USA: News from the Bateman Horne Center

Coffee with a Clinician: Part 2 Navigating Clinical Uncertainty

Wednesday, November 12, 10:00 am MDT
5 PM in Great Britain & Ireland
Bateman Horne Center said:
The October Coffee with a Clinician conversation opened an important dialogue about the challenges patients, caregivers, and clinicians face when diagnosis and care pathways are not always clear.

In this follow-up session, we will continue the conversation with a panel of lived-experience individuals, caregivers, and medical providers who will share practical strategies for bridging the patient-provider communication gap.
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Advance registration required - Registration link
(registration link shows time in your time zone)

Coffee with a Clinician is free to attend, with an optional $5 donation to support BHC’s education and outreach programs.
 
New video posted on the Bateman Horne YouTube channel:

Pediatric & Young Adults, Part 1: Diagnoses & Management

Summary:
Bateman Horne Center and the University of Utah Health Project ECHO teams join forces once again to provide a case-based learning series illuminating strategies for assessment and management of Long COVID (PASC), ME/CFS, and related comorbid conditions.

Patient cases are shared in this session for educational purposes. In some instances, the information does not relate to an individual and instead represents a compilation of disease presentation. In cases involving individual patient information, the patients have authorized the discussion of their case in this setting.

This ECHO session dives deep into managing Long COVID and ME/CFS in children/pediatric populations.

Melanie Hoppers, MD (Bateman Horne Center) examines challenges and opportunities in treating children with Long COVID and ME/CFS. She addresses how to navigate clinical uncertainty, evaluate for post-exertional malaise (PEM) and orthostatic intolerance, and offers treatment recommendations while recognizing the lack of research in pediatric populations. She outlines pharmacological and non-pharmacological options for managing symptoms while avoiding and managing post-exertional malaise (PEM).

Key topics include:

• Identifying, minimizing, and managing PEM when treating children with Long COVID with ME/CFS

• Differential diagnosis for Long COVID with ME/CFS

• Assessment and treatment of orthostatic intolerance and Mast Cell Activation Syndrome (MCAS)

• Description of a patient case with practical application of assessment and treatment strategies

• Pharmacological and non-pharmacological options for managing symptoms
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This webinar, recorded on Nov. 4, 2025, is part of the University of Utah Project ECHO series for Long Covid & Post Infectious Syndromes

 
New video posted on the Bateman Horne Center YouTube channel:

Coffee with a Clinician: "Pacing for Holidays and Special Events"
(session held on December 10)

Summary:
Holidays and special events can be especially challenging for people living with ME/CFS, Long COVID, and other infection-associated chronic conditions.

In this December "Coffee" with a Clinician session, occupational therapist Amy Mooney, OTR/L, and physical therapist Melinda Maxwell, PT, DPT, share practical, compassionate strategies for navigating these moments while protecting your health.

This conversation explores how pacing, planning, and prioritizing can help reduce post-exertional malaise (PEM) and support meaningful participation, whether that means attending part of an event, connecting briefly with loved ones, or finding alternative ways to stay engaged.

In this session, we discuss:

• Why holidays and special events increase physical, cognitive, sensory, and emotional exertion
• Breaking events into manageable pieces and identifying your “golden nugget”
• Planning rest as a therapeutic, non-negotiable intervention
• Recognizing early signs of pushing beyond your energy envelope
• Communicating boundaries and needs with family, friends, and providers
• Coping with grief, loss, isolation, and emotional exertion during the holidays
• Strategies for rest, regulation, and recovery before, during, and after events

This session is part of the Bateman Horne Center’s "Coffee" with a Clinician series, designed to provide education, validation, and practical tools for patients, caregivers, and clinicians.
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