pace trial

A blog about personal experience of PACE recommended 'treatments' published earlier this year. https://mookpixie-chronicills.blogspot.com/2018/03/the-pace-trial-complaint.html

From FB 8th Oct The Impatient Revolution 8 October at 09:50 · Summary of today’s four hour interview with Professor Malcolm Hooper (UK) on ME, Lyme, human rights and global health policies that are based on fraudulent research. The full interview will be included in Huib Kraaijeveld’s new...

The four videos in the PACE "Trilogy" are now ready! (I underestimated how much had to be put into the third video!) The PACE study was a flagship trial, aimed at demonstrating that cognitive behaviour therapy and graded exercise therapy could treat and even cure ME/CFS. These are four short...

New post today from David F. Marks. The PACE Trial: A Catalogue of Errors Rarely in the history of clinical medicine have doctors and patients been placed to bitterly at loggerheads. The dispute had been a long time coming. ETA:

Event: Tuesday / 02 October 2018 7:00pm - Tuesday / 02 October 2018 9:00pm Mourne Country Hotel 52 Belfast Road Newry BT34 1TR https://www.communityni.org/event/pace-trial-one-greatest-scandals-21st-century Edit: Video now on Facebook

Unfortunately I just saw this, and as it's happening in 12 hours I won't be able to get myself there. If this was posted, I didn't see it...here or anywhere else, until just now. I'm guessing this won't be recorded, but who knows. Wish I could go to point out the webpage from Oxford, among other...

Via google translate: https://translate.google.co.uk/translate?sl=auto&tl=en&js=y&prev=_t&hl=en&ie=UTF-8&u=https://demonitor.kro-ncrv.nl/artikelen/hoe-ga-je-als-journalist-om-met-een-controversiele-wetenschappelijke-studie&edit-text=&act=url Any Dutch speakers got a better translation...

Really just adding this to the calendar: Topic: ‘Medically unexplained symptoms’: my clinical and research journey over 30 years 13th March 2019 Visiting speaker: Prof Trudie Chalder (King’s College London) Chair: Prof Patrick Luyten Location: G12, 1-19 Torrington Place...

Being too sick today to write the posts, hellos and welcome messages I would like to write, I instead asked the two nearest libraries to buy @Brian Hughes' Psychology in Crisis (just in case you don't know: most libraries have online forms for asking to buy a book ), and opened this thread...

@Cheshire first posted about this here, but I thought it was important enough to warrant its own thread. https://www.actionforme.org.uk/news/pace-trial-and-behavioural-treatments-for-me/

Would someone who's on twitter please make this dutch journalist aware of... - the S4ME PACE briefing paper: https://www.s4me.info/threads/science-for-me-pace-briefing-document.3140/#post-55894 - Graham's video...

Published this morning: CHRONIC FATIGUE Sir, Further to your report “Call for review of ‘flawed’ ME research”(Aug 21), as funders of the Pace trial we reject the view that the scientific evidence provided by the trial for using cognitive behavioural theory and managed exercise in the...

https://www.thecanary.co/opinion/2018/08/22/the-uks-general-medical-council-just-threw-250000-disabled-people-under-a-bus/ I was going to complain about another piece using the 'all in the head' line, but it seems like this is tied up to personal things with his partner who has EDS III: Good...

Only just seen this, not got access yet: https://www.bmj.com/content/362/bmj.k3621.short?rss=1

Short article in online version of The Times today reporting on the letter to the Lancet. Written by Tom Whipple- that the Lancet declined to comment.

http://www.microbe.tv/twiv/twiv-special-david-tuller-paceman/

The BPS Brigades Score Another Own Goal Not long ago, Sir Simon scored an own goal by enticing a childhood buddy to enter the PACE debate. That buddy, attorney and social commentator Mike Godwin, soon pronounced the trial—which Sir Simon had called “a thing of beauty”–to be “so profoundly...

http://www.virology.ws/2018/08/13/trial-by-error-open-letter-to-the-lancet-version-3-0/

I was introduced to a diagnosis today that I found a bit disturbing. It’s called Amplified Musculoskeletal Pain Syndrome, and the chatter around it reminds me of GET and the like—symptoms seem disproportionate, exercising through the pain won’t harm you, fear of movement, the pain is bad because...

Don't think this has been posted yet? https://www.meaction.net/2018/08/02/meaction-uk-activist-speaks-at-the-international-deaf-disabled-peoples-solidarity-summit/