pace trial

Anyone got the follow-up info on this? A record of the communication and issues with the CCC (according to the author's views)? Which authors were contacted? Carruthers? From one of the PACE trial steering committee and data ethics committee meetings it states: From Monday 28th Sept 2004...

Interestingly, when I did my usual "ME/CFS" google search in past 24 hours, it came up near the top of the first page: A neat counterpoint to the Gupta guff.

see me-pedia page: https://www.me-pedia.org/wiki/Intimidation_of_PACE_critics These are not directly related to PACE but still applicable (IMO) Letter from Countess Mar to Professor Simon Wessely 4th December 2012 please cut and paste your relevant posts here.

http://www.virology.ws/2019/02/18/trial-by-error-professor-sharpes-retraction-requests/

Full title: Even the Ethics Committee says the PACE authors should share the patient-level data, so why does PLOS ONE not enforce its regulations and compel them to? by some bloke called @JohnTheJack...

http://www.virology.ws/2019/02/13/trial-by-error-re-visiting-my-questions-for-pace-professors/

http://www.virology.ws/2019/02/12/trial-by-error-bmj-amends-last-weeks-pace-article/ Trial By Error: BMJ Amends Last Week’s PACE Article 12 February 2019 By David Tuller, DrPH Last Wednesday, the UK Health Research Authority released a letter reviewing its analysis of the PACE trial. Members...

NHS Health Research Authority: <https://www.parliament.uk/documents/commons-committees/science-technology/Correspondence/190129-Sir-Jonathan-Montgomery-Health-Research-Authority-to-Chair-re-PACE-trial.pdf> --- CBT = Cognitive Behavioural Therapy GET = Graded Exercise Therapy Let's take Peter...

HRA Report Does Not Vindicate PACE Last week, I reported that Bristol University had launched an independent investigation of research led by Professor Esther Crawley, at the request of the the UK Health Research Authority. Today, the HRA released a report on the PACE trial that has portrayed...

This thread has been split from the general thread on the PACE trial. The Health Research authority has responded to questions of MP Norman Lamb from the Science and Technology Committee, House of Commons, regarding the PACE-trial...

Article on state of psychiatry - and its disastrous incursion into ME research ie PACEtrial - by my friend George Winter in Irish medical journal Medical Independent. The link works but is v slow to load, for me, at least. https://www.medicalindependent.ie/104349/its_all_in_the_mind

http://www.virology.ws/2019/01/23/trial-by-error-action-for-mes-employment-advice/ Also includes @Trish 's letter to AfME about the "Toolkit for professionals".

In response to the Expression of Concern, the Statement of the Authors says: https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0177037 During negotiations with the journal over these matters, we have sought further guidance from the PACE trial REC. They have advised that public...

Didn't know where to post this or if it has been posted before; https://www.qmul.ac.uk/wolfson/media/wolfson/ref-2014-results/UoA2-chronic_fatigue_syndrome.pdf We have so much to thank QMUL for

David Tuller is giving a talk soon in Drammen, Norway about the PACE-trial. It'll be live-streamed here at 18.00 PM (GMT+1)

The issue of GET and safety has of course been much discussed, especially regarding the the PACE trial authors' claims to have demonstrated its safety, versus the fact there exists good quality anecdotal evidence to the contrary. There is however an aspect I'm not sure has been broached, and...

--- Sent: Friday 9 November 2018 14:35 To: cureme@me-cfs.se Subject: Swedish reporter is preliminary interested in PACE trial Dear Sirs, In Sweden we had extensive reporting of the the surgeon Paolo Macchiarini and his fraudulent research, which led to his and others fall. SVT made several...

Blog by @Brian Hughes https://notthesciencebit.net/2018/11/03/the-triumph-of-eminence-based-medicine/

Moderator note: This post and following posts have been moved from this thread What role should the public play in science? - Science Weekly podcast The Guardian's Science Weekly podcast , 2 Nov 2018...

Trial By Error: Three Years On... Three years ago this month, Virology Blog published my 15,000-word investigation of the PACE trial, so this seems like a good time for a bit of reflection. I certainly didn’t expect this saga to drag on this long. I’ve kept at it mainly because of the UK...