingdom: Leeds and York Partnership - CFS centre

  18. Sly Saint

    Article: Woman with ME models and dances with her wheelchair in George at Asda ad to show ambulatory wheelchair users exist -Feb 2020

    full article here https://metro.co.uk/2020/02/20/woman-models-dances-wheelchair-george-asda-ad-show-ambulatory-wheelchair-users-exist-12262372/
  19. Andy

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    Posts on this thread have been moved from this thread about the new APPG being set up https://www.s4me.info/threads/uk-all-party-parliamentary-group-being-reactivated-2020.13172/ https://www.meaction.net/2020/02/19/next-steps-for-the-appg-on-me-in-the-uk/
  20. Sly Saint

    Ian Paterson: Surgeon wounded hundreds amid 'culture of denial' Feb 2020 (UK)

    Just been hearing about this: https://www.bbc.co.uk/news/uk-england-birmingham-51369881 Can't find the direct quote but apparently the inquiry also said that he should have been suspended while the inquiry was ongoing, not allowed to continue with his malpractice. relevent for pwME as...
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