2021

  1. Wyva

    Identifying and Managing Suicidality in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Chu, Jason et al

    Abstract Adult patients affected by myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) are at an increased risk of death by suicide. Based on the scientific literature and our clinical/research experiences, we identify risk and protective factors and provide a guide to assessing and...
  2. T

    The European Association of Psychosomatic Medicine (EAPM)

    6th Annual Scientific Conference of the European Association of Psychosomatic Medicine (EAPM 2018) incl. several CFS studies via Dr. Marc-Alexander Fluks
  3. J

    Klimas webinar "Understanding ME/CFS Today: A Clinical & Research Approach " May 26

    https://nova.zoom.us/webinar/register/WN_gGavNG9SRgSsdh8KGdq_9g Features yoga and acupuncture....no comment.
  4. Dolphin

    Human leukocyte antigen associations in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and immune modulating treatment, 2021, Lande

    PhD thesis https://www.duo.uio.no/bitstream/handle/10852/86195/1/PhD-Lande-2021.pdf https://www.duo.uio.no/bitstream/handle/10852/86195/PhD-Lande-2021.pdf Summary Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a serious and complex disease characterized by medically...
  5. mango

    Care for people with ME/CFS - Swedish parliament/Sveriges Riksdag 26.05.2021

    A member of the Swedish Riksdag ("the Parliament") has asked the Minister for Health and Social Affairs a formal question about ME/CFS. The question will be answered in writing. Vård för personer med ME/CFS...
  6. Kalliope

    ME/CFS Alert Episode 126: Interview with dr. Walter Koroshetz, Director of the National Institute of Neurological Disorders at NIH

    - In this episode, Llewellyn King and Dr. Walter Koroshetz, Director of the National Institute of Neurological Disorders at the National Institutes of Health, discuss the new goverment funding for long-haul Covid and its impact on ME/CFS research. Dr. Koroshetz is hopeful that the $1.15 billion...
  7. Andy

    The Effect of Literacy-Adapted Psychosocial Treatments on Biomedical and Biopsychosocial Pain Conceptualization, 2021, Morais et al

    Highlights Literacy-adapted psychosocial pain treatments produce changes in pain beliefs. Individuals of low-socioeconomic status show improvements in pain beliefs. Teaching patients about the biopsychosocial nature of pain is promising. Abstract This is a secondary data analysis of a subgroup...
  8. Andy

    Study on the Relationship between the miRNA-centered ceRNA Regulatory Network and Fatigue, 2021, Yang et al

    Abstract In recent years, the incidence of fatigue has been increasing, and the effective prevention and treatment of fatigue has become an urgent problem. As a result, the genetic research of fatigue has become a hot spot. Transcriptome-level regulation is the key link in the gene regulatory...
  9. J

    MEAction 2021 MECFS researchers video with R Davis,Prusty

  10. Sly Saint

    Systematic Review of Sleep Characteristics in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Maksoud, Staines, Marshall-Gradisnik, et al

    Abstract (1) Background—Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a multifaceted illness characterized by profound and persistent fatigue unrelieved by rest along with a range of other debilitating symptoms. Experiences of unrefreshing and disturbed sleep are frequently...
  11. Wyva

    2021 Pan-Europe ME Patient Survey (EMEA)

    (I wasn't sure where to post it, so feel free to move it to the appropriate subforum if there's a better one.) In short, they want to do something like that pretty interesting Norwegian survey with 6000 pwME participating that showed there was a peak in onsets in 2009, probably due to H1N1...
  12. mango

    Sweden: Open hearing on ME/CFS in the Riksdag 27 May 2021

    Copied post from News from Scandinavia There will be an open hearing on ME/CFS and infection triggered fatigue syndrome in the Swedish Riksdag on 27 May, hosted by the Social Affairs Committee. It will be available to watch online. The Riksdag is the highest decision-making assembly in Sweden...
  13. Andy

    ..role of self-efficacy & catastrophizing in .. improvements in disability, pain & fatigue .. patients w/chronic widespread pain.., 2021, Thompson

    Full title: The role of self-efficacy and catastrophizing in explaining improvements in disability, pain and fatigue among patients with chronic widespread pain treated with physiotherapy: An exploratory analysis Authors: Thompson, Antcliff and Woby Abstract Objectives Most research exploring...
  14. Andy

    “Pacing does help you get your life back”: The acceptability of a newly developed activity pacing framework for chronic pain/fatigue, 2021, Antcliff

    Abstract Objectives We have developed and feasibility tested an activity pacing framework for clinicians to standardise their recommendations of activity pacing to patients with chronic pain/fatigue. This study aimed to explore the acceptability and fidelity to this framework in preparation for...
  15. T

    Wide-ranging article on RTE.ie (Irish national broadcaster) not just on title, "The similarities between long Covid and CFS", 2021, Cullinan

    New wide-ranging article on the RTE website. Note that most of it isn't about what is in the title. https://www.rte.ie/brainstorm/2021/0503/1213462-similarities-long-covid-chronic-fatigue-syndrome/ RTE is the national broadcaster in Ireland. It would be great if the article got lots of clicks...
  16. Sly Saint

    Deconditioning does not explain orthostatic intolerance in ME/CFS, 2021, VanCampen, Rowe, Visser

    Deconditioning does not explain orthostatic intolerance in ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) Abstract Background Orthostatic intolerance (OI) is a frequent finding in individuals with myalgic encephalomyelitis /chronic fatigue syndrome (ME/CFS). Published studies...
  17. Sly Saint

    Which exercise & behavioural interventions show most promise for treating fatigue in multiple sclerosis? A network meta-analysis, 2021, Harrison et al

    Anthony Harrison, Reza Safari Tom Mercer, Federica Picariello, Marietta L van der Linden, Claire White, Rona Moss-Morris Sam Norton** Abstract Background: Fatigue is a common, debilitating symptom of multiple sclerosis (MS) without a current standardised treatment. Objective: The aim of...
  18. Kalliope

    NIH: Decoding the Mysteries of Postural Orthostatic Tachycardia Syndrome

    Quotes: As a person living with POTS, Goff wants to see researchers focus more on why POTS happens. “I feel like current treatments aren’t really getting to the root problem, and I also worry about the effects of taking steroids long term,” Goff said. “I’d like to see possibly better treatments...
  19. Andy

    Reduction of host cell mitochondrial activity as Mycobacterium leprae’s strategy to evade host innate immunity, 2021, Oliveira et al

    Abstract Leprosy is a much‐feared incapacitating infectious disease caused by Mycobacterium leprae or M lepromatosis, annually affecting roughly 200,000 people worldwide. During host‐pathogen interaction, M leprae subverts the immune response, leading to development of disease. Throughout the...
  20. Hutan

    Whole genome sequencing uncovers a misclassified case of glycogen storage disease type 13 previously diagnosed as ME/CFS, 2021, Brown, Younger et al

    Donna Brown, Camille Birch, Jarred Younger, Elizabeth Worthey UAB Medicine Link to the abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) also referred to as Systemic Exertion Intolerance Disease (SEID) or Chronic Fatigue Immune Dysfunction Syndrome, is a disabling and...
Back
Top Bottom