afme

https://www.surveymonkey.co.uk/r/GQR9Y8M

http://www.virology.ws/2019/01/23/trial-by-error-action-for-mes-employment-advice/ Also includes @Trish 's letter to AfME about the "Toolkit for professionals".

Following discussion on this thread, I contacted Action for ME to express concern about the document and ask for the research evidence on which the advice in the document was based. The staff member who replied asked me for more details of my concerns and seemed bemused by the idea that there...

As retweeted by AfME some bits are good, but " Action for ME continue to say that having a well informed GP to assist with both depression and ME is important. Having appropriate and different treatments are vital, so that the mental health treatments don’t make the neurological side of ME...

This post and the four following ones have been split from this thread: Action for M.E. hosts DWP spotlight training https://www.actionforme.org.uk/uploads/this-is-me-May-2018.pdf " Have you found this resource helpful? Is there a way we could improve it? We would love to hear your feedback...

@Action for M.E. has launched Walk with M.E. 2019: https://www.actionforme.org.uk/make-a-difference/fundraise/walk-with-me-2019/ It has received quite a lot of criticism on its Facebook page from those who feel it is inappropriate and sends out the wrong messages:

Taken from a blog originally from 2011 but the comments go on to 2018; other comments: in the interest of being equipoise, a more positive comment (although Dr Murphy knew that the patient was a medical student): full blog here...

https://www.actionforme.org.uk/news/action-for-me-hosts-dwp-spotlight-training/

Now that 2018 has come to an end here are some of the things that we have achieved over the last year: continues at https://www.actionforme.org.uk/news/new-years-resolutions/

https://www.actionforme.org.uk/news/%E2%80%8Bwe-need-your-help-connect-me-survey/

Source: EventBee / Action for ME Date: October 8, 2018 URL: https://www.eventbee.com/v/actionforme2018conference Action for M.E.'s AGM and Conference 2018 ----------------------------------------- Wed November 28 2018 09:30 AM Allen & Overy LLP, One Bishops Square, London, UK Our annual...

This thread has been split from a thread about a new study: UK: Brighton and Sussex University Hospital and Medical School - Chronic Pain and Fatigue Several years ago CFS research Foundation raised money for a pain study. After Anne Faulkner died, Afme took it over. I havent seen any paper and...

This starts with some Action for ME video that I've seen before. Then it goes on to discuss the young woman's case, and progression to full-time work!!! There is also a link to the NHS page which still recommends CBT and GET... Station: TeessideLive / AfME Date: September 2, 2018 WebTV...

@Cheshire first posted about this here, but I thought it was important enough to warrant its own thread. https://www.actionforme.org.uk/news/pace-trial-and-behavioural-treatments-for-me/

I know no more about this than what AfME have posted on Facebook about it.

Action for ME have instigated and delivered a series of webinars for GPs and Health professionals; most are accessed via the Webinars for GP website - medics amongst you may be able to access these. webinars potentially offer a great form of information dissemination, and educating professionals...

Action for ME have a survey on the NICE draft which they say will inform their feedback. 120 people have done it

This was apparently in the @Action for M.E. journal earlier this year. https://www.metrust.org.uk/2018/07/06/article-by-dr-paul-worthley-in-interaction-magazine/ I don't know anything about Worthley or the ME Trust, though I see Countess of Mar is a Patron. It reads to me as very similar to...

Text from their Facebook post Treatment and management page - https://www.actionforme.org.uk/living-with-me/treatment-and-management/ GET and CBT page - https://www.actionforme.org.uk/resources/questions-and-answers/what-are-get-and-cbt/ I'm sure many of us here will find the wording...

In case anyone is interested! Source: InterAction 98, Spring 2018 Date: April 25, 2018 WebRadio: https://soundcloud.com/actionformeaudio URL: https://www.actionforme.org.uk/news/interaction-now-available-in-audio-format/ Item: InterAction AfME now available in audio format