United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

[MrMagoo]

I feel like BACME need to see this.

 

[bobbler]

At least this settles they can't be trusted for anything, can't actually learn. No matter what, they will keep doing the same things, for their own purposes. They simply don't understand what the words mean, and it's become clear that illness is an experience that absolutely has to be experienced in order to be understood, as fully as it's almost always needed to actually play an instrument in order to be a musician. And the only exception would be conductors, and they usually are musicians anyway. Just knowing about sheet music doesn't make one a musician.

Obviously, though. It's possible to go from being wrong to getting it right, but not from a position of denial. There is no half-way between reality and denial of reality that works out in real life.

this.

I think 3 years on the one thing that this new document and other behaviour certain 'players' have been up to confirms - and I really hope that people who need to see through them now because they are also the 'how dare you mention past behaviour, "we've changed"' gang of silencers who aren't up to much - that it is the people that were and now certainly are 'the problem'.

Turkeys don't vote for christmas in every situation, but what has been exhibited in the context of this and certain other bunches in bps is a level which I doubt has been allowed to carry on in many other contexts and relied on the sheer vulnerability me/cfs had, particularly those in the less privileged/supported situations (who get elbowed out of speaking for themselves and frankly few who are in the positions are happy to not believe the situation but assume and psychologise it as 'must have happened differently/been something you did or are different to me etc), due to the slurs and tropes that have provided power and suggested it 'isn't that bad'.

And I mention this because this coercive situation, ongoing, needs to be fixed before things can move forward given they've deluded themselves that someone who is losing their job, family, house, future, kids and is in front of an individual whose notes can remove this and indeed put question marks over their freedom or capacity as well - and is fresh to the illness and just needs any note to save their job and not lose them their job in the 'urgent and important' column above the 'will that harm me in a year's time' is not in a position to be giving experienced info on the condition and 'did this help'.

 

[bobbler]

I feel like BACME need to see this.

The problem is that they can't even if they look at it, but are blinded and actually can't see anything other than their beliefs instead of what actually is in front of their eyes when they see a patient or this.

SO when a BACME person sees a very ill person who apparently can't move or see light they 'see' this fictional picture they've had sold to them of what 'sensitisation' and 'deconditioning' can end up in. Someone milder not doing their usual sport as needing support with their fears over the sore legs after, before those fears 'get out of hand and take over them to lead to decrepidness from sitting on the sofa too much, but less than a great % of teenagers and adults who can might do with no ill-effects'

I don't think they go so far as to realise that even with very old people this takes the idea ad absurdium of 'some people just decided to lie down for some reason and become more hermit like until we have all of this to unpick because their body becomes so unused to life that it leads to this level of 'illness''

but once they are on that train then they are surrounded by other yes men and see all patients who don't improve as 'examples backing up their suspicions' and the whole thing gets out of hand.

It would genuinely, and I say this with interest for cognitive psychologists to do on priming etc (not as some 'pun or one-liner'), be interesting for things like this to be put in front of different individuals with different levels of brainwashing (I think for example teaching profession had a lot of behaviourism influences in training in certain areas in certain times on certain things) and ask them what they 'see'. It is incredibly powerful.