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Advocacy Projects and Campaigns

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  1. Andy
    Sticky

    International: Science for ME social media posts

    Andy, May 1, 2022 ... 11 12 13
    Replies:
    243
    Views:
    14,954
    Tom Kindlon
    Jul 21, 2024 at 12:00 PM
  2. Hutan
    Sticky

    Australia: 2022 Parliamentary inquiry into Long Covid and repeated covid infections - report issued April 2023

    Hutan, Sep 30, 2022 ... 2 3 4
    Replies:
    73
    Views:
    10,063
    Art Vandelay
    Feb 16, 2024
  3. rvallee

    Crowdfunded awareness campaigns including billboards

    rvallee, Oct 19, 2023 ... 2 3
    Replies:
    53
    Views:
    4,180
    JellyBabyKid
    Jul 18, 2024 at 6:45 AM
  4. Hutan

    UK: Question about the MRC Board members in the 1990s and the redacted "ME file"

    Hutan, Jul 15, 2024
    Replies:
    7
    Views:
    534
    Arvo
    Jul 16, 2024 at 8:50 AM
  5. Yann04

    GPT for ME/CFS Questions

    Yann04, Jun 1, 2024 ... 2 3
    Replies:
    40
    Views:
    1,127
    MSEsperanza
    Jul 15, 2024
  6. Andy

    Survey: EFNA: Assessing diagnosis and care pathways of people living with neurological disorders in Europe, 2022. New survey ends 30/8/24

    Andy, Mar 8, 2022
    Replies:
    3
    Views:
    995
    Fizzlou
    Jul 8, 2024
  7. forestglip

    2024: Twitter campaign aimed at John Oliver and Jon Stewart

    forestglip, May 30, 2024 ... 2 3
    Replies:
    50
    Views:
    2,628
    Dakota15
    Jul 3, 2024
  8. RaviHVJ

    Long Covid Moonshot Initiative

    RaviHVJ, May 9, 2024
    Replies:
    10
    Views:
    646
    NelliePledge
    Jun 18, 2024
  9. Andy

    European ME Coalition ME/CFS Pledge for the 2024 European elections

    Andy, Jun 3, 2024
    Replies:
    7
    Views:
    472
    TiredSam
    Jun 18, 2024
  10. bobbler

    Marie Curie facebook ad - election-related and maybe inspiration

    bobbler, Jun 16, 2024
    Replies:
    1
    Views:
    227
    bobbler
    Jun 16, 2024
  11. ahimsa

    #MEAction UK: Questions to Ask Prospective MPs About ME/CFS

    ahimsa, Jun 8, 2024
    Replies:
    7
    Views:
    630
    Andy
    Jun 13, 2024
  12. Jaybee00

    Lou Gehrig Day—ALS (USA) June 2

    Jaybee00, Jun 2, 2024
    Replies:
    0
    Views:
    241
    Jaybee00
    Jun 2, 2024
  13. Dolphin

    2024: USA NIH NINDS ME/CFS Research Roadmap - now published

    Dolphin, Feb 1, 2024 ... 2 3 4
    Replies:
    61
    Views:
    5,254
    Dolphin
    Jun 1, 2024
  14. Jaybee00

    USA: Senate NIH appropriations hearing May 23, 2024

    Jaybee00, May 17, 2024
    Replies:
    18
    Views:
    1,112
    John Mac
    May 31, 2024
  15. Sasha

    Quotes from scientists who appreciate the support of PWME

    Sasha, Nov 20, 2017 ... 2
    Replies:
    24
    Views:
    4,795
    Sean
    May 28, 2024
  16. Wyva

    2021 Pan-Europe ME Patient Survey (EMEA)

    Wyva, May 11, 2021 ... 2 3
    Replies:
    58
    Views:
    5,303
    Kalliope
    May 23, 2024
  17. rvallee

    NotRecovered campaign

    rvallee, May 18, 2024
    Replies:
    1
    Views:
    388
    SNT Gatchaman
    May 19, 2024
  18. rvallee

    MIRAME Arts: short video on prejudicial views of ME/CFS

    rvallee, May 13, 2024
    Replies:
    2
    Views:
    492
    forestglip
    May 13, 2024
  19. Aaron

    Help writing an email template to send the NIHR (coinciding with local billboards)?

    Aaron, Apr 23, 2024
    Replies:
    7
    Views:
    710
    Aaron
    May 10, 2024
  20. ahimsa

    #MEAction Millions Missing 2024 campaign - Teach ME, Treat ME

    ahimsa, May 9, 2024
    Replies:
    1
    Views:
    471
    ahimsa
    May 9, 2024
  21. JellyBabyKid

    UK: Collecting evidence on problematic UK approaches to ME/CFS and Long Covid

    JellyBabyKid, Apr 21, 2024
    Replies:
    5
    Views:
    634
    TiredSam
    May 8, 2024
  22. Keela Too

    Northern Ireland Minister for Health shows support for ME

    Keela Too, May 4, 2024
    Replies:
    0
    Views:
    480
    Keela Too
    May 4, 2024
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