1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for CFS here.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 18th March 2024 is here.
    Dismiss Notice
  3. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Petition: Remove CBT/GET from NICE guidelines NOW (ALL COUNTRIES can sign)

Discussion in 'Petitions' started by Sly Saint, Feb 23, 2018.

  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,574
    Location:
    UK
    thanks Tom............clearly luck of the Irish has helped ........

    3600
     
    MEMarge, Andy, NelliePledge and 2 others like this.
  2. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    13,142
    Location:
    UK West Midlands
    Yes and not far off 3700 now so hopefully the ripples from Toms postings will help push it over 4000 and towards 5000.

    What about Jen Brea. Any ideas on how to contact her?

    ETA tagged Jen in a post on PR
     
    Last edited: Mar 10, 2018
    MEMarge, MeSci and Keela Too like this.
  3. AndyPandy

    AndyPandy Senior Member (Voting Rights)

    Messages:
    217
    Location:
    Australia
    Signed today.

    Didn't realise that people outside the UK could sign. Thought I'd try anyway and it worked.
     
  4. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,574
    Location:
    UK
  5. Forestvon

    Forestvon Senior Member (Voting Rights)

    Messages:
    405
    There are a number of petitions (4, I think) re ME going round atm and it is hard to get people to keep signing different ones and confusing too as they can think they have already signed.
    NB the Change.org ones are worldwide.
    When MEA petition was going round think it was the only one.
     
    Binkie4, MEMarge and Skycloud like this.
  6. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,574
    Location:
    UK
    3814 now
     
    Hutan, Binkie4, Jan and 5 others like this.
  7. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,574
    Location:
    UK
  8. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,574
    Location:
    UK
    "Ellen Goudsmit
    2 weeks ago ago

    As a scientist, it’s hard to justify the continued recommendation for two interventions consistently linked to an exacerbation if the illness. I made NICE aware of factual errors which impacted on their advice. Their response was that they really didn’t care. That’s not an acceptable attitude on science. I believe that given the evidence, any patient can now sue any doctor advocating GET based on the NICE guidelines, as the latter is no longer medically sustainable. NICE can’t delay a change in advice for so long. It will cause needless distress."

    3948

    You can like comments (see Nigel Speights from 2 weeks ago)

    eta: for those on twitter and FB, when you like a comment you can also tweet it/fb it
     
    Last edited: Mar 13, 2018
  9. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,574
    Location:
    UK
  10. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,574
    Location:
    UK
  11. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    13,142
    Location:
    UK West Midlands
    Hi @JenB welcome tagging you onto this thread to ask please can you share this petition
    Thanks
     
  12. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,574
    Location:
    UK
    4201
     
    Binkie4, dangermouse and Jan like this.
  13. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    13,142
    Location:
    UK West Midlands
    Yes it’s slowed down after a good burst following Tom sharing. I’ve tried contacting @JenB in different routes. Appreciate if anyone who is in regular contact can draw it to her attention.
     
  14. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,574
    Location:
    UK
    If only half of her 17,000 followers signed..............

    eta: ditto Action for ME (although they have less followers)
     
  15. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,574
    Location:
    UK
  16. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,574
    Location:
    UK
    4409

    really slowed down.
    please keep sharing.
     
  17. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    13,142
    Location:
    UK West Midlands
    Now had a bit of an uplift to 4540 another push on sharing following a bit of a hiatus while some involved were diverting efforts onto support for to Dr Ms GMC complaint.
     
  18. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,574
    Location:
    UK
  19. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,574
    Location:
    UK
    well, I don't know who shared it (yesterday it had barely moved), but thanks whoever you are:

    4777
     
    Last edited: Apr 8, 2018
    Hutan, MEMarge, dangermouse and 5 others like this.
  20. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    13,142
    Location:
    UK West Midlands

Share This Page