George Monbiot on ME/CFS, PACE, BPS and Long Covid

Discussion in 'General ME/CFS news' started by Robert 1973, Jan 8, 2021.

  1. bobbler

    bobbler Senior Member (Voting Rights)

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    Just needs the addition of “and NOW no evidence-based ways of being made more disabled”
     
    Last edited: Oct 24, 2024
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  2. bobbler

    bobbler Senior Member (Voting Rights)

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    Did he know it would appear next to theirs ? Is he associated with them does anyone know?
     
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  3. bobbler

    bobbler Senior Member (Voting Rights)

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    Interesting. I'm getting a wholly back-and-forth picture which seems to vary hugely depending on the subject

    For example on the immigration, human right type front/side of his interests, then this article 'seems' to show an openness to learning (although the points made are specifically in relation to advocacy, narrative, traction, not pathologising or 'making into heroes' when it's the system and the people are just people): Keeping it neutral: conducting research on immigration detention | BPS

    I was quite surprised by this, although note it is strongly itself talking about the enlightenment of the influence of another. And it's got some good advice we might find useful on some points made.

    And this one. The shaping of moral injury among UK military veterans of the wars in Afghanistan and Iraq - Hollis - 2023 - Psychology and Psychotherapy: Theory, Research and Practice - Wiley Online Library
     
    Last edited: Oct 24, 2024
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  4. Sean

    Sean Moderator Staff Member

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    That was my first thought: Is this coordinated?
     
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  5. dave30th

    dave30th Senior Member (Voting Rights)

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    I would assume they got a batch of letters and picked two. That's perfectly standard. I wouldn't make any assumptions about connections between the PACE authors and this guy unless someone knows that there is in fact a connection. That the Guardian published both letters is not in any remote way evidence of that connection.
     
  6. Andy

    Andy Committee Member

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  7. tornandfrayed

    tornandfrayed Senior Member (Voting Rights)

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    I wrote something with the intent of sending it to the Guardian, but now I'm looking at their Corrections and Complaints I'm not sure where it would fit. It's not precise enough for a letter and I don't think I'd want to expose myself to these people with no organisation for cover. So while I think about it, I'll post it here -

    Letter from Professors Peter White, Michael Sharpe and Trudie Chalder
    https://www.theguardian.com/society...view-of-illness-doesnt-help-those-with-me-cfs

    I suppose the PACE authors, Professors White, Chalder and Sharpe are entitled to right-of-reply to George Monbiot's excellent article -

    https://www.theguardian.com/comment...eve-bothby-oneill-me-chronic-fatigue-syndrome
    but was it necessary to add a letter expressing the same point of view from a therapist trying to drum up business? I think not, just as it wasn't necessary to publish a piece by Alastair Miller during the Maeve Boothby O'Neill inquest calling for a "compromise", i.e. sticking to the paradigm that led to her death.

    As George Monbiot explains in this interview with actor and ME sufferer Jennie Jacques, his article took a long time to write because it involved a lot of research and fact checking -

    https://www.youtube.com/watch?v=SpLMB9I4kGI




    but the biopsychosocial proponents don't provide any facts, just continue to reiterate that their theories are evidence-based without engaging with the substantial flaws in their work exposed by the NICE Technical Committee, academics and other commentators.

    White, Sharpe and Chalder say But this new Nice guidance is contested, being based on a flawed review and interpretation of the evidence, as shown by an analysis by us and 48 other international experts.

    This, https://jnnp.bmj.com/content/94/12/1056 wasn't an analysis, just a letter with numerous signatories restating their position. That they haven't withdrawn or revised their flawed work, nor have the journals on whose editorial boards they or their colleagues sit or have sat only underlines the power imbalance revealed in George Monbiot's article. We patients hope the day is coming soon when no publications feel the need to defer to the opinions of flat earthers.
     
  8. Ash

    Ash Senior Member (Voting Rights)

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    Really good @tornandfrayed
     
  9. Hutan

    Hutan Moderator Staff Member

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    George Monbiot: "I really hope this isn't about ME/CFS - again. The "silencing" story around this illness has
    a. been inflated beyond recognition
    b. been used for the past 13 years to protect bad science from effective scrutiny.
    https://theguardian.com/commentisfree/2024/oct/18/maeve-bothby-oneill-me-chronic-fatigue-syndrome

    Commenting on a post about a forthcoming event:
     
  10. Sean

    Sean Moderator Staff Member

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    And this, I think, reveals their lack of good faith. The only significant 'revisions' they have made are to their marketing language, by very slightly toning down the strength of their claim (all diseases have something like all diseases/illnesses have a psychological component), and doubling down on seriously misrepresenting the criticisms and critics of their work (as they have always done).

    They have not backed down from nor revised their basic underlying claim and arguments one iota, far as I can see.
    You could also cite the reports from the IOM, AHQR (a good one because it calls for the retiring of the Oxford criteria from use), and others, just so they can't say it is just NICE that has 'gone rogue'. Or maybe just refer to those other reports in general as from 'other international institutions', or similar.

    No doubt there are one or two more recent reviews in the peer reviewed journals that could be cited too.
    They have been doing that since day one. One of Wessely's first forays into the field used some dirty sophistry to portray patients as unreliable witnesses and researchers.
     
  11. Lou B Lou

    Lou B Lou Senior Member (Voting Rights)

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    https://twitter.com/user/status/1849525426671992834




    George Monbiot tweets:

    'In fact the "silencing" story has been a highly effective form of silencing, shutting down the voices of both patients subject to harmful treatments and scientists challenging the discredited claims still pushed by
    @PaulGarnerWoof
    et al.
    @IndexCensorship
    should investigate it.'

    And:

    'Thanks to this narrative, there's been an almost perfect inversion of victims and perpetrators.'

    .
     
    Last edited: Oct 25, 2024
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  12. Trish

    Trish Moderator Staff Member

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    Thanks to George Monbiot for picking this up. I hope he gets a good response.
     
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  13. Haveyoutriedyoga

    Haveyoutriedyoga Senior Member (Voting Rights)

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    On the event page

    "Paul developed the post-COVID-19 condition, and recovered using neuroplastic strategies"
     
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  14. rvallee

    rvallee Senior Member (Voting Rights)

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    As many are aware, this is a common strategy employed by narcissists, DARVO: deny, attack, and reverse victim & offender.
     
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  15. rvallee

    rvallee Senior Member (Voting Rights)

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    I assume it's the main goal. It's been very effective. We see it all the time, in bits and pieces of rumor framing everything, including research proposals. They succeed as long as it's a maligned topic, hence why they stick entirely to politics and maligning.

    It's not as if they'd reasonably expect that they'll come up with anything new in the next few decades. They keep doing the same thing in a loop. The whole strategy is flooding the space with bullshit and to block legitimate efforts as long as possible. It doesn't work, but it's effective at preventing real work from happening, and to them that's the same as winning the game. All they need is a stalemate, they win when there is no winner.
     
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  16. NelliePledge

    NelliePledge Moderator Staff Member

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  17. Adam pwme

    Adam pwme Senior Member (Voting Rights)

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  18. dave30th

    dave30th Senior Member (Voting Rights)

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  19. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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  20. Hutan

    Hutan Moderator Staff Member

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    Last edited: Oct 27, 2024
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