Copied from this thread I haven't looked at the update myself yet https://www.actionforme.org.uk/resources/our-publications/booklets/ Pacing for...
Emily Beardall, 44, had just qualified with a degree in pharmacy when she was diagnosed with myalgic encephalomyelitis (ME). “I couldn’t work. It...
Action for M.E. has raised serious concerns with every Local Medical Committee (LMC) following the announcement of a motion at their conference by...
this website https://web.archive.org/web/20190914091905/http://www.afme.org.uk/ we discussed it at the other place and some people thought it...
Mary-Jane Willows explains how schools can support pupils with ME What’s the biggest cause of health-related long-term school absence? The...
Following discussion on this thread I have now sent the following personal letter to Sonya Chowdhury, Chief Executive of the UK charity Action for...
write up on AfME website: What's it like having a debilitating illness that some people don't believe exists? When it leaves you too unwell to...
Contibutions from Dr Sarah Jarvis, Charles Shepherd (MEA), Sonia Chowdhury(AfME), Leonard Jason. Muscle aches and four other signs your...
Tuesday, 15 October 2019, 10:00 AM - 4:30 PM same venue as last year Bishops Square, London, E1 6AD, United Kingdom About the Event The...
On AfME website It took me a year and a half to get diagnosed with M.E. after I developed an infection that nearly killed me. I never really...
Pretty awful article imo. Includes quotes from SC AfME, and the MEA making the psych vs physical point. Also links to MERUK and the CDC. Very...
Action for M.E. is following-up its major 2014 survey, 'M.E. Time to Deliver' by looking, five years on, at health, welfare, employment and...
The following posts have been moved from the Reuters thread. Anybody else think that our UK charities have been rather lacklustre during the last...
Split from this thread JD is excellent. The program was informative, even a lady severe but not in the worst severity was able to show without...
Starts around 2.11.00 John Darvall. Interview with ME sufferer (ME for 20 years) Liz, who participated in pre PACE Frenchay trial in 2002....
If anyone would like to add the following to the ME-pedia AfME pages: potted history:...
This thread on pacing has been split from this thread: Consumer contested evidence: why the ME/CFS exercise dispute matters so much. Plos blog...
How many protocols does this harmful GET trial need exactly? There's 5 on the website now. Is Action for ME supporting this street merging with...
Action for M.E. wants all children living with M.E./CFS to get the support they need in school. We need to make sure we are focusing on the issues...
Action For ME is the largest charity for this disease in the UK. It is also the charity responsible for enabling the PACE trial through its...
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