afme

I have this week received these from the DWP. I've had a quick look through. The two things that strike me are that they confirm Aylward continued on the TSC when he left the DWP, despite his myriad COIs, and a briefing from AfME which is of some interest. I'll get more when I can. I'm not...

Action for ME have secured funding from Scottish Government to look into and formulate proposals for improving services for those with ME in Scotland. Part of this is awareness raising- Gail Ross MSP's evening event at Scottish Parliament has helped to create interest and concern. My interest...

https://www.bacme.info/patient-support-groups See link at the bottom of the page, "Message from the Chair on ME Awareness Month 2018" Dear Members, The merry month of MAY is not such a merry month for all of us, especially those who are ill; it is however a hardworking month for ME Awareness...

Interesting that this is another AfME initiative this time with University of Sussex " The annual call for day diaries by the Mass Observation Archive will take on a special significance this year, as it seeks to raise awareness of a debilitating neurological condition documented by previous...

It's the trustees that have the power, and they're currently looking for new ones, so it would be good to get people who are as well informed as possible in there, even if it might involve some frustrating meetings. https://www.actionforme.org.uk/about-us/working-and-volunteering-for-us/ "As...

The segment starts at 2 hours 11 minutes with a brief description of the symptoms of ME. A chat with Philip Murray, @phil_in_bristol, one of the organisers of this year's #millionsmissing in Bristol. He describes how he became ill 20 years ago, and how it took six months before he could stand...

https://www.actionforme.org.uk/news/millions-missing-protest-coming-to-geneva/ Millions Missing Protest coming to Geneva April 10, 2018 Action for M.E. is supporting the Millions Missing campaign with our Millions Missing event in Geneva on Saturday 12 May – and you can get involved at home...

This thread has been split from What is Afme's current position on the PACE Trial?. Issues relating to AfME's staff, trustees and advisors and donors can be discussed here. Please keep the discussion civil and compliant with our forum's rules. @Action for M.E. Hi Clare do you have a paid...

Action for ME recently joined the forums. On another thread, Clare from Action for ME (AfME) wrote: Thanks for being willing to look at questions, Clare. A key one for a lot of people is AfME's current attitude to the PACE trial. AfME signed the joint open letter asking QMUL to release the...

https://www.bbc.co.uk/programmes/p05y3tpw 2:11 in. Very good interview from knowledgeable, sympathetic interviewer and great interview by SC who I usually think is weak, not today. Covers numbers, why not better recognised /funded and cared for, how Sonya became AFME CEO and her son getting...

This thread has been split from this thread Afme joined this forum a few days ago.

"Haywoods Are Proud To Support Action for M.E. March 06/The Haywoods Group We are delighted and proud to announce that we are supporting Action for M.E., a charity founded to tackle the misconceptions of this misunderstood illness, and to support those who suffer from it. In the words of the...

I have previously shared the correspondence for 2004. Here it is for 2003. I am getting these as and when I can. There is a limit to how much they will release and how often. Even if someone else asks it won't help as it will be seen as the same request. I'll post more when I get them. I have...

The PRIME project: developing a patient evidence‐base Sophie Staniszewska, DPhil (Oxon) BSc (Hons), 1 Sally Crowe, Post Graduate Diploma, 2 Douglas Badenoch, MSc, 3 Carol Edwards, BA MSc PhD, 4 Jan Savage, RN BSc (Hons) PhD, 5 and Will Norman, PhD MA (Hons) 6 Acknowledgements We are grateful...

https://www.actionforme.org.uk/news/new-phd-funding-for-biomedical-me-research/ Action for M.E. and the Scottish Government Chief Scientist Office are pleased to launch a joint funding call for Scottish Universities to host a PhD studentship in biomedical research into the underlying aetiology...

Merged thread https://www.actionforme.org.uk/news/international-m.e.-advocacy-our-latest-project/

Just announced on the AfME Facebook page

I didn't know where to put this, but thought it of interest. From a Bristol Uni magazine in 2013 an article by Esther Crawley. http://www.bristol.ac.uk/media-library/sites/university/migrated/documents/nonesuch6.pdf (pages 15/16 on pdf, 29/30 in mag) Her mission: "‘The aim of my fellowship is...

I could only find a thread saying that this was coming, not that it had been provided: "Our November 2017 webinar was led by pharmacist and Action for M.E.volunteer, Emily Beardall, who also has M.E. A recording of the webinar, and its accompanying slides, are now available to view online...