2018

Currently abstract only at moment at https://www.frontiersin.org/articles/10.3389/fimmu.2018.02421/abstract

Recently registered study https://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=375190

Trial By Error: The CFS/ME Research Collaborative Conference So I attended the CFS/ME Research Collaborative conference two weeks ago in Bristol. The two-day event was a refreshingly PACE-free zone–as far as I could tell, I was the only person who mentioned that piece of crap in public...

Emerge Australia conducted a health and welfare survey of 600 Australians with ME/CFS, and has released a 77 page report of the findings. The survey covers a range of topics, including time to diagnosis, key symptoms experienced, treatments which were useful. Link to report...

This thread has been split from the main Stanford Community Symposium thread. Is it just me or was the Jarred Younger stuff really exciting? Does that strike you as the sort of thing that should be getting replicated as a priority, @Jonathan Edwards? (Not sure if you're watching but he was...

This thread has been split from the Stanford Community Symposium 2018 thread. (Copied post) I watched Drs Fluge and Hanson with a rest between them. Utterly loving Dr Fluge’s talk where he moved between talk of the patients and the data. Didn’t understand a lot but someone?? talked of...

This thread has been split from the Stanford Community Symposium thread. (Copied post) I'm enjoying it. I'm not sure I'll remember much of it, but I like that I'm seeing that there's real progress towards understanding at least some of what it going on. One interesting point from Maureen...

Does this count as "good" psychosocial research, as in, in terms of where to put it on the forum? Paywalled at http://journals.sagepub.com/doi/abs/10.1177/1942602X18795299?journalCode=nasb

Open access at https://sajp.co.za/index.php/SAJP/article/view/442

I've put this in Research Unrelated to ME/CFS for the time being as the authors seem to do lot of flip-flopping between Chronic Fatigue and Chronic Fatigue Syndrome, it could be that it should be in Psychosocial Research. Open access at...

Well done @JoanNI for setting this up.

https://bjgp.org/content/68/674/442 Don't have the access to full text, but I don't know if I want to. My blood is already boiling. This part is interesting: How can it be justified? How bent are these people writing this nonsense?

God help us: https://www.ncbi.nlm.nih.gov/pubmed/30249136

In Dagens Medicine by Benedikte Monrad-Krohn Article Google translate

Posted on Twitter by @Tom Kindlon. Thanks Tom.

Concept: Anil van der Zee Questions by: Roland Cheung, Celine Corsius, Lou Corsius, Mark Vink and Anil van der Zee Interviewer: Rogier Louwen Video, audio and editing: Willem Timmers

"Open Medicine Foundation is sponsoring a three-day focused scientific meeting with a growing group of excellent scientists with diverse expertise prior to the September 29th Community Symposium on the Molecular Basis of ME/CFS at Stanford University. Over 50 scientists from all over the world...

Event: Tuesday / 02 October 2018 7:00pm - Tuesday / 02 October 2018 9:00pm Mourne Country Hotel 52 Belfast Road Newry BT34 1TR https://www.communityni.org/event/pace-trial-one-greatest-scandals-21st-century Edit: Video now on Facebook

Here is a copy of my first draft. Feel free to be as critical as you wish: I really do not get upset! I take it as a compliment that you are sufficiently interested to sort me out. It is a personal rant. It might be better to create a more neutral one in parallel: let me rant away, and let you...

I just got this e-mail from OMF, its a video about 1 hour 2 minutes long