USA: News from the Bateman Horne Center

Support Group Recap: Facing the Holidays with Chronic Illness
December 17, 2004

https://batemanhornecenter.org/wp-content/uploads/2024/12/20241217-Support-Group-Recap.pdf

Extracts:
—-
“Participant shared that she experiences so much isolation it is challenging to make herself leave a social event before it causes PEM [post-exertional malaise]”
—-
“Anything worth doing is worth doing slowly with many breaks”
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“I let my family know I can't cook, clean, or sit up for long periods. I volunteered to do some shopping, which I could do online and while horizontal, and contribute grocery money.”
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Participant refers to her illness as “the baby” such as “the baby needs to lie down” or the baby needs to be fed by someone else.” This helps to remind the participant that it is not her fault.
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Participant shared that it took four years to accept that she isn’t going home for Christmas. Now that she has accepted her limitations, she is getting creative such as doing a family Zoom and joining online hobby and friendship groups.
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Participant shared that her mother and sibling are begging her to travel several states away to visit them for the holidays. She decided to visit them at another time of the year when there is less holiday stress.

 

Support Group Recap: Attending to Loneliness
December 10, 2024

https://batemanhornecenter.org/wp-content/uploads/2024/12/20241210-Support-Group-Recap.pdf

 

Lunch & Learn Recap: My Favorite Things
(December 19, 2024)

https://batemanhornecenter.org/wp-content/uploads/2024/12/20241219-Lunch-Learn-Recap.pdf

 

Tuesday, January 14: Free, professionally-facilitated online support group

https://batemanhornecenter.org/event/online-support-group-86/

Topic: Using Effective Coping Techniques for Living with Chronic Illness

1PM MT/3 PM ET/8 PM in Great Britain & Ireland

Advance Registration Required. Register here:

https://batemanhornecenter.zoom.us/...-CsrDMvHdShJnohEdXts7Fi7yOBvXjR#/registration

Find the time in your time zone here:

https://www.timeanddate.com/worldclock/fixedtime.html?msg=Free+Online+Support+Group:+Using+Effective+Coping+Techniques&iso=20250114T13&p1=220&ah=1

 

Tuesday, January 21: Free, professionally-facilitated online support group

https://batemanhornecenter.org/event/online-support-group-87/

Topic: Using Boundaries to Improve the Illness Experience

1PM MT/3 PM ET/8 PM in Great Britain & Ireland

Advance Registration Required. Register here:

https://batemanhornecenter.zoom.us/...-GqrT8uG91TcVrcsS-qK3ZusCK4--ZK#/registration

Find the time in your time zone here:

https://www.timeanddate.com/worldclock/fixedtime.html?msg=Free+Online+Support+Group:+Using+Boundaries+to+Improve+the+Illness+Experience&year=2025&month=Jan&day=21&hour=13&min=0&sec=0&p1=220&ah=1

 

Bateman Horne Center:

Catch Up or Revisit! Whether you attended or missed our third webinar co-hosted with Solve ME, Severe ME/CFS: Care, Rights & Research, we've got you covered.

Medical Panel highlights strategies to overcome barriers in providing medical care for those with Severe ME/CFS.

Moderated by Dr. Hoppers, with expert insights from Dr. Bateman, Dr. Muirhead, and Theresa Dowell, DNP, PT.

Watch the full discussion: https://loom.ly/M5SVKwI

Read the transcript: https://loom.ly/peaAtdo

Explore the resource guide: https://loom.ly/V_EJA64

 

New blog post (Jan. 10, 2025) by Suzanne D. Vernon:

COVID-19 Triggers ME/CFS

https://batemanhornecenter.org/covid-19-triggers-me-cfs/

(line breaks added, bolded text is from the original blog post)

At the bottom of the blog post there is this text (missing an end quote):

Link: Journal of General Internal Medicine, “Incidence and Prevalence of Post‑COVID‑19 Myalgic Encephalomyelitis: A Report from the Observational RECOVER‑Adult Study.​

But I don't see an actual link to the study she is discussing.

Update: OOPS! The post on Bluesky was about a different topic, sorry!

EDIT: We now have a forum thread for the study mentioned in this blog post.

https://www.s4me.info/threads/incid...tional-recover-adult-study-2024-vernon.42102/