Patients, experts and MPs discuss the harm associated with the PACE trial and behavioural treatments for ME. Over 50% of ME patients consistently...
[MEDIA] Half the research spending for ME in a 10 year period in the UK went on the widely discredited £5M PACE trial [1]. The trial is taught in...
Moderator note: Posts on this thread have come from three places, this thread and the following two threads. They have been copied or moved to...
Before the approval of the PACE trial there were several similar failed submissions to the MRC - only when they added "Specialist" Medical Care...
I pursued this after the failure of PLOSONE to make the researchers hand over the data in compliance with the journal policy. The researchers...
On Royal Free website: CFS/ME research Royal Free London chronic fatigue syndrome/ME research project: the PACE trial The Royal Free London...
The Royal College of General Practioners (RCGP) is having its Presidential election soon....
The Canary: A DWP-backed ‘medical scandal’ could be blown wide open...
One group of science-minded patients – including Tom Kindlon, Robert Courtney and Alem Matthees – carefully examined the trial publications, and...
I first applied back in 2016. I went through review and then a complaint to the ICO and then all through last year I was in the process of an...
KCL also claimed that it doesn't hold the data in terms of the FOIA. The ICO upheld the KCL decision, so I appealed to the FTT. In the course of...
Most of you have probably already seen these tweets, but I post them here for those of you who don't have Twitter or who missed them: [ATTACH]...
http://healthinsightuk.org/2019/04/22/the-claim-that-the-cure-for-the-crippling-fatigue-of-mecfs-was-to-change-your-mind-always-seemed-bizarre-now-...
David Tuller is a unique figure in the ME/CFS universe. A reporter and editor for the San Francisco Chronicle, Salon and writer for the New York...
As he has cropped up in another thread, thought I would post Jerome's write-up about the release and initial re-analysis of the PACE data. Just to...
Decision here. https://www.dropbox.com/s/kc9ezxfk51t1eu5/014%20040419%20Decision.pdf?dl=0
This open access rejoinder officially came out today. I thought I would highlight it in its own thread....
Fréa Lockley: The establishment media has launched a vicious "war" on chronically ill people The media has upped the ante on a vicious and...
Chronic Fatigue Syndrome (CFS) is chronic disabling illness characterized by severe disabling fatigue, typically made worse by exertion. Myalgic...
Den syge på Fanø: Skal de kronisk trætte træne? google translation: The patient at Fanø: Should the chronically tired exercise? Please look...
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