pace trial

Michael Sharpe Tweeted this out. Well, the professor doesn't mention PACE trial deniers, but we all know what he is really up to. :sneaky: Afterall, PACE trial critics were compared to flatearthers, anti-vaxxers, and climate change denialists. However, note Robert McMullen's tweet and how it...

Malcolm Hooper: Letter from Professor Hooper to Bridget Phillipson MP http://www.margaretwilliams.me/2018/hooper-to-phillipson.pdf 16th July 2018 Dear Bridget, Many thanks for forwarding the letter of 14th June 2018 (PO-1133220) from Lord O’Shaughnessy, Parliamentary Under Secretary of...

http://www.virology.ws/2018/07/11/trial-by-error-my-letter-to-the-science-and-technology-committee/

Ron Davis said, “I would like to use it as a teaching tool, to have medical students read it and ask them, ‘How many things can you find wrong with this study?’” (https://www.statnews.com/2016/09/21/chronic-fatigue-syndrome-pace-trial/) This free online course on the Design and Interpretation...

http://www.virology.ws/2018/07/10/trial-by-error-yet-another-appeal-to-the-lancet-with-more-on-board/ As many members will be aware, this forum is now a signatory to the letter, too.

Trial By Error: Do All Clinical Trial Experts Love PACE? 9 July 2018 By David Tuller, DrPH http://www.virology.ws/2018/07/09/trial-by-error-do-all-clinical-trial-experts-love-pace/ Professor Michael Sharpe blocked me on Twitter many weeks ago but apparently can’t restrain himself from...

I've created this thread as a repository for user-generated graphs and gifs related to the PACE trial.

This thread was created by moving posts from this thread. Several posts suggesting and agreeing to the move have been deleted or edited. My wife and I did in fact attend one of our MP's surgery appointments today. We had been allocated 10 mins and were in there more like 25 mins. Our MP is a...

This thread has been started as a place where reports from PACE trial participants can be recorded. Edit - the scope of the thread has since been widened to all CBT and GET trials.

Copied post My doctor once suggested I go to the exercise physiology clinic of Nathan Butler. Nathan Butler was involved in the PACE trial, presumably as a GET therapist, and had subsequently set up the Melbourne, Australia clinic, specialising in CFS and fibromyalgia. Back in 2015 or so he...

Pretty good article on BBC news website about recent parliamentary debate “Chronic fatigue syndrome, or ME, is incorrectly treated, lacks sufficient funding and is poorly understood by many in the medical profession - according to an MP who has been campaigning in Parliament to change...

Split from the twitter thread. Some discussion of the peer review of the PACE re-analysis article submitted to the BMJ starts from post #1745 of that thread. edit: I also want to point out that this review misrepresents a number of aspects of the paper. The paper submitted to the BMJ was later...

Understandably GET is being highlighted as being generally detrimental as a treatment for ME/CFS. But the message on the version of CBT as used in the PACE trial being almost as bad and harmful does not appear to be getting through. @Emsho s testimony at the Scottish Parliament about the CBT...

For years dismissed as 'laziness', but now cruel disease is finally getting attention it deserves Rochdale News: "Now a three-hour Westminster Hall debate on Thursday afternoon (21 June, 1.30 to 4.30 pm), supported by the ME Association and other charities, will discuss treatments and research...

http://www.virology.ws/2018/06/19/trial-by-error-an-open-letter-to-the-lancet-two-years-on/

Another article by Steve Topple using ME and PACE as illustrative of current government policy, https://www.thecanary.co/opinion/2018/06/18/esther-mcvey-and-her-department-are-now-totally-out-of-control/

A new video by @Graham, the first in a series of three, explaining the PACE trial (about 8 mins),

http://www.virology.ws/2018/06/18/trial-by-error-sir-simon-scores-an-own-goal/

https://www.thecanary.co/discovery/analysis-discovery/2018/06/14/the-dwp-is-now-co-working-with-the-nhs-we-should-all-be-very-worried/

I just came across something in this week's New Scientist (a UK science mag) about a Stanford professor named Mark Jacobson who last year tried to sue for libel another researcher who published a critique of his climate-change work. According to TheScientist (not the New Scientist), "Jacobson is...