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General Advocacy Discussions

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  1. RoseE

    What is an engaging, informative, short, accurate description for ME/CFS?

    RoseE, Dec 21, 2020 ... 2
    Replies:
    23
    Views:
    2,267
    Trish
    Dec 23, 2020
  2. ME/CFS Skeptic

    Fatigatio digital symposium in Hannover, 19 September 2020

    ME/CFS Skeptic, Aug 25, 2020
    Replies:
    9
    Views:
    1,872
    Ravn
    Dec 26, 2020
  3. Amw66

    Ensuring severely affected can be heard

    Amw66, Jan 12, 2021 ... 2
    Replies:
    30
    Views:
    2,503
    dratalanta
    Jan 15, 2021
  4. ahimsa

    Solve M.E. Presents: Legislative Cafe Chat on Thursday, Jan. 21

    ahimsa, Jan 16, 2021
    Replies:
    2
    Views:
    1,100
    ahimsa
    Jan 23, 2021
  5. Andy

    Emerge Australia launch their online community [groups and forum]

    Andy, Feb 4, 2021
    Replies:
    0
    Views:
    1,174
    Andy
    Feb 4, 2021
  6. MEMarge

    Reality of ME. How would you get this across (briefly) using words or graphics?

    MEMarge, Feb 4, 2021 ... 2
    Replies:
    25
    Views:
    2,077
    mango
    Feb 6, 2021
  7. RoseE

    ME patient organisations and evidence based information for their members

    RoseE, Feb 7, 2021
    Replies:
    5
    Views:
    692
    RoseE
    Feb 9, 2021
  8. Wyva

    How to pack a punch (reputable sources that link Long Covid and ME/CFS)

    Wyva, Feb 24, 2021
    Replies:
    4
    Views:
    843
    Wyva
    Feb 24, 2021
  9. ME/CFS Skeptic

    Can we call ME/CFS a disease?

    ME/CFS Skeptic, May 1, 2019 ... 2
    Replies:
    38
    Views:
    4,149
    arewenearlythereyet
    Feb 25, 2021
  10. Amw66

    Engaging with severly affected - surveys etc ( PLP survey coming up)

    Amw66, Mar 1, 2021
    Replies:
    1
    Views:
    909
    Kitty
    Mar 1, 2021
  11. Robert 1973

    Suggestion for S4ME thread of ME testimonies

    Robert 1973, Jan 23, 2021 ... 2
    Replies:
    23
    Views:
    3,264
    Invisible Woman
    Mar 20, 2021
  12. Andy

    UK: National Institute for Health Research: Supporting patient and public involvement in research

    Andy, Apr 8, 2021
    Replies:
    0
    Views:
    580
    Andy
    Apr 8, 2021
  13. Simone

    ME/CFS and permanency

    Simone, Mar 4, 2019 ... 2
    Replies:
    28
    Views:
    2,945
    DigitalDrifter
    Apr 19, 2021
  14. Andy

    ME Association Statement on Exercise in ME/CFS and Long Covid, April 2021

    Andy, Apr 22, 2021 ... 2
    Replies:
    26
    Views:
    3,225
    NelliePledge
    May 3, 2021
  15. Hoopoe

    Should Science for ME produce its own ME guidelines?

    Hoopoe, Jun 2, 2021
    Replies:
    2
    Views:
    803
    Hoopoe
    Jun 3, 2021
  16. ME/CFS Skeptic

    Overview of NIH grants for ME/CFS research

    ME/CFS Skeptic, Sep 3, 2020
    Replies:
    13
    Views:
    1,536
    ME/CFS Skeptic
    Jul 27, 2021
  17. FMMM1

    U.K. APPG on coronavirus - a route to lobby for ME/CFS?

    FMMM1, Aug 12, 2021
    Replies:
    3
    Views:
    665
    NelliePledge
    Aug 13, 2021
  18. InitialConditions

    [Blog] Beyond the NICE guideline: MEComms© and the case for a public inquiry

    InitialConditions, Jul 5, 2021 ... 2 3
    Replies:
    57
    Views:
    5,098
    Amw66
    Aug 15, 2021
  19. dratalanta

    Twitter issues

    dratalanta, Aug 17, 2021
    Replies:
    8
    Views:
    684
    Simbindi
    Aug 18, 2021
  20. FMMM1

    Linking up with the Long covid community

    FMMM1, Jul 25, 2021
    Replies:
    10
    Views:
    1,363
    Simbindi
    Aug 20, 2021
Showing threads 121 to 140 of 208

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