Petition: Remove CBT/GET from NICE guidelines NOW (ALL COUNTRIES can sign)

thanks Tom............clearly luck of the Irish has helped ........

3600

 

Signed today.

Didn't realise that people outside the UK could sign. Thought I'd try anyway and it worked.

 

3740

https://www.change.org/p/nice-stop-harming-me-cfs-patients-remove-cbt-get-out-of-nice-now

 

There are a number of petitions (4, I think) re ME going round atm and it is hard to get people to keep signing different ones and confusing too as they can think they have already signed.
NB the Change.org ones are worldwide.
When MEA petition was going round think it was the only one.

 

3814 now

 

3899
https://www.change.org/p/nice-stop-harming-me-cfs-patients-remove-cbt-get-out-of-nice-now

 

"Ellen Goudsmit
2 weeks ago ago
As a scientist, it’s hard to justify the continued recommendation for two interventions consistently linked to an exacerbation if the illness. I made NICE aware of factual errors which impacted on their advice. Their response was that they really didn’t care. That’s not an acceptable attitude on science. I believe that given the evidence, any patient can now sue any doctor advocating GET based on the NICE guidelines, as the latter is no longer medically sustainable. NICE can’t delay a change in advice for so long. It will cause needless distress."

3948

You can like comments (see Nigel Speights from 2 weeks ago)

eta: for those on twitter and FB, when you like a comment you can also tweet it/fb it

 

4002

 

4100

https://www.change.org/p/nice-stop-harming-me-cfs-patients-remove-cbt-get-out-of-nice-now

 

4201

 

If only half of her 17,000 followers signed..............

eta: ditto Action for ME (although they have less followers)

 

https://www.change.org/p/nice-stop-...t-get-out-of-me-cfs-guidelines-now/u/22563719

4305

 

4409

really slowed down.
please keep sharing.

 

4613

 

well, I don't know who shared it (yesterday it had barely moved), but thanks whoever you are:

4777