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USA: News from the Bateman Horne Center

Discussion in 'News from organisations' started by ahimsa, Mar 4, 2022.

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Page 8 of 8
  1. Mij

    Mij Senior Member (Voting Rights)

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    9,720
    Join Theresa Dowell, FNP, PT, and Brayden Yellman, MD, in this lecture on Anatomical Neurological Complications in ME/CFS and long COVID. NOTE: Surgical intervention is only ever considered when all other options have been exhausted.
    https://twitter.com/user/status/1850956762763165849
     
    Mij, Oct 28, 2024
    #141
    Yann04, Sean, Deanne NZ and 1 other person like this.
  2. Mij

    Mij Senior Member (Voting Rights)

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    Biography
    THERESA DOWELL, FNP, PT is a nationally recognized clinician, researcher, and author in the field of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). She is a member of the US ME/CFS Clinician Coalition which is made up of expert clinicians in the field of ME/CFS. She has co-authored numerous papers and opinion statements on ME/CFS including consensus recommendations for the diagnosis and treatment of ME/CFS. She currently sits on the board of directors for the International Association of ME/CFS and is the medical director of the Workwell Foundation. Theresa received a Doctorate of Nursing Practice from Duke University and a Master of Physical Therapy from Northern Arizona University. She owns a private practice in Flagstaff, Arizona dedicated to the treatment of ME/CFS, Long COVID, and Fibromyalgia.
     
    Mij, Oct 28, 2024
    #142
    Yann04, Deanne NZ and Hutan like this.
  3. Mij

    Mij Senior Member (Voting Rights)

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    9,720
    NOTE: Surgical intervention is only ever considered when all other options have been exhausted.

    What other options? This is truly bizarre.
     
    Mij, Oct 28, 2024
    #143
    Yann04, Sean, Wyva and 1 other person like this.
  4. Trish

    Trish Moderator Staff Member

    Messages:
    55,789
    Location:
    UK
    Surely it should say, only considered when there are clear signs and symptoms of CCI or tethered cord. Nothing to do with ME/CFS diagnosis.
     
    Trish, Oct 28, 2024
    #144
    Yann04, hibiscuswahine, Sean and 5 others like this.
  5. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    15,296
    Location:
    London, UK
    Nice to have a nurse lecturing on neck operations.
     
    Jonathan Edwards, Oct 28, 2024
    #145
    Yann04, hibiscuswahine, Wyva and 3 others like this.
  6. Sean

    Sean Moderator Staff Member

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    8,182
    Location:
    Australia
    I remain very sceptical and concerned about this stuff.
     
    Sean, Oct 29, 2024
    #146
    Yann04, hibiscuswahine, shak8 and 2 others like this.
  7. Trish

    Trish Moderator Staff Member

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    Location:
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    So do I. As far as I know we haven't seen any evidence beyond a few anecdotes, some positive, some negative. Hardly the basis for BHC to be raising spinal surgery as having any relevance to ME/CFS.

    I had a pretty good impression of BHC until this.
     
    Trish, Oct 29, 2024
    #147
    Yann04, hibiscuswahine, Hutan and 4 others like this.
  8. NelliePledge

    NelliePledge Moderator Staff Member

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    Location:
    UK West Midlands
    She’s from Workwell. I haven’t watched the video are both participants involved in talking about surgery or is Theresa Dowell talking about what Workwell do which is presumably the ‘other options’
     
    NelliePledge, Oct 29, 2024
    #148
    Yann04, hibiscuswahine and Hutan like this.
  9. Dolphin

    Dolphin Senior Member (Voting Rights)

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    Dolphin, Nov 3, 2024
    #149
    Yann04, Sean, Hutan and 2 others like this.
  10. Dolphin

    Dolphin Senior Member (Voting Rights)

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    Tuesday, November 12: Free, professionally-facilitated online support group

    https://batemanhornecenter.org/event/online-support-group-85/

    Topic: Pain Tools Amidst Difficult Moments

    1PM MT/3 PM ET/8 PM in Great Britain & Ireland

    Find the time in your time zone here:
    https://www.timeanddate.com/worldclock/fixedtime.html?msg=Tuesday,+November+12:+Free,+professionally-facilitated+online+support+group&iso=20241112T13&p1=220&ah=1

     
    Dolphin, Nov 3, 2024
    #150
    Yann04, shak8, Sean and 4 others like this.
  11. ahimsa

    ahimsa Senior Member (Voting Rights)

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    Oregon, USA
    ahimsa, Nov 9, 2024
    #151
    Yann04, Sean, shak8 and 3 others like this.
  12. ahimsa

    ahimsa Senior Member (Voting Rights)

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    Oregon, USA
    ahimsa, Nov 16, 2024
    #152
    shak8 and Hutan like this.
  13. ahimsa

    ahimsa Senior Member (Voting Rights)

    Messages:
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    Location:
    Oregon, USA
    New video (about 4 minutes long) from Batemen Horne Center. This is the third video in a video series they call "The Basics."

    The Basics: Diagnosing ME/CFS

    https://www.youtube.com/watch?v=8LXIXx7woCo




     
    ahimsa, Nov 23, 2024
    #153
    Dolphin, Trish and Hutan like this.
  14. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    5,884
    https://batemanhornecenter.org/event/online-support-group-81/

    Online Support Group

    December 10 @ 1:00 pm - 2:00 pm MST/8 PM in Great Britain & Ireland

    Find the time in your time zone here:
    https://www.timeanddate.com/worldcl...ine+support+group&iso=20241210T13&p1=220&ah=1

    Free

    Topic: Attending to Loneliness

    Support Group Format

    Both monthly support groups are designed to include people with ME/CFS, FM, Long COVID, and co-existing conditions. We also welcome supporters and loved ones.

    These sessions are led by a licensed professional who has personal experience navigating life while living with a complex chronic illness. Each session includes a topic and guided discussion. Participants are encouraged to participate to their comfort level which may include listening, communicating in the chat box, and/or sharing verbally with the group.

    We strive to foster an inclusive and accepting environment for all!

    Advance Registration Required.
     
    Dolphin, Dec 1, 2024
    #154
    Kalliope, ahimsa, Trish and 1 other person like this.
  15. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    5,884
    Free, professionally-facilitated online support group
    Topic: Facing the Holidays with Chronic Illness
    https://batemanhornecenter.org/event/online-support-group-82/

    Tuesday, December 17

    1 PM MST/3 PM ET/8 PM in Great Britain & Ireland

    Find the time in your time zone here
    https://www.timeanddate.com/worldclock/fixedtime.html?msg=Tuesday,+December+17+Free,+professionally-facilitated+online+support+group&iso=20241217T13&p1=220&ah=1

    -----
    Longer description:

    Online Support Group
    December 17 @ 1:00 pm - 2:00 pm MST
    Free
    Online Support Group
    Topic: Facing the Holidays with Chronic Illness
    Support Group Format
    Both monthly support groups are designed to include people with
    ME/CFS, FM, Long COVID, and co-existing conditions. We also welcome
    supporters and loved ones.

    These sessions are led by a licensed professional who has personal
    experience navigating life while living with a complex chronic
    illness. Each session includes a topic and guided discussion.
    Participants are encouraged to participate to their comfort level
    which may include listening, communicating in the chat box, and/or
    sharing verbally with the group.

    We strive to foster an inclusive and accepting environment for all!

    Advance Registration Required. Click here to register
    https://batemanhornecenter.zoom.us/meeting/register/tZcvcOyrrT4tHdGd5qVBq8sva4Y-6tRVSEoB

    Upon registration, you will receive a confirmation email containing
    instructions on how to join the group event. We recommend attendees
    test the link, their cameras, and speakers/headphones prior to
    joining.

     
    Last edited: Dec 6, 2024 at 7:35 PM
    Dolphin, Dec 6, 2024 at 7:18 PM
    #155
    ahimsa and Hutan like this.
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