USA: News from Solve ME

Solve ME Webinar:

"Your Story, Your Symptoms, Your Data: Discover unhide ®"

Tuesday, September 22
3:00 pm - 4:00 pm PDT

solvecfs.org

Your Story, Your Symptoms, Your Data: Discover unhide® - Solve ME/CFS Initiative

Join Solve CSO Dr. Sadie Whittaker and panelists from the Brain Inflammation Collaborative (BIC) for a free webinar on the unhide® real-world data platform.
solvecfs.org solvecfs.org
Solve ME said:
Living with ME/CFS, Long Covid, and related complex chronic conditions can make it difficult to explain how you’re feeling or to know whether a treatment is truly helping. Symptoms like pain, fatigue, brain fog, behavior changes, and post-exertional malaise (PEM) can fluctuate, making it especially challenging to remember and communicate what has changed between medical visits.

That’s where tracking your health over time can help.

The unhide® real-world data platform uses validated health surveys to collect detailed information about your health over time, and makes it easy to visualize a large amount of information at a glance. Using the data from unhide®, patients can better recognize patterns and trends to support conversations with healthcare providers.

In this webinar, the unhide® team will demonstrate how patients and caregivers can use this resource and its research-validated tools to track symptoms, better understand changes in symptoms and daily functioning, prepare for medical visits, and contribute valuable data that researchers can use to improve understanding and treatment. They’ll also explain what these scores can, and can’t, tell you, and how participating in unhide® can help researchers better understand complex chronic conditions.
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